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ACSQHC-ARCR-017

Prioritised clinical domain
Nil
Abbreviation
ASAR
Registry contact

Peter Gibson, University of Newcastle, peter.gibson@newcastle.edu.au, asar@thoracic.org.au

Year established
2019
Description

The Australasian Severe Asthma Network (ASAN) is a multicentre clinical research network that:

  • Collects and reports on data from people with severe asthma
  • Facilitates clinical research in this population, and 
  • Seeks to improve clinical practice for this condition.

The ASAN provides a mechanism for sharing information which helps researchers and clinicians to better understand severe asthma and develop optimised clinical management strategies. The ASAN collects data relating to patients who are diagnosed with Severe Refractory Asthma (SA) and who are recruited from participating sites across Australia, Singapore, and New Zealand. All information collected from affiliate sites are securely stored in the main data repository. Access to the database is restricted to authorised users.

Reporting process
  • Reported in Annual Report
  • Reported in other public reports
  • Shared with clinicians
  • Shared with consumers
  • Shared with medical colleges
Patient Reported Outcome Measures (PROMs)
  • Asthma Control Questionnaire (ACQ)
  • Asthma Quality Of Life Questionnaire (AQLQ)
Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://www.thoracic.org.au/researchawards/asar-sites

Victoria

  • The Alfred Hospital
  • Frankston Hospital

New South Wales

  • Campbelltown Hospital
  • Concord Repatriation General Hospital
  • John Hunter Hospital
  • Liverpool Hospital
  • St George Specialist Centre
  • St Vincent’s Clinic
  • Westmead Hospital
  • Woolcock Medical Research Institute

Western Australia

  • Fiona Stanley Hospital

Queensland

  • Princess Alexandra Hospital

South Australia

  • Royal Adelaide Hospital
Condition
Severe Asthma
Name
Australasian Severe Asthma Registry
Lead organisation
The Thoracic Society of Australia and New Zealand (TSANZ)
Ethics approval reference
Hunter New England HREC Reference No: 12/11/21/4.04; NSW REGIS Reference No: 2019/ETH03836
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