The Commission is now operating in accordance with the Caretaker Conventions pending the outcome of the 2025 federal election.

Prioritised clinical domain
Nil
Abbreviation
ABenRA
Registry contact

Peter Gibson, Hunter Medical Research Institute, peter.gibson@newcastle.edu.au,asar@thoracic.org.au

Year established
2019
Description

The Australian Benralizumab Registry (the ABenRA) collects and reports on data from people with severe refractory eosinophilic asthma who receive benralizumab: 

  • As part of the PBS subsidised benralizumab treatment cycle, and the Pharmaceutical Benefits Scheme (PBS) Section 100 Special Authority Program, or
  • For severe refractory eosinophilic asthma outside of the PBS restrictions.

The ABenRA provides a mechanism for sharing information which will help researchers and clinicians to better understand the use, efficacy, and safety associated with the treatment of severe asthma with benralizumab.

The aim of the registry is to assess the change in patient reported asthma related symptoms after enrolment in the benralizumab registry following initiation of benralizumab in a real-world setting in the full study population and pre-specified subgroups.

Reporting process
  • Reported in Annual Report
  • Reported in other public reports
  • Shared with clinicians
  • Shared with medical colleges 
Patient Reported Outcome Measures (PROMs)
  • Asthma Control Questionnaire (ACQ)
  • Asthma Quality of Life Questionnaire (AQLQ)
Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://www.thoracic.org.au/researchawards/asar-sites

New South Wales

  • Concord Repatriation General Hospital
  • John Hunter Hospital
  • St George Specialist Centre
  • St Vincent’s Clinic
  • Westmead Hospital
  • Woolcock Institute of Medical Research

Western Australia

  • Fiona Stanley Hospital

Victoria

  • Frankston Hospital

Queensland

  • Princess Alexandra Hospital

South Australia

  • Royal Adelaide Hospital
Condition
Severe Asthma
Name
Australian Benralizumab Registry
Weblink

https://www.thoracic.org.au/researchawards/australasian-severe-asthma-registry-asar

Lead organisation
The Thoracic Society of Australia and New Zealand (TSANZ)
Ethics approval reference
Ethics approval received from Hunter New England HREC:2019/ETH08669
Program area
Indicators and measurement
Prioritised clinical domain
Nil
Abbreviation
ASCS
Registry contact

Maryam Tabesh, St Vincent’s Hospital Melbourne, maryam.tabesh@svha.org.au

Year established
2007
Description

Scleroderma is a multisystem disease of unknown aetiology which has the highest disease-related morbidity and mortality of the autoimmune rheumatic diseases. The Australian Scleroderma Interest Group (ASIG) is a national collaboration of rheumatologists, with a special interest in improving the outcomes of patients with scleroderma.

ASIG established the ASCS, a longitudinal observational cohort that provides a framework for clinical and laboratory research enabling collaborations with other Australian researchers and internationally.

The primary objective of the ASCS is to enhance clinical care by increasing the rate of screening for scleroderma-related cardiopulmonary complications to allow earlier identification of patients at high risk, and institution of timely treatment. Other objectives include:

  • Contribution to research into predisposing factors for serious complications
  • National data linkage to quantify burden of disease and disease outcomes
  • Contribution to an understanding of the most effective treatments
  • Foster research in systemic sclerosis among early career rheumatologists and advanced trainee
Reporting process
  • Reported in other public reports
  • Shared with clinicians
  • Shared with consumers
Patient Reported Outcome Measures (PROMs)
  • Scleroderma Health Assessment Questionnaire (sHAQ)
  • General Health Assessment Questionnaire (HAQ)
  • Short Form 36 (SF-36)
  • PROMIS-29 Profile 2.0
  • UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract (UCLA SCTC GIT 2.0)
  • Instrument
  • Functional Assessment of Chronic Illness Therapy (FACIT)
Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Australian Capital Territory 

  • Canberra Hospital

New South Wales

  • John Hunter Hospital
  • Royal Prince Alfred Hospital

South Australia

  • Royal Adelaide Hospital

Victoria

  • Monash Medical Centre
  • St. Vincent’s Hospital Melbourne

Western Australia

  • Fiona Stanley Hospital
  • Royal Perth Hospital

Tasmania

  • Hobart Private Hospital
Condition
Systemic Sclerosis (Scleroderma) and variants
Name
Australian Scleroderma Cohort Study
Weblink

Under development

Lead organisation
Australian Rheumatology Association
Ethics approval reference
St Vincent's Hospital Melbourne HREC: Protocol No. HREC-A 020/07
Program area
Indicators and measurement
Prioritised clinical domain
Nil
Abbreviation
ACFDR
Registry contact

Professor Susannah Ahern, Academic Lead, Monash University,susannah.ahern@monash.edu

Phoebe Kent, Registry Coordinator, Monash University, Med-acfdregistry@monash.edu

Year established
1996
Description

The ACFDR is a population-level clinical registry that aims to accurately characterise the demographics, changing patterns of disease and treatments, morbidity and mortality of the population of patients with cystic fibrosis (CF) over time. The registry captures all people diagnosed with CF who attend participating specialist CF treatment centres in Australia (including outreach services), which is estimated to cover over 90% of patients diagnosed with CF nationally. The ACFDR uses either opt-in consent (mainly for paediatric patients) or opt-out consent (for some adult patients) to collect baseline and longitudinal information. Information is collected annually and per hospital or clinic encounter for each patient.

The ACFDR has contributed significantly to our understanding of CF in Australia through monitoring trends in measures such as age at diagnosis, method of diagnosis, lung function and weight over time, CF-related complications and treatments, transplantation, mortality and expected age of survival.

The registry aims to improve quality of care by monitoring and benchmarking patient outcomes in individual CF centres compared to each other, and compared to their own site over time. The ACFDR is increasingly being used to monitor the impact of new therapies, and to support clinical trials. The ACFDR collaborates with international CF registries via an International CF Registries Harmonisation Committee and with the John Hopkins-led CFTR2 genetic mutation database.

Reporting process

The ACFDR produces:

  • A public Annual Report
  • Site-specific annual centre trend and Centre Comparison (benchmarked) reports to participating clinicians and CF teams
  • Jurisdictional reports
  • Annual patient-facing Infographic
Patient Reported Outcome Measures (PROMs)

A project is underway that is exploring suitable PROMs for inclusion in the registry.

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Queensland

  • Gold Coast University Hospital
  • Queensland Children Hospital
  • The Prince Charles Hospital

New South Wales

  • Gosford Hospital
  • John Hunter Children's Hospital
  • John Hunter Hospital – Adults
  • Mater Hospital – Adults
  • Royal Prince Alfred Hospital
  • Sydney Children's Hospital
  • The Children's Hospital at Westmead
  • Westmead Hospital

Tasmania

  • Launceston General Hospital
  • North West Regional Hospital Burnie
  • Royal Hobart Children Hospital
  • Tasmanian Adult CF Service 

Victoria 

  • Monash Medical Centre
  • Royal Children's Hospital
  • The Alfred Hospital

Western Australia 

  • Perth Children's Hospital
  • Sir Charles Gairdner Hospital

South Australia

  • Royal Adelaide Hospital
  • Women's and Children's Hospital 

Australian Capital Territory 

  • The Canberra Hospital – Adults
  • The Centenary Hospital for Women and  Children
Condition
Cystic Fibrosis
Name
The Australian Cystic Fibrosis Data Registry
Weblink

https://www.cysticfibrosis.org.au/dataregistry

Lead organisation
Cystic Fibrosis Australia
Ethics approval reference
Ethics approval received
The Alfred HREC Protocol Number: HREC/16/Alfred/187
Program area
Indicators and measurement
Prioritised clinical domain
Trauma
Abbreviation
ATR
Registry contact

Ancelin McKimmie, Monash University, ancelin.mckimmie@monash.edu

Year established
2011
Description

The Australia New Zealand Trauma Registry (ATR) collects 90 data-points in accordance with the Bi-national Trauma Minimum Dataset for Australia and New Zealand, for severely injured patients (ISS>12) or death after injury, from 28 Australian and seven New Zealand major trauma centres. The ATR provides risk adjusted outcomes to trauma centres and continues to increase its capture of major trauma through rigorous recruitment. The ATR focuses on monitoring trauma care, from time of incident to discharge from definitive care, in order to reflect and act upon emerging trends and demands on the trauma system across Australia and New Zealand.

Collecting and analysing information about trauma patients, their management and their injury outcomes informs future improvements to health service provision and development, with the long term societal aim of reducing preventable deaths and permanent disability as a result of injuries.

