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ACSQHC-ARCR-818

Prioritised clinical domain
Nil
Abbreviation
ACGR
Registry contact

Emeritus Professor Keryn Williams, keryn.williams@flinders.edu.au, College of Medicine and Public Health, Flinders University

Year established
1985
Description

The ACGR is a clinical registry that follows the outcomes of the surgical procedures of corneal transplantation. A national registry established in May 1985, it currently holds records of over 47,000 surgeries submitted on a voluntary basis by over 1000 ophthalmic surgeons working in both public and private practices. New records accrue at a rate of approximately 2000 per year. Follow-up is requested every 12-18 months until graft failure, loss-to-follow-up or recipient death. Information is collected on the recipient, the corneal donor, practices in the Eye Banks, and details of the surgical procedure. The major outcome measures are graft survival and visual outcomes. Amalgamated, de-identified analyses are provided every two years.

Reporting process
  • Feedback to contributing clinicians
  • Shared with other clinicians
  • Shared with consumers
  • Shared with medical colleges
  • Reported in Annual Report
  • Reported in other public reports
  • Other: A presentation is given each year at the Annual Cornea and Eye Bank meeting and posted on the ACGR website. De-identified, amalgamated reports are posted freely online. Manuscripts are published in the international literature. Individualised reports are provided to individual ophthalmic surgeons annually.
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

A list of contributing surgeons can be found in the freely available major reports, the most recent of which is at: https://doi.org/10.25957/9vyp-0j93 Further information is available from the SAHMRI Registry Centre https://sahmri.org.au/research/programs/registry-centre

Condition
Corneal Transplantation
Name
The Australian Corneal Graft Registry
Lead organisation
Flinders University
Ethics approval reference
Southern Adelaide Clinical Human Research Ethics Committee; HREC Reference: 2021/HRE00176
Preferred published date
Immediately
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