Prioritised clinical domain
Cancer
Abbreviation
PLANET Registry
Registry contact
Meredith Cummins, NeuroEndocrine Cancer Australia, meredith@neuroendocrine.org.au
Year established
2018
Description
The PLANET registry is a data repository for clinical information for patients with neuroendocrine tumours (NET). It is a system designed to facilitate the exchange of information about NET patients between clinical professionals, and provides mechanisms to collect valuable information for research, and further studies.
NeuroEndocrine Cancer Australia, in collaboration with the eResearch department at Melbourne University, have developed this world class NET registry and mobile app designed to securely house NET data in one location.
Reporting process
- Feedback to contributing clinicians
- Shared with consumers
- Shared with medical colleges
- Shared with other clinicians
Patient Reported Outcome Measures (PROMs)
- Eastern Cooperative Oncology Group (ECOG) 30
- European Organisation for Research and Treatment of Cancer (EORTC) Gastrointestinal Neuroendocrine (GINET) 21
- Bristol Stool Scale and frequency
- ECOG performance status
- Monthly patient vitals (height, weight and BMI)
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
New South Wales
- GenesisCare Frenchs Forest
- GenesisCare North Shore
- Royal North Shore Hospital
Queensland
- Royal Brisbane & Womens Hospital
South Australia
- The Queen Elizabeth Hospital
Victoria
- Peter MacCallum Cancer Centre
Western Australia
- Fiona Stanley Hospital
Condition
Neuroendocrine Cancer
Name
Planning of treatment and research for Neuroendocrine tumours (NETS) in Australia
Lead organisation
Neuroendocrine Cancer Australia
Ethics approval reference
HREC/18/PMCC/142; Peter MacCallum HREC
Program area