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ACSQHC-ARCR-433

Prioritised clinical domain
Nil
Abbreviation
UGICR – Primary Liver Module
Registry contact

Elysia Greenhill, Monash University, ugicr@monash.edu

Year established
2021
Description

The Upper Gastrointestinal Cancer Registry (UGICR) is a clinical quality registry that monitors the quality of care provided to Australians diagnosed with upper gastrointestinal cancers.



The UGICR was established in 2015 and is managed by the Cancer Research Program, within the School of Public Health and Preventive Medicine at Monash University. The School has extensive experience in the establishment and management of clinical registries and is considered a centre of excellence in clinical registry science.



The primary liver module of the UGICR aims to identify unwarranted variation in treatment and outcomes for people with newly diagnosed cancer arising from the liver, and provide timely risk-adjusted benchmarked reports of quality of care to participating hospitals.

Reporting process

Planned

  • Reported in Annual Report
  • Shared with clinicians
  • Shared with hospital executive
Patient Reported Outcome Measures (PROMs)

PROMs is a future endeavour of this module.

Patient Reported Experience Measures (PREMs)

PREMs is a future endeavour of this module.

Participating sites

National rollout planning underway

Condition
Primary Liver Cancer (Hepatocellular carcinoma)
Name
Upper Gastrointestinal Cancer Registry – Primary Liver Module
Lead organisation
Monash University
Ethics approval reference
National Mutual Acceptance Monash Health HREC: Reference 15482A
Aboriginal Health and Medical Research Council of New South Wales HREC: Reference 1387/18
Cancer Council Victoria HREC: Reference 1611
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