Reporting process
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with hospital executive
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://atr.org.au/partners

Australian Capital Territory

  • Canberra Hospital 

New South Wales

  • John Hunter Children’s Hospital
  • John Hunter Hospital
  • Liverpool Hospital
  • Royal North Shore Hospital
  • Royal Prince Alfred Hospital
  • St George Hospital
  • St Vincent’s Hospital
  • Sydney Children’s Hospital
  • The Children’s Hospital at Westmead
  • Westmead Hospital

Northern Territory

  • Royal Darwin Hospital

Queensland

  • Gold Coast University Hospital
  • Princess Alexandra Hospital
  • Queensland Children’s Hospital
  • Royal Brisbane and Women’s Hospital
  • Sunshine Coast University Hospital
  • Townsville Hospital

South Australia

  • Flinders’ Medical Centre
  • Royal Adelaide Hospital
  • Women’s and Children’s Hospital
  • Lyell McEwin Hospital 

Tasmania

  • Royal Hobart Hospital 

Victoria

  • Alfred Hospital
  • Royal Children’s Hospital
  • Royal Melbourne Hospital

Western Australia

  • Perth Children’s Hospital
  • Royal Perth Hospital

New Zealand

  • Auckland City Hospital
  • Christchurch Hospital
  • Dunedin Hospital
  • Middlemore Hospital
  • Starship Hospital
  • Waikato Hospital
  • Wellington Regional Hospital
Condition
Trauma
Name
Australia New Zealand Trauma Registry
Weblink

www.atr.org.au

Lead organisation
Alfred Health through the National Trauma Research Institute.
Monash University is contracted to manage the ATR database, including data storage, safety, security, and the provision of analytical support services.
Ethics approval reference
Alfred Health HREC: Project 241/12
Program area
Indicators and measurement
Preferred published date
Immediately
Prioritised clinical domain
Adult critical care
Abbreviation
ANZICS CORE Registries
Registry contact

Sue Huckson, Australian and New Zealand Intensive Care Society,sue.huckson@anzics.com.au

Year established
1992
Description

The Australian and New Zealand Intensive Care Society (ANZICS) Centre for Outcome and Resource Evaluation (CORE) is a bi-national peer review and quality assurance program which has provided audit and analysis of the performance of Australian and New Zealand intensive care since 1992. This capability is uniquely provided by ANZICS, which offers an overview across regional, state, federal and international jurisdictions.

ANZICS CORE is made up of 5 data sets:

  • The Adult Patient Database (APD)
  • The Australian and New Zealand Paediatric Intensive Care (ANZPIC) dataset
  • The Critical Care Resources (CCR) dataset 
  • Extra Corporeal Membrane Oxygenation (ECMO) dataset
  • The Central line associated bloodstream Infections (CLABSI) Registry.

Over 180 sites across Australia and New Zealand submit data regularly to the registries contributing approximately 200,000 individual patient records every year. There are over 2.5 million individual de-identified ICU patient episodes stored in the registry warehouse since 1992.

The primary outcome reported by the ANZICS registries to contributing sites is in-hospital mortality. However, the overall long-term survival outcomes of patients who leave ICU alive are unknown.

The aims of the ANZICS CORE Registry Program are:

  • Provision of comparative benchmarking reports to submitting ICUs and health departments detailing variation in process measures, quality of care indicators and risk-adjusted clinical outcomes
  • Identification and analysis of outlier ICUs
  • Provision of Data Quality training workshops to support submission of high quality data
  • Assist researchers to identify potential areas for improvement of Intensive Care practices and patient outcomes.
Reporting process
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with consumers
  • Shared with hospital executive
  • Online clinical reports available to all submitting units
  • Formalised quarterly reports to all jurisdictional funders, with access to online data and reports
  • Results of annual survey of Critical Care Resources results provided to submitting units and jurisdictions
  • Activity reports detailing adult and paediatric Intensive Care practices, resources and outcomes produced annually
  • 15-20 publications in peer-reviewed journals per year
Patient Reported Outcome Measures (PROMs)

In development

Patient Reported Experience Measures (PREMs)

In development

Participating sites

https://www.anzics.com.au/annual-reports/

Australian Capital Territory

  • Calvary Hospital (Canberra) ICU
  • Calvary John James Hospital ICU 
  • Canberra Hospital ICU
  • National Capital Private Hospital ICU

New South Wales 

  • Armidale Rural Referral Hospital ICU
  • Bankstown-Lidcombe Hospital ICU 
  • Bathurst Base Hospital ICU
  • Blacktown Hospital ICU 
  • Bowral Hospital HDU
  • Broken Hill Base Hospital & Health Services ICU 
  • Calvary Health Care Riverina ICU 
  • Calvary Mater Newcastle ICU 
  • Campbelltown Hospital ICU
  • Canterbury Hospital ICU 
  • Coffs Harbour Health Campus ICU
  • Concord Hospital ICU
  • Dubbo Base Hospital ICU 
  • Fairfield Hospital ICU 
  • Gosford Hospital ICU
  • Gosford Private Hospital ICU
  • Goulburn Base Hospital ICU
  • Grafton Base Hospital ICU
  • Griffith Base Hospital ICU
  • Hornsby Ku-ring-gai Hospital ICU
  • Hurstville Private Hospital ICU
  • John Hunter Children’s Hospital PICU
  • John Hunter Hospital ICU
  • Kareena Private Hospital ICU
  • Kempsey District Hospital HDU
  • Lake Macquarie Private Hospital ICU
  • Lismore Base Hospital ICU
  • Liverpool Hospital ICU
  • Macquarie University Private Hospital ICU
  • Manly Hospital & Community Health ICU
  • Manning Rural Referral Hospital ICU
  • Mater Private Hospital (Sydney) ICU
  • Mona Vale Hospital ICU
  • Nepean Hospital ICU
  • Newcastle Private Hospital ICU
  • North Shore Private Hospital ICU
  • Norwest Private Hospital ICU
  • Orange Base Hospital ICU
  • Port Macquarie Base Hospital ICU
  • Prince of Wales Hospital ICU
  • Prince of Wales Private Hospital ICU
  • Royal North Shore Hospital ICU
  • Royal Prince Alfred Hospital ICU
  • Shoalhaven Hospital ICU
  • South East Regional Hospital ICU
  • St George Hospital CICU
  • St George Hospital ICU
  • St George Hospital ICU2
  • St George Private Hospital ICU
  • St Vincent's Hospital ICU
  • St Vincent's Private Hospital ICU
  • Strathfield Private Hospital ICU
  • Sutherland Hospital & Community Health Services ICU
  • Sydney Adventist Hospital ICU
  • Sydney Children's Hospital PICU
  • Sydney Southwest Private Hospital ICU
  • Tamworth Base Hospital ICU
  • The Children's Hospital at Westmead PICU
  • The Chris O’Brien Lifehouse ICU
  • Tweed Heads District Hospital ICU
  • Wagga Wagga Base Hospital & District Health ICU
  • Westmead Hospital ICU
  • Westmead Private Hospital ICU
  • Wollongong Hospital ICU
  • Wollongong Private Hospital ICU
  • Wyong Hospital ICU

Northern Territory

  • Alice Springs Hospital ICU
  • Royal Darwin Hospital ICU

Queensland

  • Brisbane Private Hospital ICU
  • Buderim Private Hospital ICU
  • Bundaberg Base Hospital ICU
  • Caboolture Hospital HDU
  • Cairns Hospital ICU
  • Gold Coast Private Hospital ICU
  • Gold Coast University Hospital ICU
  • Gold Coast University Hospital ICU - Paeds
  • Greenslopes Private Hospital ICU
  • Hervey Bay Hospital ICU
  • Holy Spirit Northside Hospital ICU
  • Ipswich Hospital ICU
  • John Flynn Private Hospital ICU
  • Logan Hospital ICU
  • Mackay Base Hospital ICU
  • Mater Adults Hospital ICU
  • Mater Health Services North Queensland ICU
  • Mater Private Hospital ICU
  • Mount Isa Hospital ICU
  • Noosa Hospital ICU
  • Pindara Private Hospital ICU
  • Princess Alexandra Hospital ICU
  • Queen Elizabeth II Jubilee Hospital ICU
  • Queensland Children's Hospital PICU
  • Redcliffe Hospital ICU
  • Robina Hospital ICU
  • Rockhampton Hospital ICU
  • Royal Brisbane and Women's Hospital ICU
  • St Andrew's Hospital Toowoomba ICU
  • St Andrew's War Memorial Hospital ICU
  • St Vincent's Hospital ICU
  • Sunnybank Hospital ICU
  • The Prince Charles Hospital ICU
  • Sunshine Coast University Hospital ICU
  • Sunshine Coast University Hospital ICU - Paeds
  • The Sunshine Coast Private Hospital ICU
  • The Townsville Hospital ICU
  • The Townsville Hospital ICU - Paeds
  • The Wesley Hospital ICU
  • Toowoomba Hospital ICU

South Australia

  • Ashford Community Hospital ICU
  • Calvary North Adelaide Hospital ICU
  • Calvary Wakefield Hospital ICU
  • Flinders Medical Centre ICU
  • Flinders Private Hospital ICU
  • Lyell McEwin Hospital ICU
  • Royal Adelaide Hospital ICU
  • St Andrew's Hospital ICU
  • The Memorial Hospital ICU
  • The Queen Elizabeth ICU
  • Western Hospital 
  • Women's and Children's Hospital PICU

Tasmania

  • Launceston General Hospital ICU
  • North West Regional Hospital ICU
  • Royal Hobart Hospital ICU
  • Royal Hobart Hospital NICU/PICU

