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ACSQHC-ARCR-196

Prioritised clinical domain
High burden cancers
Abbreviation
ANZTCR
Registry contact

Dr Liane Ioannou, Monash University, anztcr@monash.edu

Year established
2017
Description

The purpose of the ANZTCR is to develop a population-based thyroid cancer clinical quality registry to monitor and improve the quality of care provided to individuals diagnosed with thyroid cancer in Australia and New Zealand.

The aim of the ANZTCR is to optimise clinical care by capturing clinical data for all newly diagnosed thyroid cancer patients.

The population includes patients aged ≥ 16 years that have been newly diagnosed, assessed or treated for thyroid cancer at a participating site within the timeframe for inclusion. The ANZTCR uses an opt-out approach to minimise selection bias and to achieve near 100% coverage of the eligible population.

To benchmark clinical care, a consensus set of clinical quality indicators were developed using a modified-Delphi approach (MUHREC #11117). A minimum dataset has been developed to measures outcomes regarding key diagnostic, pathological, clinical, treatment, complications and outcomes from diagnosis to 90-days post-thyroid cancer diagnosis as well as recurrence (if applicable).

Reporting process
  • Feedback to contributing clinicians 
  • Shared with clinicians
  • Reported in Annual Report
  • Shared with hospital executive
  • Shared with medical colleges
Patient Reported Outcome Measures (PROMs)

Not yet collecting PROMs but is planning to in the future

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://anztcr.org.au/index.php/about/participating-health-services-and-districts/

Victoria

  • Alfred Hospital
  • Monash Health (Monash Medical Centre Clayton, Monash Medical Centre Moorabbin, Dandenong Hospital)
  • Western Health (Footscray Hospital, Sunshine Hospital, Williamstown Hospital, Sunshine Radiation Therapy Centre)
  • Frankston Hospital
  • Royal Melbourne Hospital
  • St Vincent's Hospital Melbourne
  • St Vincent's Private Hospital Melbourne
  • Peninsula Private Hospital

New South Wales

  • Hornsby Hospital
  • Royal North Shore Hospital
  • John Hunter Hospital
  • Newcastle Private Hospital
  • The Mater Hospital
  • Maitland Private Hospital
  • Dudley Private Hospital
  • Lake Macquarie Private Hospital
  • Royal North Shore Private Hospital

South Australia

  • Royal Adelaide Hospital
  • Flinders Medical Centre
  • The Queen Elizabeth Hospital

Queensland

  • Metro South Health (Radlan Hospital, Logan Hospital)
  • North West Private Hospital
  • Greenslopes Private Hospital
  • Townsville Hospital
  • The Wesley Hospital Brisbane 
Condition
Thyroid Cancer
Name
Australian and New Zealand Thyroid Cancer Registry
Lead organisation
Monash University
Ethics approval reference
HREC/16/Alfred/61
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