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ACSQHC-ARCR-477

Prioritised clinical domain
Nil
Abbreviation
ANZLITR
Registry contact

Wing-Yee Lo, Austin Health, wingyee.lo@austin.org.au 

Year established
1986
Description

The Australia and New Zealand Liver and Intestinal Transplant Registry (ANZLITR) is a collaborative effort of the liver transplantation units in Australia (Adelaide, Brisbane, Melbourne, Perth, Sydney) and New Zealand (Auckland).

Purpose/aims: Collect, store, analyse and report on activity and outcomes using information about all liver and intestinal transplants across Australia and New Zealand. Support approved research projects wishing to utilise de-identified ANZLITR data.

Population: All participants that are wait-listed and those that receive a liver and/or intestinal transplant. All participants that are living liver donors (who donate a part of their liver).

Outcomes measures: Waiting list activity and transplantation activity are reported by various factors including:

  • Participant age, age group and age strata
  • Paediatric weight
  • Era of transplant (5 yearly groups)
  • Donor type (deceased/living)
  • Graft type (whole/split/reduced)
  • Graft number (participants may be retransplanted if the first graft fails)
  • Graft survival time
  • Primary disease
  • Indications for retransplantation (graft failure)
  • Causes of death 
  • Patient survival time
Reporting process
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with consumers
  • Clinicians have access to their own raw data
  • Data sent to Commonwealth Organ and Tissue Authority
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Victoria

  • Victorian Liver Transplantation Unit, Austin Hospital
  • The Royal Children's Hospital, Melbourne

New South Wales

  • Australian National Liver Transplant Unit, Royal Prince Alfred Hospital
  • The Children's Hospital, Westmead

Queensland

  • Queensland Children’s Hospital
  • Queensland Liver Transplant Service, Princess Alexandra Hospital

Western Australia

  • WA Liver Transplantation Service, Sir Charles Gairdner Hospital

South Australia

  • South Australian Liver Transplant Unit, Flinders Medical Centre

New Zealand

  • New Zealand Liver Transplant Unit, Auckland City Hospital
  • Starship Children’s Hospital, Auckland
Condition
Liver and intestinal disease
Name
Australia and New Zealand Liver and Intestinal Transplant Registry
Lead organisation
Austin Health
Ethics approval reference
Monash Health Ref: RES-19-0000612A   ERM Reference Number: 55535
Preferred published date
Immediately
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