Victoria

  • Albury Wodonga Health ICU
  • Alfred Hospital ICU
  • Austin Hospital ICU
  • Ballarat Health Services ICU
  • Bendigo Health Care Group ICU
  • Box Hill Hospital ICU
  • Cabrini Hospital ICU
  • Central Gippsland Health Service ICU
  • Dandenong Hospital ICU
  • Epworth Eastern Private Hospital ICU
  • Epworth Freemasons Hospital ICU
  • Epworth Geelong ICU
  • Epworth Hospital  ICU
  • Footscray Hospital ICU
  • Frankston Hospital ICU
  • Goulburn Valley Health ICU
  • Holmesglen Private Hospital ICU
  • John Fawkner Hospital ICU
  • Knox Private Hospital ICU
  • Latrobe Regional Hospital ICU
  • Maroondah Hospital ICU
  • Melbourne Private Hospital ICU
  • Mildura Base Hospital ICU
  • Monash Children's Hospital PICU
  • Monash Medical Centre-Clayton Campus ICU
  • Northeast Health Wangaratta ICU
  • Peninsula Private Hospital ICU
  • Royal Children's Hospital PICU
  • Royal Melbourne Hospital ICU
  • South West Healthcare ICU
  • St John Of God Hospital (Berwick) ICU
  • St John Of God Hospital (Ballarat) ICU
  • St John of God Hospital (Bendigo) ICU
  • St John Of God Hospital (Geelong) ICU
  • St Vincent's Hospital ICU
  • St Vincent's Private Hospital Fitzroy ICU
  • Sunshine Hospital ICU
  • The Bays Hospital ICU
  • The Northern Hospital ICU
  • The Valley Private Hospital ICU
  • University Hospital Geelong ICU
  • Warringal Private Hospital ICU
  • Western District Health Service ICU
  • Western Private Hospital ICU
  • Wimmera Health Care Group ICU

Western Australia

  • Armadale Health Service ICU
  • Bunbury Regional Hospital ICU
  • Fiona Stanley Hospital ICU
  • Joondalup Health Campus ICU
  • Mount Hospital ICU
  • Perth Children's Hospital PICU
  • Rockingham General Hospital ICU
  • Royal Perth Hospital ICU
  • Sir Charles Gairdner Hospital ICU
  • St John Of God Health Care (Subiaco) ICU
  • St John Of God Hospital (Murdoch) ICU
  • St John of God Midland Public & Private ICU

New Zealand

  • Auckland City Hospital CV ICU
  • Auckland City Hospital DCCM
  • Christchurch Hospital ICU
  • Dunedin Hospital ICU
  • Greymouth Hospital ICU
  • Hawkes Bay Hospital ICU
  • Hutt Hospital ICU
  • Middlemore Hospital ICU
  • Nelson Hospital ICU
  • North Shore Hospital ICU
  • Palmerston North Hospital ICU
  • Rotorua Hospital ICU
  • Southern Cross Hospital ICU
  • Southland Hospital ICU
  • Starship Children's Hospital PICU
  • Taranaki Health ICU
  • Tauranga Hospital ICU
  • Timaru Hospital ICU
  • Waikato Hospital ICU
  • Wairau Hospital ICU
  • Wakefield Hospital ICU
  • Whanganui Hospital ICU
  • Wellington Hospital ICU
  • Whangarei Area Hospital, Northland Health Ltd ICU
Condition
Adult and Paediatric Critical Care
Name
ANZICS Intensive Care Clinical Registries (includes APD, ANZPIC, CCR, ECMO & CLABSI data sets)
Weblink

www.anzics.com.au

Lead organisation
Australian and New Zealand Intensive Care Society
Ethics approval reference
Quality improvement initiative
A Declared Quality Assurance Activity under the Commonwealth Health Insurance Act 1973
Program area
Indicators and measurement
Prioritised clinical domain
Stroke
Abbreviation
AuSCR
Registry contact

Dominique Cadilhac, The Florey Institute of Neuroscience and Mental Health,admin@auscr.com.au

Year established
2009
Description

The AuSCR provides a platform for participating hospitals to collect data on processes of care and outcomes for patients admitted with acute stroke or transient ischaemic attack (TIA).  Data are used to improve the quality of stroke care nationally.  The process of care variables collected align with the National Clinical Guidelines for Stroke Management.

The AuSCR Office centralises the collection of follow-up data on patient reported outcomes three to six months after admission. Outcomes collected include stroke recurrence, hospital readmission, health status, disability (as measured with the modified Rankin Scale), and quality of life measures (using the EuroQol EQ-5D-3L and Visual Analogue Scale).

Reporting process
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with consumers
  • Shared with government funding bodies (in some states)
  • Feedback to contributing clinicians
  • Reported to State/Territory health departments
Patient Reported Outcome Measures (PROMs)
  • Survivor status
  • Place of residence
  • Living alone status
  • Subsequent stroke since discharge
  • Readmission to hospital
  • Quality of life indicators (EuroQOL EQ-5D-3L)
  • Modified Rankin Scale
  • Would like an information pack from the Stroke Foundation
Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://auscr.com.au/about/list-of-participating-hospitals/

Australian Capital Territory

  • Canberra Health Service
  • North Canberra Hospital

New South Wales 

  • John Hunter Children's Hospital 

Queensland

  • Bundaberg Hospital
  • Caboolture Hospital
  • Cairns Hospital
  • Gold Coast University Hospital
  • Hervey Bay Hospital
  • Ipswich Hospital
  • Logan Hospital
  • Mackay Base Hospital
  • Mater Hospital Brisbane
  • Prince Charles Hospital
  • Princess Alexandra Hospital
  • Queen Elizabeth II Jubilee Hospital
  • Queensland Children’s Hospital
  • Redcliffe Hospital
  • Redland Hospital
  • Rockhampton Hospital
  • Royal Brisbane and Women’s Hospital
  • Sunshine Coast University Hospital
  • Toowoomba Hospital
  • Townsville University Hospital

South Australia

  • Flinders Medical Centre
  • Lyell McEwin Hospital
  • Riverland Regional Health Service – Berri Campus
  • Royal Adelaide Hospital

Tasmania

  • Launceston General Hospital
  • North West Regional Hospital
  • Royal Hobart Hospital

Victoria

  • Albury Wodonga Health – Albury Campus
  • Albury Wodonga Health – Wodonga Campus
  • Alfred Hospital
  • Austin Hospital
  • Bairnsdale Regional Health Service
  • Bass Coast Health
  • Bendigo Health
  • Box Hill Hospital
  • Central Gippsland Health Service
  • Echuca Regional Health
  • Goulburn Valley Health
  • Grampians Health Ballarat
  • Grampians Health Horsham
  • Hamilton Base Hospital
  • Latrobe Regional Health
  • Mildura Base Public Hospital
  • Monash Children’s Hospital
  • Monash Medical Centre
  • Northern Hospital
  • Peninsula Health – Frankston Hospital
  • Royal Children’s Hospital
  • Royal Melbourne Hospital
  • St Vincent’s Hospital Victoria
  • Sunshine Hospital – Western Health
  • Swan Hill District Health
  • University Hospital Geelong
  • Warrnambool Base Hospital
  • Werribee Mercy Hospital
  • West Gippsland Hospital

Western Australia

  • Fiona Stanley Hospital
  • Joondalup Health Campus
  • Royal Perth Hospital
  • Sir Charles Gairdner Hospital
  • St John of God Midland Public Hospital
Condition
Stroke
Name
Australian Stroke Clinical Registry
Weblink

https://auscr.com.au/

Lead organisation
The AuSCR is led by a consortium comprised of the Florey Institute of Neuroscience and Mental Health (The Florey), the Australian and New Zealand Stroke Organisation (formerly Stroke Society of Australasia), Stroke Foundation and Monash University. The Florey Institute is the Data Custodian.
Ethics approval reference
In general each state has a lead HREC. Some states also have multiple HRECs as some hospitals do not accept the approval of other committees.
Program area
Indicators and measurement
Preferred published date
Immediately
Prioritised clinical domain
Musculoskeletal disorders
Abbreviation
BJR
Registry contact

Richard Page, St John of God Hospital Geelong, Australia, richard.page@deakin.edu.au

Year established
1988
Description

The aim of the Barwon Joint Registry is to provide a mechanism for quality assurance, quality improvement and research. 

The registry monitors all consenting patients undergoing joint replacement surgery at University Hospital Geelong and hip, knee and shoulder replacements at St John of God Hospital Geelong.

The registry is an opt-out, prospective database.

Outcomes include patient reported outcomes (pain, function, quality of life), complications, operative details including prosthesis type, patient details and co-morbidities.

Reporting process
  • Feedback to contributing clinicians
  • Shared with clinicians
  • Reported in Annual Report
  • Shared with consumers
  • Shared with hospital executive
  • Shared with medical colleges
Patient Reported Outcome Measures (PROMs)
  • Oxford Scores (hip, knee, shoulder)
  • EQ-5D-5L
  • Multi-attribute Predictor Tool (MAPT)
  • WOMAC
  • Constant Shoulder Score
  • Quick DASH
  • Patient Expectations
  • Patient Satisfaction
Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Victoria

  • University Hospital Geelong
  • St John of God Hospital Geelong
Condition
Joint replacement surgery
Name
Barwon Joint Registry
Weblink

http://bcore.deakin.edu.au/

Lead organisation
Barwon Health, Geelong, Australia. St John of God Hospital Geelong, Australia.
Ethics approval reference
12-95, Barwon Health and St John of God Healthcare
Program area
Indicators and measurement
Prioritised clinical domain
High burden cancers
Abbreviation
NGOR
Registry contact

Registry Manager, Monash University sharnel.perera@monash.edu

Year established
2017
Description

The National Gynae-Oncology Registry (NGOR) is a multi-modular clinical quality registry (self-reported) which aims to record diagnostic, treatment and outcome data of patients with newly diagnosed gynaecological cancers. This information is used to monitor and minimise variation in care, improve patient outcomes, and identify trends and potential gaps in service provision. The NGOR was developed by a group of likeminded clinicians in collaboration with the Cancer Research Program in Monash University’s School of Public Health and Preventive Medicine in 2017. The NGOR finalised a list of quality indicators for endometrial cancer module, which was piloted in Victoria and Tasmania. The registry is in the process of developing quality indicators for additional registry modules covering cancers of the endometrium, cervix, vulva and vagina.

