Prioritised clinical domain
Musculoskeletal disorders
Abbreviation
SOHO
Registry contact
Eleanor Morris, The Children’s Hospital, Westmead, eleanor.morris@health.nsw.gov.au
Year established
2019
Description
The aim of the SOHO registry is to collect patient reported outcome measures (PROMs) amongst children with paediatric orthopaedic conditions attending The Children's Hospital at Westmead. The outcome measures collected are tailored to the individual orthopaedic diagnoses. Currently included diagnoses are:
- Idiopathic Scoliosis
- Early-Onset Scoliosis
- Syndrome or Neuromuscular-related Scoliosis
- Charcot Marie Tooth disease
- Congenital Talipes Equinovarus
- Tarsal Coalition
- Lateral column lengthening
- Pes Cavus correction
- Anterior Cruciate Ligament Rupture
- Mensicus Tear, Osteochondritis Dissecans
- Discoid Mensicus
- Patella Dislocation
- Hereditary Multiple Osteochondramata
- Bone and Soft Tissue Tumous
- Leg Lengthening
- Perthes Disease
- Muccopolysacchariodosis and shoulder instability.
PROMs are completed at baseline, 6 and 12 months and then on an annual basis ongoing.
Reporting process
Feedback to contributing clinicians
Patient Reported Outcome Measures (PROMs)
- Visual Analogue Scale
- Paediatric Outcomes Data Collection Instrument
- Non arthritic hip score
- International knee documentation committee-paediatric
- Oxford foot and ankle score-child
- Scoliosis research society -22revised
- EQ-5D/Y
- EOS 24
- Quick DASH
- Paediatric Adolescent Shoulder Score
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
The Children’s Hospital, Westmead
Condition
Paediatric Orthopaedics
Name
The SOHO Registry: Standardising Orthopaedic Healthcare Outcomes
Weblink
Nil
Lead organisation
The Orthopaedic Department - The Children's Hospital at Westmead
Ethics approval reference
Sydney Children’s Hospital Network HREC 2018/ETH00563, 2018/STE00429
Program area