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ACSQHC-ARCR-467

Prioritised clinical domain
Diabetes
Abbreviation
ADDN
Registry contact

Meng Tuck Mok, Australasian Diabetes Data Network, info@addn.org.au

Year established
2012
Description

The Australasian Diabetes Data Network (ADDN) is a prospective, longitudinal diabetes registry collecting clinical data from people living with diabetes when they attend paediatric and adult diabetes centres. A primary of goal of ADDN is to undertake benchmarking to compare diabetes health outcomes across diabetes centres in Australasia. Benchmarking reports provided to all participating diabetes centres enable critical analysis of their data integrity, which can then be used to identify gaps in their organisation’s processes and enables sharing or standardisation of best practice. The dataset can therefore further our understanding of the influence of different management practices and therapies for diabetes, and the clinical and demographic predictors of clinical outcomes. The core data, collected routinely at clinic visits, include demographic characteristics, body mass index, glycated haemoglobin (HbA1c), blood pressure, lipids, diabetic ketoacidosis, hypoglycaemia, insulin therapy (injections or pumps), use of continuous glucose monitoring (CGM), diabetes complications and co-morbidities. ADDN also follows young people as they transition from paediatric services into adult care and therefore can describe the longitudinal trajectory of type 1 diabetes across the lifespan.

Reporting process
  • Feedback to contributing clinicians
  • Shared with other clinicians
  • Report on the evaluation of outcomes for the subsidised use of continuous glucose monitoring (CGM) to the Australian Government Department of Health
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

New South Wales

  • Blacktown Mt Druitt Hospital 
  • Campbelltown Hospital 
  • The Children's Hospital - Westmead
  • Illawarra Shoalhaven, Wollongong
  • Illawarra Shoalhaven - Norwa
  • John Hunter Children's Hospital 
  • Liverpool Hospital 
  • St George Hospital
  • Westmead Hospital 

Queensland

  • Mater Private Hospital - South Brisbane
  • Queensland Children's Hospital 

South Australia

  • Lyell McEwin and Modbury Hospitals
  • Women's and Children's Hospital 

Victoria 

  • Monash Children's Hospital - Clayton Campus
  • The Royal Children's Hospital
  • The Royal Melbourne Hospital - City Campus
  • St Vincent's Hospital, Melbourne
  • Sunshine Hospital - Western Health
  • University Hospital - Barwon Health 

Western Australia

  • Fiona Stanley Hospital
  • Perth Children's Hospital

New Zealand

  • Canterbury District Health Board - Christchurch
  • Starship Children’s Hospital - Auckland
  • Southern District Health Board - Dunedin
  • Waikato District Health Board - Waikato
Condition
Diabetes
Name
Australasian Diabetes Data Network
Lead organisation
Australasian Paediatric Endocrinology Group and Australian Diabetes Society
Ethics approval reference
Monash Health Human Research Ethics Committee (RES-20-0000-066L)
Hunter New England Human Research Ethics Committee (HREC/08/HNE/379)
Melbourne Health Human Research Ethics Committee (HREC/16/MH/139)
Children’s Health Queensland Hospital and Health Service Human Research Ethics Committee (HREC/09/QRCH/68/AM04)
Women's and Children's Health Network Human Research Ethics Committee (REC1048-06-2019)
The Royal Children’s Hospital Human Research Ethics Committee (37124 (amendment 37124D))
South Metropolitan Health Service Human Research Ethics Committee (RGS0000000176)
Child and Adolescent Health Service Human Research Ethics Committee (2013051EP)
Northern A Health and Disability Ethics Committee (NTX/12/EXP/076/AM03)
University of Otago Ethics Committee (HD18/098)
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