The Ovarian Cancer Registry (OvCR), a sub-registry of the NGOR, has two active modules for ovarian, tubal and peritoneal cancer, and rare ovarian tumours. A Patient Reported Outcome Measures (PROMs) pilot began at the end of 2022, which aims to test the feasibility and acceptability of a bespoke patient reported outcome (PRO) and patient reported experience (PRE) tool developed through clinical and consumer consultation.

The NGOR is endorsed by the Australian Society of Gynaecologic Oncologists (ASGO), >40 gynaecologic oncologists and medical oncologists specialising in gynaecological cancers, and the patient advocacy group Ovarian Cancer Australia. Data are collected primarily from pre-existing clinical unit databases from major gynaecologic cancer treatment centres and private practices. There are a number of private and public health services participating across Victoria, New South Wales, South Australia, Tasmania, Western Australia, Queensland with sites to be added in the Australian Capital Territory in the short-term.

The NGOR operates under an opt-out model of recruitment and is governed by a committee of clinical experts, registry experts, a consumer representative, Ovarian Cancer Australia representatives and more.

Reporting process

Annual Reports

  • Feedback to contributing clinicians
  • Shared with hospitals principle investigator and data manager
  • Reported in Annual Report

OvCR Quarterly Visual Data Reports

Provide a visual summary of each health services data in the NGOR’s database

  • Site specific data extracted from the database
  • Send to hospital’s associated investigators and data managers
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Victoria

  • Cabrini Health
  • Epworth Healthcare
  • Frances Perry House 
  • Mercy Hospital for Women
  • Monash Health
  • Peter MacCallum Cancer Centre
  • Peninsula Health
  • Royal Women's Hospital
  • St Vincent's Hospital Melbourne
  • Warringal Private Hospital
  • Werribee Mercy Hospital
  • Western Health

New South Wales

  • Chris O'Brien Life House
  • John Hunter Hospital
  • Liverpool Hospital
  • Prince of Wales Private Hospital
  • Royal Hospital for Women
  • Royal North Shore Hospital
  • St George Hospital
  • St George Private Hospital
  • Westmead Hospital
  • Westmead Private Hospital

Western Australia  

  • Hollywood Private Hospital
  • King Edward Memorial Hospital 
  • St John of God Murdoch Hospital
  • St John of God Subiaco Hospital 

South Australia

  • Burnside Hospital
  • Flinders Private
  • Flinders Medical Centre
  • Royal Adelaide Hospital

Tasmania

  • Royal Hobart Hospital
  • Hobart Private Hospital

Queensland

  • Royal Brisbane Hospital 
Condition
Gynaecological Malignancies
Name
The National Gynae-Oncology Registry
Weblink

https://ngor.org.au/

Lead organisation
Monash University
Ethics approval reference
HREC-17-MonH-198
Program area
Indicators and measurement
Preferred published date
Immediately
Prioritised clinical domain
Nil
Abbreviation
ABR
Registry contact

A/Prof Lucy Morgan, Macquarie University, abr@lungfoundation.com.au

Year established
2015
Description

The Australian Bronchiectasis Registry (ABR) was established in 2015 by Lung Foundation Australia (LFA) and the Australasian Bronchiectasis Consortium (ABC), an independent steering committee composed of Australia’s and New Zealand’s leading respiratory physicians with experience, interest and skill in both clinical management and research.

The principal aim of the registry is to identify and collect longitudinal health information on patients with non-cystic fibrosis bronchiectasis in order to facilitate epidemiological research, improve clinical care and maximise opportunities for patients to participate in clinical trials. The registry has international collaborations with US, European and New Zealand researchers to build on the existing evidence base, leverage knowledge, expertise, protocols, and ideas in order to optimise research outcomes through international sharing of data.

Reporting process
  • Reported in public reports
  • Shared with clinicians
  • Shared with consumers
  • Feedback to contributing clinicians
  • Reported to State/Territory health departments on request
Patient Reported Outcome Measures (PROMs)

QoL-B, Bronchiectasis Health Questionnaire (BHQ) is pending inclusion in upcoming data dictionary update

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

New South Wales

  • Concord Repatriation General Hospital 
  • Wyong Hospital 
  • Westmead Hospital 
  • Royal Prince Alfred Hospital 
  • Sydney's Children's Hospital, Randwick 

Victoria

  • Monash Medical Centre 
  • Royal Melbourne Hospital V
  • Western Health Footscray Hospital 
  • The Royal Children's Hospital Melbourne 

Queensland

  • The Prince Charles Hospital 
  • Queensland Children's Hospital (formerly Lady Cilento Children's Hospital) 
  • Mater Misericordiae Ltd, South Brisbane 
  • Greenslopes Private Hospital 

South Australia

  • Royal Adelaide Hospital 

Western Australia

  • Royal Perth Hospital WA

Northern Territory 

  • Alice Springs Hospital 
  • Royal Darwin Hospital/Menzies School of Health Research
Condition
Bronchiectasis
Name
Australian Bronchiectasis Registry
Weblink

https://lungfoundation.com.au/research/our-research/bronchiectasis/

Lead organisation
Lung Foundation Australia
Ethics approval reference
HREC/15/CRGH/225,Sydney Local Health District Concord Repatriation General Hospital HREC
Program area
Indicators and measurement
Prioritised clinical domain
Musculoskeletal disorders
Abbreviation
ARAD
Registry contact

Ashley Fletcher, Project Manager, ashley.fletcher@monash.edu

Year established
2003
Description

The Australian Rheumatology Association Database (ARAD) was established as a national arthritis database to provide valid and reliable longitudinal clinical data of people with inflammatory arthritis in Australia, with the ultimate aim of providing better care and improving outcomes for patients. It became operational in August 2003.

The aims of ARAD are to establish a specific cohort of Australian patients with inflammatory arthritis receiving anti-tumour necrosis factor (TNF) and other biological disease modifying anti-rheumatic drug (bDMARD) therapies together with a group of patients not receiving bDMARDs to determine long-term safety and effectiveness of the biological therapies.

ARAD provides reports of patient outcomes to participating rheumatologists with a comparison of grouped de-identified data from other rheumatologists. ARAD also reports on treatment side effects and reasons for stopping or changing therapy.

Patient demographic and clinical measures including medication history, adverse events, medical illnesses, malignancy and infections, hospitalisation.

Reporting process
  • Feedback to contributing clinicians
  • Shared with consumers
  • Reported in Annual Report
  • Annual report to Australian Rheumatology Association Board
Patient Reported Outcome Measures (PROMs)

Disease status, quality of life and physical function (Health Assessment Questionnaire (HAQ) (specific for each disease group), Assessment of Quality of Life Questionnaire (AQoL), SF-36, European Quality of Life and the Paediatric Quality of Life Inventory (for JIA), the Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) (for AS)).

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

ARAD is based at Monash University and Cabrini Health but collects nationally. Contact ARAD for individual public and private clinicians and hospitals.

Condition
Inflammatory arthritis: (rheumatoid arthritis (RA), ankylosing spondylitis (AS), psoriatic arthritis (PsA) and juvenile idiopathic arthritis (JIA)
Name
Australian Rheumatology Association Database
Weblink

https://aradwebsite.wixsite.com/arad

Lead organisation
Australian Rheumatology Association
Ethics approval reference
Cabrini Human Research Ethics Committee: 12-23-04-01
Program area
Indicators and measurement
Prioritised clinical domain
Adult critical care
Abbreviation
EXCEL
Registry contact

Carol Hodgson, Monash University, carol.hodgson@monash.edu

Year established
2019
Description

The use of ECMO is associated with significant costs and risks, and it requires specialist training and expertise. In order to better prepare for the organisation of these complex interventions in the ICU across regions, we need to have accurate data on patients undergoing ECMO. 

The EXCEL registry represents a novel, coordinated effort to create a high-quality, detailed, prospective registry of patients requiring ECMO at Australian ECMO centres. EXCEL includes data on ECMO retrieval, imitation, patient selection, device, cannula and person cannulating, daily data for 7 days, complications, costs and PROMs (HRQoL, disability, return to work, cognitive function) at 6 and 12 months. Additionally we have 4 embedded clinical trials. 

EXCEL can be used to address specific safety concerns, clinical questions and process of care issues. As a result, EXCEL can be designed and implemented to answer new investigator-initiated, hypothesis-driven clinical questions. We currently have 4 embedded clinical trials.

