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ACSQHC-ARCR-321

Prioritised clinical domain
Diabetes
Abbreviation
ADFR
Registry contact

Joel Lasschuit, National Association of Diabetes Centres, joel@nadc.net.au

Year established
2020
Description

The Australian Diabetes Foot Registry standardises data collection in High Risk Foot Services (HRFS) nationally, providing an unprecedented opportunity for audit, benchmarking, quality improvement and collaborative research. HRFS deliver specialist interdisciplinary care to people with diabetes-related foot complications, including ulceration, osteomyelitis and Charcot foot. These services are established to reduce the healthcare and individual burden of diabetes-related foot complications by coordinating care, reducing hospitalisation and improving clinical outcomes. However, prior to establishment of the ADFR, siloed and often insufficient data collection practices impeded comprehensive outcome evaluation. With introduction of a national HRFS Standards and Accreditation program by the National Association of Diabetes Centres, the need for national data collection, centralised support and infrastructure to meet quality improvement standards was recognised. The primary objective of the ADFR is to develop a standardised Australian diabetes repository for HRFS. Secondary objectives are to evaluate service and clinical outcomes, perform national benchmarking, provide reports to participating services, and establish a platform for local and collaborative research. Data is prospectively and longitudinally collected on people with diabetes and one or more active foot complications attending a participating HRFS. The project has ethics approval under the National Mutual Acceptance Scheme with an opt-out consent approach (waiver of consent in WA and NT). Data and outcome domains span participant demographics, diabetes characteristics, comorbidities, ulceration characteristics and classification, Charcot foot characteristics and classification, referral processes, telehealth utilisation, interdisciplinary involvement, offloading practices, antibiotic prescription, hospitalisations, surgical interventions including amputation, service wait times, remission and recurrence of complications, and service separation.

Reporting process
  • Feedback to contributing clinicians
  • Shared with other clinicians
  • Reported in an Annual Report to participating sites
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Australian Capital Territory

  • The Canberra Hospital

New South Wales

  • Bankstown-Lidcombe Hospital
  • Campbelltown Hospital
  • Dubbo Base Hospital
  • Gosford Hospital
  • Liverpool Hospital
  • Nepean Hospital
  • Port Macquarie Community Health Campus 
  • Royal Prince Alfred Hospital
  • Shoalhaven District Memorial Hospital
  • St Vincent's Hospital (Darlinghurst)
  • Tamworth Rural Referral Hospital
  • Wagga Wagga Rural Referral Hospital
  • Wollongong Community Health Centre
  • Wollongong Hospital
  • Wyong Public Hospital

Northern Territory

  • Palmerston Regional Hospital
  • Royal Darwin Hospital

South Australia

  • Flinders Medical Centre
  • Marion GP Plus Health Care Centre
  • Noarlunga Health Service
  • The Queen Elizabeth Hospital
  • The Royal Adelaide Hospital

Tasmania

  • Launceston General Hospital
  • North West Regional Hospital
  • Royal Hobart Hospital

Victoria 

  • Austin Health - Austin Hospital
  • Ballarat Health Services
  • Box Hill Hospital
  • Goulburn Valley Health - Shepparton Campus
  • Latrobe Regional Hospital
  • Maroondah Hospital
  • Monash Medical Centre - Clayton Campus
  • Northeast Health Wangaratta 
  • St Vincent's Hospital (Melbourne) Ltd
  • Western Health

Western Australia

  • Bentley Health Service
  • Fiona Stanley Hospital
  • Joondalup Health Campus
  • Fremantle Hospital And Health Service 
  • Royal Perth Hospital
  • Sir Charles Gairdner Hospital
Condition
Diabetes-related foot complications
Name
Australian Diabetes Foot Registry
Lead organisation
Australian Diabetes Society
Ethics approval reference
St Vincent’s Hospital Sydney HREC: 2020/ETH01087 (NMA)
Northern Territory Department of Health and Menzies School of Health Research HREC: 2021-4131 (NT)
Preferred published date
Immediately
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