The objective of the TAVI Registry (TAVI-R) is to define, improve and maintain the safety and quality of care for patients undergoing TAVI procedures. The TAVI-R aims to:

• Collect procedure, adverse event and outcome data from the entire TAVI population in Australia • Generate risk adjusted reports which identify areas of excellence and opportunities for improvements in the quality of TAVI care
• Provide an accurate and transparent assessment of the safety of the TAVI procedure and devices.

PRoKPath is the clinical quality registry (self-reported) for privately consulting knee surgeon, Mr Tim Lording. This registry currently collects clinical history, treatment characteristics, and functional and patient-reported outcomes from patients undergoing treatment for knee conditions including osteoarthritis, rupture of the anterior cruciate ligaments, and conditions involving other structures of the knee joint. As the participants progress through the treatment pathway, their outcomes are assessed against pre-determined ‘failure to cure’ criteria, consisting of a combination of validated outcome measures and clinically relevant improvement thresholds (eg. minimum clinically important differences). The overall aim of the registry is to evaluate the current standard of care, and to inform evidence-based changes in clinical practice.

The PLANET registry is a data repository for clinical information for patients with neuroendocrine tumours (NET). It is a system designed to facilitate the exchange of information about NET patients between clinical professionals, and provides mechanisms to collect valuable information for research, and further studies.

NeuroEndocrine Cancer Australia, in collaboration with the eResearch department at Melbourne University, have developed this world class NET registry and mobile app designed to securely house NET data in one location.

The Arthroplasty Outcomes in Regional Australia (AORA) registry is a clinical quality registry (self-reported) run on behalf of select orthopaedic surgeons in private practice in Grafton, NSW. This registry currently collects clinical history, treatment characteristics, and functional and patient-reported outcomes from patients undergoing treatment for knee or hip osteoarthritis. As the participants progress through the treatment pathway, their outcomes are assessed against pre-determined ‘failure to cure’ criteria, consisting of a combination of validated outcome measures and clinically relevant improvement thresholds (eg. minimum clinically important differences). The overall aim of the registry is to evaluate the current standard of care, and to inform evidence-based changes in clinical practice.

The SOFARI registry is the clinical registry for a collaborative group of foot and ankle surgeons in private practice. For this registry, clinical data is compiled alongside Patient Reported Outcome Measures (PROMs) for patients diagnosed with conditions of the foot and ankle. Clinical history, treatment characteristics, functional and patient-reported outcomes are assessed against pre-determined ‘failure to cure’ criteria, consisting of a combination of validated outcome measures and clinically relevant improvement thresholds (eg. minimum clinically important differences).

The NECST Registry is a national resource of standardised patient data that will facilitate high quality research aiming to understand the causes of endometriosis, improve diagnosis and treatment outcomes, and reduce the burden of disease for patients living with endometriosis, endometriosis-related symptoms, or endometriosis-related conditions (like adenomyosis).

Population: Women and those assigned female at birth aged 18+, have had surgery which has confirmed that you have endometriosis or adenomyosis or have any of the following symptoms - persistent pelvic pains, problems with falling pregnant, excessive menstrual bleeding or bleeding between periods, heavy periods, pain when urinating, pain with bowel motions/passing stools and pain with sex.

Data collection and outcomes: Health and clinical data are collected across eight modules 1. Consent and participant demographics 2. Clinical presentation and medical history 3. Patient reported outcome measures (PROMs; EQ-5D and EHP-30) 4. Environmental and lifestyle risk factors 5. Imaging tests 6. Medical management 7. Surgical management 8. Histopathology

The PRULO registry is the clinical registry for a collaborative group of upper limb orthopaedic surgeons consulting privately out of Geelong Orthopaedics, Victoria. This registry currently collects clinical history, treatment characteristics, and functional and patient-reported outcomes from patients undergoing treatment for upper limb conditions including osteoarthritis of the shoulder, and rotator cuff tear. As the participants progress through the treatment pathway, their outcomes are assessed against pre-determined ‘failure to cure’ criteria, consisting of a combination of validated outcome measures and clinically relevant improvement thresholds (eg. minimum clinically important differences). The overall aim of the registry is to evaluate the current standard of care, and to inform evidence-based changes in clinical practice.

The Queen Elizabeth II Jubilee Hospital’s Shoulder, Hip Arthroplasty and Knee Surgery (SHArKS) registry began in 2017 as a single-surgeon database, and has evolved to include patients presenting to one of several participating surgeons in the department of orthopaedics. The aim of the SHArKS registry is to facilitate the collection of patient-reported outcomes and compilation of data from across the entire department, to evaluate the current standard of care and inform evidence-based changes in clinical practice.