ACSQHC-ARCR-696

The Australasian Interstitial Lung Disease Registry (AILDR) recruits patients with all ILD subtypes, reflecting real world practice at clinics across Australia and New Zealand with dual objectives:

• To provide a valuable resource for high quality ILD research
• To improve care for ILD patients across Australia and New Zealand.

The AILDR was established in response to growing calls for a national clinical registry to better understand Interstitial Lung Disease patterns, standardise care and provide relevant longitudinal data. Commencing with four pilot sites in 2016, there are now 23 sites participating across Australia and New Zealand with more than 3000 participants recruited and followed-up regularly every 6 months.

Inclusion criteria for participants includes age 18 years of age, ability to provide written informed consent, and diagnosis of ILD according to American Thoracic Society/European Respiratory Society (ATS/ERS) criteria. The core data recorded on the registry includes: - Basic demographic data - Clinical data - Medications - Oxygen use - Pulmonary function tests - Other Investigations.