Reporting process
  • Feedback to contributing clinicians - Quarterly reports provided to each participating hospital.
  • Shared with clinicians
  • Reported in Annual Report
  • Shared with consumers
  • Shared with hospital executive
  • Shared with medical colleges
  • Heart Foundation Website
  • Reported to State/Territory health departments - To commence in June 2020
Patient Reported Outcome Measures (PROMs)

EQ5D-5L, WHODAS 2.0, ADL, IADL, Modified Rankin Scale and MoCA Blind

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Australian Capital Territory

  • Canberra Hospital

New South Wales

  • John Hunter Hospital
  • Liverpool Hospital
  • Prince of Wales Hospital
  • Royal North Shore Hospital
  • Royal Prince Alfred Hospital
  • St George Hospital
  • St Vincent’s Hospital Sydney
  • Westmead Hospital

Queensland

  • Gold Coast University Hospital
  • Prince Charles Hospital
  • Princess Alexandra Hospital
  • Royal Brisbane and Women’s Hospital
  • Townsville Hospital

South Australia

  • Flinders Medical Centre
  • Royal Adelaide Hospital

Tasmania

  • Launceston Hospital
  • Royal Hobart Hospital

Victoria

  • Alfred Hospital
  • Austin Hospital
  • Box Hill Hospital
  • Epworth Hospital
  • Frankston Hospital
  • Monash Medical Centre
  • Royal Melbourne Hospital
  • St Vincent’s Melbourne
  • University Hospital Geelong

Western Australia

  • Fiona Stanley Hospital
  • Sir Charles Gairdner Hospital

New Zealand

  • Auckland Hospital
Condition
Patients with cardiac arrest, acute cardiac failure or acute respiratory failure requiring extracorporeal membrane oxygenation
Name
Australian and New Zealand extracorporeal membrane oxygenation (ECMO) registry
Weblink

https://www.monash.edu/medicine/sphpm/anzicrc/research/excel

Lead organisation
Monash University
Ethics approval reference
43134/Alfred Health HREC
Program area
Indicators and measurement
Prioritised clinical domain
High burden cancers
Abbreviation
ACCORD Head and Neck Tumour
Registry contact

David Wiesenfeld, Melbourne Health, David.Wiesenfeld@mh.org.au

Year established
2007
Description

Records presentation, treatment and outcomes for patients at Melbourne Health with Head and Neck Cancer

Reporting process
  • Reported in other public reports
  • Reported through internal Tumour Stream audits
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Melbourne Health

Condition
Head and Neck Cancer
Name
Australian Comprehensive Cancer Outcomes and Research Database  Head and Neck Tumour Database
Weblink

Nil

Lead organisation
Melbourne Health
Ethics approval reference
Melbourne Health HREC: 2005-198
Program area
Indicators and measurement
Prioritised clinical domain
High burden cancers
Abbreviation
MRDR
Registry contact

Transfusion Research Unit, Monash University, sphpm-myeloma@monash.edu

Year established
2012
Description

This prospective clinical quality registry aims to improve myeloma outcomes by providing an evidence-base for the best strategies to diagnose, treat and support people with myeloma and related diseases. It is a registry of newly diagnosed patients with multiple myeloma, MGUS, plasma cell leukaemia or plasmacytoma. It collects information on demographics, diagnosis, treatment, response to therapy and outcomes including survival, progression free survival and quality of life.

The aims of the Myeloma & Related Diseases Registry are to:

  • Monitor access to care
  • Benchmark outcomes nationally and internationally
  • Explore variation in practice, process and outcome measures
  • Monitor trends in incidence and survival
  • Explore the factors that influence outcomes including survival and quality of life
  • Act as a resource for clinical trials

The MRDR has an industry-funded "sister registry", the Asia-Pacific MRDR (APAC MRDR), with the same aims and  purpose. The APAC-MRDR collects data that mirrors the ANZ registry from Korea, Singapore, and Malaysia with other countries to follow.

Reporting process
  • Feedback to contributing clinicians in six monthly site data reports
  • Reported in Annual Report
  • Shared with clinicians
  • Shared with hospital executive
  • Publish quarterly registry updates in MyeNews, published by Myeloma Australia, a national myeloma patient advocacy foundation
Patient Reported Outcome Measures (PROMs)

Collect EQ-5D-5L

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://www.mrdr.net.au/about-us/participating-sites/

Australian Capital Territory

  • Canberra Hospital 

Victoria

  • The Alfred Hospital
  • Peninsula Health (Frankston)
  • Austin Hospital
  • Northern Health  (Northern Hospital)
  • The Royal Melbourne Hospital
  • Royal Melbourne /Peter Mac
  • Monash Health (MMC)
  • Cabrini - Malvern 
  • St Vincent's Hospital, Melbourne
  • Eastern Health (Box Hill)
  • Latrobe Regional Hospital
  • Bairnsdale Regional Health Service
  • Central Gippsland Health Service (Sale Hospital)
  • Epworth Freemasons Hospital
  • University Hospital Geelong

New South Wales

  • Royal Prince Alfred Hospital
  • St George Hospital
  • Concord Repatriation General Hospital
  • Lismore Hospital
  • Royal North Shore Hospital
  • Liverpool Hospital
  • St Vincent's Hospital, Sydney
  • Nepean Cancer Care
  • Border Medical Oncology
  • Jarrett St Specialist Centre
  • ICON Cancer Care

Queensland

  • Princess Alexandra Hospital
  • Royal Brisbane and Women's Hospital
  • Toowomba Hospital
  • Townsville Hospital

Northern Territory

  • Royal Darwin Hospital

Western Australia

  • Sir Charles Gairdner Hospital
  • Hollywood Private Hospital

South Australia

  • Flinders Medical Centre
  • Adelaide Cancer Centre

Tasmania 

  • Royal Hobart Hospital
  • Launceston Hospital

New Zealand 

  • Middlemore Hospital
  • Christchurch Hospital
  • Dunedin Hospital
  • Wellington Hospital 
  • Nelson Hospital 
  • Whangarei Hospital 
Condition
Multiple myeloma and related diseases
Name
Myeloma and related Diseases Registry
Weblink

http://www.mrdr.net.au/

Lead organisation
Monash University
Ethics approval reference
HREC/16/Alfred/126
Program area
Indicators and measurement
Prioritised clinical domain
High burden cancers
Abbreviation
VLCR
Registry contact

Robert Stirling, Monash University, r.stirling@alfred.org.au

Please cc Margaret.brand@monash.edu and med-vlcr@monash.edu 

Year established
2011
Description

Despite recent improvements in diagnosis and treatment, prognosis for lung cancer remains poor, with a 5-year survival of just 17% and it continues to be the biggest contributor to Australia’s overall cancer burden, as calculated by disability-adjusted life years. The Victorian Lung Cancer Registry (VLCR) is a CQR that captures real-world data for approximately 85% of all patients newly diagnosed with lung cancer in Victoria. The VLCR has continued to expand over the past 8 years and in 2019, the VLCR will collect clinical data care from diverse institutions including public metropolitan hospitals (n=27), private metropolitan hospitals (n=16), public regional hospitals (n=9) and private regional hospitals (n=8).

Purpose: The VLCR aims to identify and reduce unwarranted variation in lung cancer care and to drive continued improvement in the quality of care provided to patients. This registry provides bench-marked risk-adjusted reports to participating sites, reflecting site performance against clinical quality indicators reflecting agreed best practice.  Key to the success of the VLCR is the peer reviewed bench-marked data, which is used to motivate change in both institutional and clinical practice.

Population: The VLCR includes all subjects with newly diagnosed Non Small Cell and Small Cell Lung Cancer.

Outcomes:  the VLCR provides 22 measures including time to first treatment, mortality after treatment (surgery and chemotherapy), presentation at multi-disciplinary meetings (MDMs), use of supportive care measures (supportive care screening) and referral to palliative care.

Reporting process
  • Feedback to contributing clinicians  via site Principal Investigator, the VLCR reports are de-identified for treating clinician
  • Shared with clinicians
  • Reported in Annual Report
  • Reported in other public reports
  • Shared with consumers
  • Shared with hospital executive
  • Reported to State health department
Patient Reported Outcome Measures (PROMs)

Patient Reported Outcome Measures will be collected in 2020. These are assessments of overall health and quality of life as reported by patients at specific time points after diagnosis.

Patient Reported Experience Measures (PREMs)

Patient Reported Experience Measures will be collected in 2020.

Participating sites

Victoria

  • Alfred Health (Alfred Hospital, Caulfield, Sandringham)
  • Austin Health (Austin Health, Heidelberg repat, Royal Talbot, Olivia-Newton John Cancer Centre)
  • Eastern Health (Angliss, Box Hill, Maroondah, Peter James)
  • Monash Health (Monash Medical Clayton, Casey, Dandenong, Moorabbin)
  • Northern Health
  • Peninsula Health (Frankston, Rosebud)
  • Peter MacCallum Cancer Centre
  • Royal Melbourne Hospital (Royal Park, City Campus)
  • St Vincent’s Public (St Vincent’s Public, Caritas, St Georges)
  • Western Health (Footscray, Sunshine, Williamstown)
  • Cabrini Health (Cabrini Malvern, Brighton, Prahran, Elsternwick, Hopetoun)
  • Epworth Health (Richmond, Eastern, Freemasons, Geelong, Brighton, Camberwell
  • St Vincent’s Private (Fitzroy, East Melbourne)
  • Genesis Care (Frankston, Epping, Ringwood)
  • Albury Wodonga Health
  • Ballarat Hospital
  • Barwon Health (Geelong Hospital)
  • Bendigo Health
  • Goulburn Valley Health
  • Latrobe Hospital
  • South West Healthcare (Warrnambool, Portland, Hamilton)
  • Ramsay Health (Peninsula, Mildura, Border Medical Oncology)
  • St John Of God (Geelong, Ballarat, Bendigo, Warrnambool, Berwick)
Condition
Lung cancer
Name
Victorian Lung Cancer Registry
Weblink

https://vlcr.org.au

Lead organisation
Monash University
Ethics approval reference
HREC/16/Alfred/84
Program area
Indicators and measurement
Prioritised clinical domain
Ischemic heart disease
Abbreviation
ANZSCTS Database
Registry contact

Lavinia Tran, Monash University, lavinia.tran@monash.edu

Year established
2001
Description

The ANZSCTS Database Program records details of all adult cardiac surgical procedures performed in participating hospitals in Australia and New Zealand. It has complete coverage of all public hospitals in Australia and a large majority of private hospitals.

