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ACSQHC-ARCR-502

Prioritised clinical domain
Nil
Abbreviation
NTD
Registry contact

Tina van Tonder, Transfusion Research Unit, Monash University, sphpm.ntd@monash.edu

Year established
2021
Description

The National Transfusion Dataset (NTD) will form the first integrated national database of blood usage in Australia. The NTD aims to collect information about where, when, and how blood products are used across all clinical settings. This will address Australia’s absence of an integrated national database to record blood usage with the ability to link with clinical outcomes. The dataset is an invaluable resource towards a comprehensive understanding of how and why blood products are used, numbers and characteristics of patients transfused in health services, the clinical outcomes after transfusion; and provides support to policy development and research.               

The NTD was formed through the incorporation of the established Australian and New Zealand Massive Transfusion Registry (ANZ-MTR) and a pilot Transfusion Database (TD) project. The ANZ-MTR has a unique focus on massive transfusion (MT) and contains over 10,000 cases from 41 hospitals across Australia and New Zealand spanning 2011-2018. The TD was a trial extension of the registry that collated data on ALL (not just massive) transfusions on >8000 patients from pilot hospitals. The NTD integrates and expands these databases to provide new data on transfusion practice, using novel approaches to collect data on clinical outcomes. The NTD will link datasets of blood utilisation including prehospital, clinical and registry, with the aim of closing the vital haemovigilance loop. The population captured include all patients (≥18 years old) transfused any type of blood product, and all blood donors (≥18 years old), at participating health services or organisations, from 2017 onward.

Reporting process
  • Feedback and benchmarking reports to contributing organisations
  • Collaboration with researchers, clinicians and organisations/institutions by data access request
  • Reported to Commonwealth and State/Territory health departments
  • Reported in Annual Reports
  • Reported in other public reports
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

South Australia

  • Flinders Medical Centre

Victoria

  • Alfred Health

Other contributing organisations and registries

  • Ambulance Victoria
  • South Australian Ambulance Service 
  • Lifeblood 
  • Myeloma and Related Diseases Registry (MRDR)
  • Aplastic Anaemia Registry (AAR)
  • Lymphoma and Related Diseases Registry (LaRDR)
  • Australian and New Zealand Intensive Care Society (ANZICS)-Adult Patient Database (APD)
  • EXCEL Registry                            
Condition
Transfusion Medicine
Name
National Transfusion Dataset
Lead organisation
Monash University
Ethics approval reference
Alfred Hospital HREC reference: HREC/18/Alfred/85 National Transfusion Dataset (NTD)
Preferred published date
Immediately
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