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ACSQHC-ARCR-254

Prioritised clinical domain
Nil
Abbreviation
UGICR – Pancreatic Module
Registry contact

Ms Elysia Greenhill, Monash University, ugicr@monash.edu

Year established
2015
Description

The Upper Gastrointestinal Cancer Registry (UGICR) is a clinical quality registry that monitors the quality of care provided to Australians diagnosed with upper gastrointestinal cancers.



The UGICR was established in 2015 and is managed by the Cancer Research Program, within the School of Public Health and Preventive Medicine at Monash University. The School has extensive experience in the establishment and management of clinical registries and is considered a centre of excellence in clinical registry science.



The pancreatic module of the UGICR aims to identify unwarranted variation in treatment and outcomes for people with newly diagnosed cancer arising from the pancreas, and provide timely risk-adjusted benchmarked reports of quality of care to participating hospitals.

Reporting process
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with hospital executive
Patient Reported Outcome Measures (PROMs)
  • European Organization for Research and Treatment Quality of Life Questionnaire (EORTC QLQ) - C30 (EORTC QLQ-C30)
  • EORTC QLQ - PAN26
Patient Reported Experience Measures (PREMs)
  • European Organization for Research and Treatment Quality of Life Questionnaire (EORTC QLQ) - C30 (EORTC QLQ-C30)
  • EORTC QLQ - PAN26
Participating sites

New South Wales

  • Bankstown-Lidcombe Hospital
  • Calvary Mater Newcastle
  • Campbelltown Hospital
  • Chris O’Brien Lifehouse
  • John Hunter Hospital
  • Liverpool Hospital
  • Prince of Wales Hospital
  • Prince of Wales Hospital – Private
  • Royal North Shore Hospital
  • Royal Prince Alfred Hospital
  • Royal Prince Alfred Hospital – Private

Victoria

  • Albury Wodonga Health
  • Alfred Health
  • Austin Health
  • Ballarat Health Services
  • Bendigo Health
  • Cabrini Health
  • Eastern Health
  • Epworth Health Care
  • Frankston Private
  • Goulburn Valley Health
  • Jessie McPherson Private Hospital
  • Latrobe Regional Hospital
  • Monash Health
  • Northern Health
  • Peninsula Health
  • Peter MacCallum Cancer Centre
  • Ramsay – Warringal Private Hospital
  • Royal Melbourne Hospital
  • St Vincent’s Hospital Melbourne
  • St Vincent’s Private Hospital Melbourne
  • Warringal Private Hospital
  • Western Health
Condition
Pancreatic Cancer
Name
Upper Gastrointestinal Cancer Registry (UGICR) – Pancreatic Module
Lead organisation
Monash University
Ethics approval reference
Monash Health HREC: Reference HREC/15/MonH/134
Aboriginal Health and Medical Research Council of New South Wales HREC: Reference 1387/18
Cancer Council Victoria HREC: Reference 1611
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