The Program has established a quarterly peer review and monitoring process which measures and benchmarks key performance indicators in cardiac surgery including: mortality, stroke, new renal insufficiency, bleeding and deep sternal would infection. The program also publishes comprehensive annual reports describing the activities and outcomes of participating sites in a comparative de-identified format.

Reporting process
  • Feedback to contributing clinicians; Hospitals and surgeons have access to their own data via the online web portal
  • Shared with clinicians
  • Reported in Annual Report
  • Reported in other public reports
  • Shared with hospital executive
  • Shared with medical colleges
  • Reported to State/Territory health departments 
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

Western Australia

  • Fiona Stanley Hospital
  • Sir Charles Gairdner Hospital
  • St John of God Hospital (Subiaco)
  • Mount Hospital

South Australia

  • Flinders Medical Centre
  • Royal Adelaide Hospital
  • Ashford Hospital
  • Flinders Private

Victoria

  • Austin Health 
  • Royal Melbourne Hospital
  • Monash Medical Centre
  • St Vincent's Hospital
  • University Hospital Geelong
  • The Alfred
  • Epworth Richmond
  • Epworth Eastern
  • Cabrini Health
  • Jessie McPherson Private
  • Peninsula Private
  • Warringal Private
  • Knox Private
  • Melbourne Private

Queensland

  • Prince Charles Hospital
  • Princess Alexandra Hospital 
  • Gold Coast University
  • Townsville Hospital 
  • John Flynn Private
  • Greenslopes Private
  • Sunshine Coast University Private

New South Wales

  • John Hunter Hospital 
  • Prince of Wales Hospital
  • Westmead Hospital
  • St George Hospital
  • St Vincent's Hospital 
  • Liverpool Hospital 
  • Royal North Shore Hospital 
  • Royal Prince Alfred Hospital 
  • Lake Macquarie Private
  • St George Private
  • Westmead Private
  • Strathfield Private
  • Newcastle Private
  • Norwest Private
  • Prince of Wales Private
  • Northern Beaches Hospital

Australian Capital Territory

  • Canberra Hospital
  • National Capital

New Zealand

  • Auckland Hospital
Condition
Cardio thoracic surgery
Name
Australian and New Zealand Society of Cardiac and Thoracic Surgeons Database Program
Weblink

https://anzscts.org/database/

Lead organisation
Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS)
Ethics approval reference
262/09, Alfred Health Ethics Committee
Program area
Indicators and measurement
Prioritised clinical domain
Nil
Abbreviation
AAR
Registry contact

Transfusion Research Unit, Monash University, sphpm.transfusion@monash.edu; aar@monash.edu

Year established
2012
Description

The Aplastic Anaemia Registry was established in 2012, through a collaboration between the Transfusion Research Unit in Monash University’s School of Public Health and Preventive Medicine and partner hospitals, clinicians and patients.

Registry operations are overseen by a multidisciplinary national steering committee and is supported by the Maddie Riewoldt’s Vision Foundation.

The Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry is a clinical quality registry (self-reported) collecting health information on adult and paediatric patients diagnosed with a bone marrow failure syndrome. Data collection is performed at baseline following diagnosis at 6-months and then annually and collects information on the following:

  • Health at diagnosis, patient demographics, co-morbidities and performance status
  • Clinical presentation and disease characteristics (disease type, severity and laboratory diagnostic data)
  • Therapy decisions, (drug/dose of treatment, number of lines of therapy, reasons for alteration or discontinuation)
  • Outcomes (such as complications of disease and therapies and survival).

There are currently 40 Australian hospitals participating in the registry with over 360 participants registered since the first patient data was entered in 2013. The registry provides research infrastructure for the DIAAMOND clinical trial, IBMDx study and the Australian Marrow Failure Biobank.

Reporting process
  • Reported in Annual Report 
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

New South Wales

  • Calvary Mater Hospital Newcastle
  • Canberra Hospital
  • Children's Hospital at Westmead
  • Concord Hospital
  • Gosford Hospital
  • John Hunter Children's Hospital
  • Liverpool Hospital
  • Nepean Hospital
  • Prince of Wales Hospital
  • Royal North Shore
  • Royal Prince Alfred Hospital
  • St George Hospital
  • St Vincent's Hospital - Sydney
  • Sydney Children's Hospital
  • Westmead Hospital
  • Wollongong Hospital

Queensland

  • Princess Alexandra Hospital
  • Queensland Children's Hospital
  • Royal Brisbane and Women's Hospital
  • Townsville Hospital

South Australia

  • Flinders Medical Centre
  • Queen Elizabeth Hospital
  • Royal Adelaide Hospital
  • Women's and Children's Hospital Adelaide

Tasmania

  • Royal Hobart Hospital

Victoria

  • Alfred Hospital
  •  Austin Hospital
  •  Box Hill Hospital
  •  Geelong Hospital
  •  Monash Medical Centre
  • Peter MacCallum Cancer Centre
  •  Royal Children's Hospital Melbourne
  •  Royal Melbourne Hospital
  •  St Vincent's Hospital - Melbourne
  •  Western Hospital

Western Australia

  • Fiona Stanley Hospital
  • Perth Children's Hospital
  • Royal Perth Hospital
  • Sir Charles Gairdner Hospital
Condition
Acquired and Inherited Bone Marrow Failure Syndromes
Name
Aplastic Anaemia and other Bone Marrow Failure Syndromes Registry
Weblink

www.monash.edu/medicine/sphpm/registries/aar

https://aaregistry.org.au/

Lead organisation
Monash University
Ethics approval reference
NMA Lead HREC, Monash Health and Western Australia, Child and Adolescent Health Service HREC; HREC approval reference: CF12/0423 - 2012000185
Program area
Indicators and measurement
Preferred published date
Immediately
Prioritised clinical domain
Nil
Abbreviation
AHDR
Registry contact

Joanne Kennedy, Murdoch Children's Research Institute, joanne.kennedy@mcri.edu.au

Year established
2017
Description

The Australian Hand Difference Register (AHDR) is a database of information about children in Australia who were born with a hand and/or arm difference. The AHDR aims to:

  • find out how many children are born with a hand/arm difference in Australia
  • learn more about specific causes and risk factors
  • gain information to help plan services
  • identify possible participants for future research

The information gathered will contribute to future improvements in the health and well being of children born with hand differences by identifying clinical pathways and if possible, preventative strategies.

Reporting process
  • Feedback to contributing clinicians
  • Shared with clinicians
  • Reported in Annual Report
Patient Reported Outcome Measures (PROMs)

Nil

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

New South Wales

  • The Children’s Hospital at Westmead
  • Sydney Children’s Hospital Randwick

Queensland

  • Queensland Children’s Hospital
  • Gold Coast University Hospital (governance approval pending)

South Australia

  • Women’s and Children’s Hospital Adelaide

Western Australia

  • Perth Children’s Hospital
Condition
Congenital hand and upper limb differences
Name
Australian Hand Difference Register
Weblink

https://www.mcri.edu.au/ahdr

Lead organisation
Murdoch Children's Research Institute
Ethics approval reference
HREC/17/RCHM/4, The Royal Children’s Hospital HREC
Program area
Indicators and measurement
Prioritised clinical domain
High burden cancers
Abbreviation
ANZTCT
Registry contact

Leonie Wilcox, St Vincent's Hospital Sydney,leonie.wilcox@svha.org.au

Year established
1992
Description

The purpose of the ANZTCT is :

  • to collect baseline and outcome data relating to all bone marrow, peripheral blood and cord blood haemopoietic stem cell transplants and other cell therapies performed throughout Australia and New Zealand.
  • to provide data to clinicians and researchers for studies involving specific subsets of patients, or to determine the feasibility of such studies.
  • to provide data to clinicians to inform patient care.
  • to provide data to health administrators for resource planning and quality assurance purposes.
  • to participate in local and international data collections by contributing summary and outcome data to enhance the global knowledge base for these types of treatments.
  • to routinely provide systematic bench-marking data to contributing centres for safety and quality audits and to assist with accreditation requirements.
Reporting process
  • Feedback to contributing clinicians 
  • Shared with clinicians
  • Provide benchmarking analysis for safety and quality audits and to assist with accreditation requirements
Patient Reported Outcome Measures (PROMs)

To be collected initially for cell therapy patients, with potential to include transplant patients in the future

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://anztct.org.au/registry/contributing-centers/

New South Wales

  • Children's Hospital at Westmead
  • Concord Repatriation and General Hospital
  • Gosford Hospital
  • John Hunter Children's Hospital
  • Liverpool Hospital
  • Nepean Hospital
  • Newcastle Mater Hospital
  • Prince of Wales Hospital
  • Royal North Shore Hospital
  • Royal Prince Alfred Hospital
  • St George Hospital
  • St Vincent's Hospital, Sydney
  • Sydney Children's Hospital
  • Westmead Hospital
  • Wollongong Hospital

Queensland

  • Gold Coast University Hospital
  • Greenslopes Private Hospital
  • Mater Private Hospital
  • Mater Misericordae Public Hospital
  • Princess Alexandra Hospital
  • Queensland Children's Hospital
  • Royal Brisbane & Women's Hospital
  • The Townsville Hospital
  • Wesley Private Hospital

Victoria

  • Alfred Hospital
  • Austin Hospital
  • Box Hill Hospital
  • Geelong Hospital
  • Peter MacCallum Cancer Centre
  • Royal Children's Hospital, Melbourne
  • Royal Melbourne Hospital
  • St Vincent's Hospital, Melbourne

