Australasian Leukaemia & Lymphoma Group info@allg.org.au
The ALLG NBCR is a national registry collecting clinically annotated data and biospecimens from a patient with a haematological malignancy with a focus on AML, ALL, UL and MDS. Treatment and clinical outcome data are collected for patients and the Australasian haematology community of ALLG members utilise data to inform practice, consider clinical trial inclusion, and to conduct research.
The ALLG NBCR is governed by several committees with regular reporting and feedback mechanisms. The ALLG Registry Operations Committee (ROC) oversees the day-to-day operations and performance metrics of the registry to ensure key targets are met.
The ALLG Scientific Advisory Committee liaise with the ALLG ROC to direct the scientific validity and direction.
The ALLG membership is provided with regular updates, including the ALLG Biannual Scientific Meeting.
There are also regular reporting mechanisms to the approving HRECs and RGOs via annual reports.
Offered to patients with Myelodysplastic syndromes (MDS)
Nil
Australian Capital Territory
- Canberra Hospital
New South Wales
- Blacktown Hospital
- Border Medical Oncology Research Unit
- Concord Hospital
- Gosford Hospital
- Liverpool Hospital
- Calvary Mater Hospital
- Nepean Hospital
- Orange Health Service
- Princes of Wales
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George Hospital
- St Vincent's Sydney
- The Tweed Hospital
- Wollongong Hospital
Northern Territory
- Royal Darwin Hospital
Queensland
- Gold Coast Hospital
- Icon Cancer Centre
- Princess Alexandra Hospital
- Royal Brisbane Hospital
- Rockhampton Hospital
- Sunshine Coast Hospital
- Toowoomba Hospital
- Townsville Hospital
South Australia
- Royal Adelaide Hospital
- Flinders Medical Centre
- Queen Elizabeth Hospital
Tasmania
- Royal Hobart Hospital
- Launceston Hospital
Victoria
- Alfred Hospital
- Austin Hospital
- Box Hill Hospital
- Geelong Hospital
- Monash Health
- Northern Hospital
- Royal Melbourne Hospital
- Peter MacCallum Hospital
- St Vincent's Melbourne
Western Australia
- Fiona Stanley Hospital
- Royal Perth Hospital
- Sir Charles Gairdner Hospital
New Zealand
- Auckland Hospital
- Christchurch Hospital
- North Shore Hospital
- Waikato Hospital
- Wellington Hospital
1. Alfred Hospital HREC - Ref # 181/12
2. Canberra Hospital HREC - Ref # 3/13/049
3. Royal Darwin Hospital - Menzies School of Health Research Ref # HoMER13-1985
4. Royal Hobart Hospital HREC Tasmania Network Ref # HH0012836
5. Launceston Hospital HREC Tasmania Network Ref # HH0016511
6. The Queen Elizabeth Hospital HREC – Ref # HREC/12/TQEHLMH/35
7. Sir Charles Gairdner Hospital HRECRMH HREC – Ref # RGS0000001649
8. Royal Melbourne Hospital -Melbourne Health HREC – Ref # HREC/12/MH/106
9. Northern B Health and Disability Ethics Committee (NZ) – Ref # 21/NTB/115