Jacinta Opie and Fanny Sampurno, Monash University, pco_dcc@monash.edu
The TrueNTH Global Registry is an international project funded by the Movember Foundation. The aim of this registry is to significantly improve quality of care and the attendant patient‐centred outcomes in men with localised prostate cancer globally. The specific objective is to leverage existing infrastructures and relationships to build success and experience within the assembled registry team. The registry involves the collection of prospectively‐collected dataset based on the International Consortium for Health Outcome Measures (ICHOM) standardised dataset for localised prostate cancer.
- Shared with principal investigators from each participating countries
- Feedback to contributing clinicians
The EPIC‐26, the EORTC QLQ‐PR25, the Utilisation of Sexual Medications/Devices questions taken from a paper by Miller et al.
Nil
- Australian Urology Associates in Melbourne Australia
- Garvan Institute of Medical Research in NSW Australia
- Australian Prostate Cancer Research Centre - Queensland, QUT for the South East Queensland Consortium of Participating Sites
- Centre for Health Outcome Measures New Zealand
- MedUniWien in Austria
- Princess Margaret Cancer Centre in Canada
- Thomayer Hospital in Prague
- German Cancer Society in Berlin
- Molecular Medicine Ireland in Dublin
- Prince of Wales Hospital in Hong Kong
- University of Naples Federico II in Naples
- Fondazione IRCCS Istituto Nazionale dei Tumori and IRCCS Ospedale San Raffaele in Milan
- Santeon in Utrecht
- Cancer Registry of Norway
- IMIM (Hospital del Mar Research Institute) in Barcelona
- University of Southampton in Southampton (UK)
- University of Michigan in Ann Arbor
- University of California Los Angeles (UCLA) Urology
- Vanderbilt University Medical Center in Nashville (Tennessee)
- Sloan Kettering Institute for Cancer Research in New York
Nil