South Australia

  • Flinders Medical Centre
  • Queen Elizabeth Hospital
  • Royal Adelaide Hospital
  • Women and Children's Hospital

Western Australia

  • Fiona Stanley Hospital
  • Perth Children's Hospital
  • Royal Perth Hospital
  • Sir Charles Gairdner Hospital

Tasmania

  • Royal Hobart Hospital 

Australian Capital Territory

  • Canberra Hospital

New Zealand

  • Auckland Hospital
  • Christchurch Hospital
  • Palmerston North Hospital
  • Starship Hospital
  • Waikato Hospital
  • Wellington Hospital
Condition
Transplant and cellular therapies
Name
Australia and New Zealand Transplant and Cellular Therapies Registry
Weblink

https://anztct.org.au/

 

Lead organisation
Australia and New Zealand Transplant and Cellular Therapies Limited (professional)/ St Vincent's Hospital Sydney (operational)
Ethics approval reference
St Vincent’s Hospital HREC: LNR/14/SVH/41
Program area
Indicators and measurement
Preferred published date
Immediately
Prioritised clinical domain
High burden cancers
Abbreviation
PCOR-Vic
Registry contact

Melanie Evans, Monash University, pcor-vic@monash.edu

Year established
2009
Description

PCOR-Vic focuses on describing patterns of care following a diagnosis of prostate cancer, monitoring quality of delivered care and whether it is in line with evidence-based guidelines.

PCOR-Vic is a population-based registry currently capturing 87 per cent of all newly diagnosed cases of prostate cancer in Victoria.

Outcomes measured: Positive margin rate post prostatectomy, documentation of clinical stage, PSA recorded pre-diagnosis and post prostatectomy, advanced disease and appropriate use of active surveillance, disease-specific quality of life at 12 months post treatment or diagnosis (if no treatment has occurred).

Reporting process
  • Feedback to contributing clinicians 
  • Shared with clinicians
  • Reported in Annual Report
  • Shared with hospital executive
Patient Reported Outcome Measures (PROMs)

The Expanded Prostate Cancer Index Composite (EPIC-26), EORTC QLQ - PR25 and questions from the Utilization of Sexual Medications/devices questionnaire (Libido questions only)

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://prostatecancerregistry.org/whos-involved/

Victoria 

  • Alfred Hospital (Alfred Health)
  • Alfred Radiation Oncology (Alfred Health)
  • Angliss Hospital (Eastern Health)
  • Austin Hospital (Austin Health)
  • Bairnsdale Regional Health Service
  • Ballarat Health Service
  • Bass Coast Health
  • Beleura Private Hospital (Ramsay Health Care)
  • Bendigo Health
  • Box Hill Hospital (Eastern Health)
  • Cabrini Hospital Brighton
  • Cabrini Hospital Malvern
  • Casey Hospital (Monash Health)
  • Caulfield Hospital (Alfred Health)
  • Central Gippsland Health Service
  • Colac Area Health
  • Dandenong Hospital (Monash Health)
  • Echuca Regional Health
  • Epworth Eastern
  • Epworth Freemasons
  • Epworth Geelong
  • Epworth Hawthorn
  • Epworth Richmond
  • Footscray Hospital (Western Health)
  • Frankston Hospital (Peninsula Health)
  • Geelong Private Hospital
  • GenesisCare Albury Wodonga
  • GenesisCare Berwick
  • GenesisCare Cabrini
  • GenesisCare Epping
  • GenesisCare Footscray
  • GenesisCare Frankston
  • GenesisCare Ringwood
  • GenesisCare St Vincent's
  • Gippsland Radiation Oncology
  • Gippsland Southern Health Service
  • Goulburn Valley Health
  • Healesville Hospital (Eastern Health)
  • Heidelberg Repatriation Hospital (Austin Health)
  • Kerang and District Health
  • Kyabram District Health Services
  • Kyneton District Health Serivce
  • Latrobe Regional Hospital
  • Linarce Private Hospital (Ramsay Health Care)
  • Maroondah Hospital (Eastern Health)
  • Maryvale Private Hospital
  • Masada Private Hospital
  • Mildura Base Hospital
  • Mildura Private Hospital
  • Mitcham Private Hospital (Ramsay Health Care)
  • Monash Medical Centre Clayton (Monash Health)
  • Moorabbin Hospital (Monash Health)
  • Northern Health
  • Peninsula Private Hospital (Ramsay Health Care)
  • Peter MacCallum Cancer Centre - Bendigo
  • Peter MacCallum Cancer Centre - Box Hill
  • Peter MacCallum Cancer Centre - Moorabbin
  • Peter MacCallum Cancer Centre - Parkville
  • Peter MacCallum Cancer Centre - Sunshine
  • Portland District Health
  • Rochester and Elmore District Health Service
  • Rosebud Hospital (Peninsula Health)
  • Royal Melbourne Hospital (Melbourne Health)
  • Sandringham Hospital (Alfred Health)
  • Shepparton Private Hospital (Ramsay Health Care)
  • South Gippsland Hospital
  • South West Healthcare (Warrnambool Base Hospital)
  • St John of God - Ballarat
  • St John of God - Bendigo
  • St John of God - Geelong
  • St John of God - Warrnambool
  • St Vincent's Hospital Melbourne
  • Sunshine Hospital (Western Health)
  • Swan Hill District Hospital
  • The Avenue Private Hospital (Ramsay Health Care)
  • The Bays Private Hospital
  • The Valley Private Hospital
  • University Hospital Geelong
  • Wangaratta Private Hospital (Ramsay Health Care)
  • Wantirna Health (Eastern Health)
  • Warringal Private Hospital (Ramsay Health Care)
  • Waverley Private Hospital (Ramsay Health Care)
  • West Gippsland Healthcare Group
  • Western District Health Service
  • Williamstown Hospital (Western Health)
  • Yarra Ranges Health (Eastern Health)
Condition
Prostate cancer
Name
Prostate Cancer Outcomes Registry - Victoria 
Weblink

https://www.monash.edu/medicine/sphpm/pcor-vic

Lead organisation
Monash University
Ethics approval reference
HREC/16/Alfred/98
Program area
Indicators and measurement
Prioritised clinical domain
Nil
Abbreviation
ABDR
Registry contact

Ingrid Hopper, Monash University, ingrid.hopper@monash.edu

Year established
2015
Description

The Australian Breast Device Registry (ABDR) is a Commonwealth-funded Monash University-led health initiative and is endorsed by major surgical societies in Australia. The ABDR’s continuing mission is to improve patient outcomes by identifying and reporting on possible trends and complications associated with breast device surgery; tracking the long-term safety and performance of implantable breast devices; monitoring performance of breast devices and benchmarking the quality of surgery involving breast implants, breast tissue expanders and acellular dermal matrices; and identifying best surgical practice and optimal patient health outcome.

The ABDR collects information about breast devices using a simple data collection form (DCF) completed by surgeons at the time of surgery across the eligible sites Australia-wide. ABDR collects data related to all surgical procedures involving breast implants, breast tissue expanders and acellular dermal matrices (or similar) undertaken nationally. This include insertions, revisions of in situ devices, and explants without replacement. Information from the DCFs generates a powerful set of accurate and validated data that can be analysed and reported to individual surgeons, hospitals, the department of health and other key stakeholders.

The ABDR produces information on device failure rates, complications and revision rates of procedures involving breast devices nationally. Additional to data collected at the time of surgery and revision surgery, the ABDR asks patients brief questions about their health at 1, 2, 5 and 10 years post-surgery. This sub-study is named as Patient Reported Outcome Measures (PROMs).

Reporting process
  • Feedback to contributing clinicians
  • Shared with clinicians
  • Shared with consumers
  • Shared with hospital executive
  • Reported in Annual Report
  • Reported in other public reports
Patient Reported Outcome Measures (PROMs)

BREAST-Q Implant Surveillance module (BREAST-Q IS)

Patient Reported Experience Measures (PREMs)

Nil

Participating sites

https://www.abdr.org.au/about-us/participating-sites/

Victoria

  • Austin Hospital
  • Ballarat Base Hospital
  • Beleura Private Hospital
  • Bellbird Private Hospital
  • Bendigo Day Surgery
  • Bendigo Hospital
  • Box Hill Hospital
  • Broadmeadows Hospital
  • Cabrini Hospital- Brighton
  • Cabrini Hospital – Malvern
  • Casey Hospital
  • Corymbia House
  • Cotham Private Hospital
  • Dandenong Hospital
  • Dr Lanzers Cosmetic Surgery
  • Eastlink Surgical & Specialist Centre (closed)
  • Epworth Cliveden
  • Epworth Eastern
  • Epworth Freemasons
  • Epworth Geelong
  • Epworth Hawthorn
  • Epworth Richmond
  • Footscray Hospital
  • Frances Perry House
  • Frankston Hospital
  • Glenferrie Private Hospital
  • Goulburn Valley Health
  • Hamilton Base Hospital
  • Holmesglen Private Hospital
  • John Fawkner Private Hospital
  • Knox Private Hospital
  • Linacre Private Hospital
  • Linley Clinic (closed)
  • Maroondah Hospital
  • Maryvale Private Hospital
  • Masada Private Hospital
  • Melbourne Private Hospital
  • Mitcham Private Hospital
  • Monash House Private Hospital
  • Moorabbin Hospital
  • Northpark Private Hospital
  • Peninsula Private Hospital
  • Peter MacCallum Cancer Centre
  • Repatriation Hospital (The Surgery Centre)
  • Ringwood Private Hospital
  • Shepparton Private Hospital
  • Sir John Monash Private Hospital
  • St John of God Ballarat
  • St John of God Bendigo
  • St John of God Berwick
  • St John of God Geelong
  • St John of God Warrnambool
  • St Kilda Day Hospital
  • St Vincent’s Private Hospital East Melbourne
  • St Vincent’s Private Hospital Fitzroy
  • St Vincent’s Private Hospital Kew
  • St Vincent’s Private Hospital Werribee
  • Stonnington Day Surgery
  • Sunshine Hospital
  • The Alfred Hospital
  • The Avenue Hospital
  • The Bays Hospital
  • The Melbourne Eastern Private Hospital
  • The Northern Hospital
  • The Royal Children’s Hospita
  • The Royal Melbourne Hospital
  • The Royal Women’s Hospital
  • The Valley Private Hospital
  • University Hospital Geelong
  • Victorian Cosmetic Institute Day Surgery
  • Warringal Private Hospital
  • Warrnambool Base Hospital
  • Waverley Private Hospital
  • Western Private Hospital
  • Williamstown Hospital
  • Windsor Private Hospital
  • Wyndham Clinic Private Hospital

