Susie Bae, Peter MacCallum Cancer Centre, susie.bae@petermac.org
The Australia and New Zealand Sarcoma Association (ANZSA) supports sarcoma data collection at six major sarcoma referral centres around Australia through the ACCORD sarcoma database.
Data collection was initiated as a pilot in 2009, firstly at Peter MaCallum Cancer Centre, and subsequently expanded to include additional sites. Each hospital has HREC approval in place for ongoing data collection for research purposes and only custodians of ethically approved studies can access de-identified data. Single-site and multi-site audits and patterns of care studies have been conducted and ANZSA produces six-monthly data reports and encourages the engagement of sarcoma researchers in utilising the sarcoma registry.
- Feedback to contributing clinicians via biannual ANZSA reporting to ANZSA members
- Shared with clinicians
- Shared with medical colleges
Nil
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- Peter MacCallum Cancer Centre
- Chris O'Brien Life House
- Prince of Wales Hospital
- Sir Charles Gardiner Hospital
- Royal Adelaide Hospital
- The Canberra Hospital