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ACSQHC-ARCR-228

Prioritised clinical domain
Nil
Abbreviation
Nil
Registry contact

Katrina Smith, Neurosurgical Society of Australasia,& nbsp;shunt.registry@nsa.org.au

 

Year established
2016
Description

The primary purpose of the Shunt Registry is to systematically collect information related to the use of cerebrospinal (CSF) shunts to guide best clinical practices, processes and improve health outcomes for patients with CSF shunts. Any hospital throughout Australasia where cerebrospinal fluid (CSF) shunt surgery is performed is eligible to contribute data to the Shunt Registry & nbsp; Any patient undergoing a CSF shunt related procedure in an ethics approved site is eligible to contribute data to the Shunt Registry. There are no additional inclusion or exclusion criteria.

 

The Shunt Registry key objectives are to:

  • Enable determination of the current indications, frequency and outcomes of CSF shunt related procedures;
  • Enable measurement of CSF shunt longevity and device failure rates with benchmarking of CSF shunt component performance;
  • Enable early identification of particular CSF shunt components associated with unexpectedly high failure rates;
  • Measure the quality and safety of care to form benchmarking of outcomes between de- identified individuals and neurosurgical units in order to improve the quality of clinical care;
  • Mitigate risk by using Shunt Registry data to rebut any inaccurate information published about the safety of CSF shunts;
  • Provide an opportunity to study methods of improving the performance and outcomes of CSF shunts and their components through research projects;
  • Provide a central repository of potentially re-identifiable information to allow rapid provision of accurate information to the neurosurgeon if the need arises
  • Provide the neurosurgeon access to device information if a patient has an emergency need for neurosurgical care.
Reporting process

Feedback to contributing clinicians

Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Australian Capital Territory

  • National Capital Private
  • Canberra Hospital 

New South Wales

  • Children's Hospital at Westmead   
  • Royal Prince Alfred Hospital  
  • The Sydney Children's Hospital Randwick
  • Nepean Hospital
  • Macquarie University Hospital
  • Prince of Wales Hospital 
  • St George Public Hospital 
  • Prince of Wales Private Hospital  
  • Sydney Adventist Hospital
  • Concord Repatriation General Hospital
  • John Hunter Hospital  
  • John Hunter Children's Hospital 
  • Liverpool Hospital 
  • Norwest Private
  • North Shore Private 
  • Royal North Shore Hospital 
  • St Vincent's Public Hospital 
  • St Vincent's Private Hospital 
  • Westmead Hospital 
  • Westmead Private Hospital 
  • Wollongong Public Hospital 
  • Wollongong Private Hospital 

Queensland

  • Queensland Children's Hospital 
  • Brisbane Private Hospital
  • Royal Brisbane and Women's Hospital
  • Mater Children's Private Hospital
  • Mater Private Hospital 
  • Gold Coast University Hospital 
  • Townsville Hospital 
  • Mater Hospital Townsville 
  • Sunshine Coast University Hospital 
  • Greenslopes Private Hospital 
  • Pindara Private Hospital 
  • Princess Alexandra Hospital 
  • Wesley Private Hospital 

South Australia

  • Calvary Wakefield Hospital 
  • Women  and Children's Hospital 
  • Royal Adelaide Hospital
  • Flinders Medical Centre
  • Flinders Private Hospital 
  • Memorial Hospital

Tasmania

  • Royal Hobart Hospital 
  • Calvary Lenah Valley Hospital 

Victoria

  • The Royal Children's Hospital
  • Austin Hospital
  • Melbourne Private Hospital 
  • Royal Melbourne Hospital         
  • Alfred Hospital 
  • Monash Health 
  • Monash Children's Hospital 
  • St Vincent's Hospital 
  • Cabrini Malvern

Western Australia

  • Hollywood Private 
  • Royal Perth Hospital
  • Perth Children's Hospital 
  • Sir Charles Gairdner Hospital

New Zealand

  • Braemar Hospital 
  • Christchurch Hospital 
  • Mercy Hospital (Dunedin)
  • Dunedin Hospital 
  • Waikato Hospital
  • Auckland Hospital 
  • Wellington Hospital 
  • Starship Childrens Hospital
Condition
Hydrocephalus
Name
Australasian Shunt Registry
Lead organisation
Neurosurgical Society of Australasia
Ethics approval reference
Sydney Children's Hospital Network HREC 16 196 - lead HREC for sites operating under NMA. All other sites have ethics approval as required.
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