Western Australia

  • Bethesda Hospital
  • Bunbury Day Surgery
  • Cambridge Day Surgery
  • Colin Street Day Surgery
  • Concept Fertility Centre and Day Hospital
  • Glengarry Private Hospital
  • Hollywood Private Hospital
  • Joondalup Health Campus
  • Mount Hospital
  • Peel Health Campus
  • St John of God Bunbury Hospital
  • SJOG Midland Public & Private Hospital (previously Swan District Hospital)
  • St John of God Mt Lawley Hospital
  • St John of God Murdoch Hospital
  • St John of God Subiaco Hospital
  • St John of God Wembley Day Surgery
  • Southbank Day Surgery
  • Subiaco Private Hospital
  • Waikiki Private Hospital
  • West Leederville Private Hospital

Australian Capital Territory

  • Barton Private Hospital
  • Calvary Bruce Private Hospital
  • Calvary Bruce Public Hospital
  • Calvary John James Hospital
  • Canberra Private Hospital
  • National Capital Private Hospital
  • Sole’vita Surgery

Tasmania

  • Calvary Health Care Tasmania St John’s Campus
  • Calvary Health Care Tasmania St Vincent’s Campus
  • Hobart Private Hospital
  • Launceston General Hospital
  • North Tas Day Hospital
  • Royal Hobart Hospital

Northern Territory

  • Darwin Day Surgery
  • Darwin Private Hospital
  • Royal Darwin Hospital

New South Wales

  • Aesthetic Day Surgery
  • Alexandria Specialist Day Hospital
  • Artarmon Day Surgery
  • Auburn Hospital NSW
  • Australia Plastic Surgery Sydney
  • Bankstown-Lidcombe Hospital
  • Baringa Private Hospital
  • Bathurst Base Hospital
  • Bathurst Private Hospital
  • Belmont Hospital
  • Bondi Junction Private Hospital
  • Brisbane Waters Private Hospital
  • Calvary Mater Newcastle
  • Calvary Riverina Hospital, Wagga Wagga
  • Campbelltown Private Hospital
  • Castlecrag Private Hospital
  • Castle Hill Day Surgery (closed)
  • Charlestown Private Hospital
  • Concord Repatriation General Hospital
  • Crows Nest Day Surgery
  • Double Bay Day Hospital
  • Double Bay Day Surgery
  • East Sydney Private Hospital
  • Gosford Hospital
  • Gosford Private Hospital
  • Holroyd Private Hospital
  • Honeysuckle Day Surgery
  • Hornsby and Ku-ring-gai Hospital
  • Hospital for Specialist Surgery
  • Hunter Valley Private Hospital
  • Hunters Hill Private Hospital
  • Hurstville Private Hospital
  • Kareena Private Hospital
  • Kingsgrove Day Hospital
  • Kingsway Day Surgery
  • Lake Macquarie Private Hospital
  • Lingard Private Hospital
  • Liverpool Hospital
  • Macquarie St Day Surgery
  • Macquarie University Hospital
  • Maitland Private Hospital
  • Mater Hospital, North Sydney
  • Mount Druitt Hospital
  • My Cosmetic Clinic
  • Nepean Hospital
  • Nepean Private Hospital
  • Northern Beaches Hospital
  • North Shore Private Hospital
  • North Shore Specialist Day Hospital
  • Norwest Day Hospital
  • Norwest Private Hospital
  • Nowra Private Hospital
  • Pittwater Day Surgery
  • Port Macquarie Private Hospital
  • Prince of Wales Hospital
  • Prince of Wales Private Hospital
  • Riverina Day Surgery
  • Royal Hospital for Women, Sydney
  • Royal North Shore Hospital
  • San Day Surgery, Hornsby
  • Southern Highlands Private Hospital
  • St George Hospital
  • St Luke’s Private Hospital
  • St Vincent’s Hospital
  • St Vincent’s Private Community Hospital, Griffith
  • St Vincent’s Private Hospital, Sydney
  • Strathfield Private Hospital
  • Surry Hills Day Hospital
  • Sydney Adventist Hospital
  • Sydney Day Hospital
  • Sydney Private Hospital
  • Sydney Southwest Private Hospital
  • Sydney Surgical Centre
  • Tamara Private Hospital
  • Tamworth Base Hospital
  • The Tweed Hospital
  • Wagga Wagga Rural Referral Hospital
  • Waratah Private Hospital
  • Warners Bay Private Hospital
  • Westmead Hospital
  • Westmead Private Hospital
  • Westside Private Hospital
  • Wollongong Day Surgery
  • Wollongong Hospital
  • Wollongong Private Hospital

South Australia

  • Adelaide Day Surgery
  • Ashford Hospital
  • Brighton Day Surgery
  • Burnside War Memorial Hospital
  • Calvary North Adelaide Hospital
  • Calvary Wakefield Hospital
  • Calvary Wakefield Surgicentre
  • Flinders Medical Centre
  • Flinders Private Hospital
  • Glenelg Community Hospital
  • Hamilton House Day Surgery
  • Lyell McEwin Hospital
  • Modbury Hospital
  • Noarlunga Hospital
  • North Adelaide Day Surgery
  • Norwood Day Surgery
  • Parkside Cosmetic Surgery
  • Royal Adelaide Hospital
  • St Andrew’s Hospital
  • The Memorial Hospital
  • The Stirling District Hospital
  • The Queen Elizabeth Hospital
  • The Western Hospital
  • Waverley House Plastic Surgery Centre
  • Women’s and Children’s Hospital

Queensland

  • Brisbane Day Hospital
  • Brisbane Private Hospital
  • Caboolture Private Hospital
  • Cairns Base Hospital
  • Cairns Day Surgery
  • Cairns Private Hospital
  • Canossa Private Hospital
  • Chermside Day Hospital
  • Far North Day Hospital (Cairns Central Day Hospital)
  • Friendly Society Private Hospital
  • Gold Coast Private Hospital
  • Gold Coast Surgical Hospital (closed)
  • Gold Coast University Hospital
  • Greenslopes Private Hospital
  • Hillcrest Rockhampton Private Hospital
  • Ipswich Day Hospital
  • John Flynn Private Hospital
  • Kawana Private Hospital
  • Mater Hospital Brisbane
  • Mater Hospital Pimlico
  • Mater Private Hospital Brisbane
  • Mater Private Hospital Springfield
  • Mater Women’s and Children’s Hospital Hyde Park
  • Mercy Health Gladstone – Mater Misericordiae Hospital Gladstone
  • Mercy Health Mackay – Mater Misericordiae Hospital Mackay
  • Mercy Health Rockhampton – Mater Misericordiae Hospital Rockhampton
  • Miami Day Hospital
  • Montserrat – Gaythorne Day Hospital
  • Montserrat – North Lakes Day Hospital
  • Montserrat – Samford Road Day Hospital
  • Noosa Hospital
  • North West Private Hospital
  • Pacific Day Surgery
  • Pacific Private Day Hospital
  • Pindara Day Procedure Centre
  • Pindara Private Hospital
  • Princess Alexandra Hospital
  • Queen Elizabeth II Jubilee Hospital
  • Redland Hospital
  • Renaissant Aesthetic Health
  • Rockhampton Hospital
  • Robina Hospital
  • Royal Brisbane & Women’s Hospital
  • South Bank Day Hospital
  • Southport Day Hospital
  • Spring Hill Specialist Day Hospital
  • St Andrew’s Private Hospital Ipswich
  • St Andrew’s Toowoomba Hospital
  • St Vincent’s Private Hospital – Brisbane
  • St Vincent’s Private Hospital – Holy Spirit Northside
  • Sunshine Coast Day Surgery
  • Sunshine Coast University Private Hospital
  • Toowoomba Surgicentre
  • Townsville Hospital
  • UnitingCare – Buderim Private Hospital
  • UnitingCare – St Andrew’s War Memorial Hospital
  • UnitingCare – St Stephen’s Hospital
  • UnitingCare – The Wesley Hospital
  • Varsity Lakes Day Hospital
Condition
Breast device surgery
Name
The Australian Breast Device Registry
Weblink

https://www.abdr.org.au/

Lead organisation
Monash University
Ethics approval reference
Multiple HRECs, lead site is Alfred Hospital HREC 5/15 and Monash University
Program area
Indicators and measurement
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