The Commission has developed a guide to support incident management. The guide consolidates best practice approaches based on literature reviews and the Australian states’ and territories’ incident management policies.
Helen Thomas, Director, Epidemiology Branch, Wellbeing SA, Helen.Thomas2@sa.gov.au
The South Australian Clinical Cancer Registry monitors and provides information on the safety and quality of cancer care in the health system, and provides information for the evaluation of any new treatments or models of care and for research purposes.
The SACCR collects data including clinically derived stage, grade, differentiation, treatments, prognostic indicators for patients treated at participating South Australian hospitals. This collection complements the population-based SA Cancer Registry. Historically a number of cancer sites were collected, current priority cancer types with the SACCR collection include breast, colorectal, lung, melanoma and gynaecological cancers.
- Shared with clinicians upon request
- Feedback to contributing clinicians
- Publications in collaboration with clinicians and HREC approvals
- Long term plans are to provide these data for data analysis in aggregate format using internal visualisation tools and reporting systems within the Department for Health and Wellbeing
Nil
Nil
South Australia
- Flinders Medical Centre
- The Queen Elizabeth Hospital
- The Royal Adelaide Hospital
The NMA Scheme for Ethical and Scientific Review of Multi-Centre Research is consistently recognised as a key enabler for clinical trials and research conduct in Australia. Consultation is underway for the development of a National Accreditation Scheme.
William Vollbon, Statewide Cardiac Clinical Informatics, Queensland Health, scciu@health.qld.gov.au
The Queensland Cardiac Outcomes Registry (QCOR) provides detailed information on the performance of clinical cardiac care provided to patients across all Queensland public health facilities. The registry also examines outcomes across a number of specialty areas including, interventional cardiology, cardiac and thoracic surgery as well as cardiac electrophysiology and pacing. QCOR also collects data on the care and outcomes of patients referred to heart failure support services or undergoing a cardiac rehabilitation program.
- Feedback to contributing clinicians
- Reported in Annual Report
- Contributions to national clinical registries (Australian & New Zealand Society of Cardiac & Thoracic Surgeons
- 30-day (Percutaneous coronary intervention) PCI follow up
- Cardiac rehabilitation quality of life audits
Nil
Queensland
- Atherton Hospital
- Ayr Hospital
- Biggenden Hospital
- Biloela Hospital
- Blackall Hospital
- Boonah Hospital
- Bowen Hospital
- Browns Plains Community Health Centre
- Bundaberg Hospital
- Caboolture Hospital
- Cairns Hospital
- Caloundra Hospital
- Capricorn Coast Hospital
- Charleville Hospital
- Charters Towers Hospital
- Chermside Community Health Centre
- Chinchilla Hospital
- Dalby Hospital
- Eidsvold Hospital
- Eight Mile Plains Community Health Centre
- Esk Hospital
- Gatton Hospital
- Gayndah Hospital
- Gladstone Hospital
- Gold Coast University Hospital
- Goondiwindi Hospital
- Gympie Hospital
- Health Contact Centre
- Hervey Bay Hospital
- Hughenden Hospital
- Inala Community Health Centre
- Ingham Hospital
- Innisfail Hospital
- Ipswich Hospital
- Kingaroy Hospital
- Laidley Hospital
- Logan Hospital
- Longreach Hospital
- Mackay Base Hospital
- Mareeba Hospital
- Maroochydore Community Health
- Maryborough Hospital
- Miles Hospital
- Mossman Hospital
- Mount Isa Hospital
- Mount Morgan Hospital
- Mundubbera Hospital
- Nambour General Hospital
- Noosa Community Health
- North Lakes Health Precinct
- Princess Alexandra Hospital
- Proserpine Hospital
- Queen Elizabeth II Jubilee Hospital
- Redcliffe Hospital
- Redland Hospital
- Robina Hospital
- Rockhampton Hospital
- Roma Hospital
- Royal Brisbane and Women's Hospital
- St George Hospital
- Stanthorpe Hospital
- Tara Hospital
- Texas Hospital
- The Prince Charles Hospital
- Toowoomba Hospital
- Townsville University Hospital
- Tully Hospital
- Warwick Hospital
Ms Jennifer Holland, Monash University, med-bsr@monash.edu
The Bariatric Surgery Registry is a population-based, observational, quality improvement study of persons with obesity who have had bariatric surgery. Its purpose is to gather and analyse information which is used to monitor the safety of bariatric surgery and enhance the quality of care received by persons undergoing bariatric surgery in Australia and New Zealand. Anyone who undergoes bariatric surgery in Australia or New Zealand is eligible for inclusion in the study.
The registry collects information on the operation performed, who performed the operation, where the operation occurred, complications from the surgery, weight at various time points, and diabetes status and management. The incidence of adverse events (unplanned hospital readmission, unplanned return to theatre, unplanned ICU admission) and deaths related to bariatric surgery are monitored for ninety days after surgery for all participants. Clinical outcomes for participants who are enrolled with their initial bariatric procedure are assessed annually to determine long term health effects of having bariatric surgery by following weight/body mass index (BMI) changes, differences in managing diabetes in patients identified as diabetic, the need for revision surgery, and vital status.
- Feedback to contributing clinicians
- Reported in Annual Report
- Reported to State/Territory health departments
- Shared with hospital executive
PROMs for the Bariatric Surgery Registry are currently under development and planned for collection in 2022
Nil
Australian Capital Territory
- Calvary Bruce Private Hospital
- Canberra Hospital
- National Capital Private Hospital
New South Wales
- Albury-Wodonga Private Hospital
- Baringa Private Hospital
- Belmont Hospital
- Calvary St Vincent's Hospital
- Calvary Riverina Hospital
- Campbelltown Private Hospital
- Concord Repatriation General Hospital
- Delmar Private Hospital
- Dubbo Private Hospital
- Dudley Private Hospital
- Gosford Hospital
- Gosford Private Hospital
- Holroyd Private Hospital
- Hurstville Private Hospital
- John Flynn Private Hospital
- John Hunter Hospital
- Kareena Private Hospital
- Lake Macquarie Private Hospital
- Lakeview Private Hospital
- Lingard Private Hospital
- Mater Sydney Hospital
- Nepean Private Hospital
- Newcastle Private Hospital
- North Shore Private Hospital
- Nowra Private Hospital
- Port Macquarie Private Hospital
- Prince Of Wales Private Hospital
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- Southern Highlands Private Hospital
- St George Private Hospital
- St Vincent's Private Hospital Lismore
- Strathfield Private Hospital
- Sydney Adventist Hospital
- Sydney Southwest Private Hospital
- Tamara Private Hospital
- Tuggerah Lakes Private Hospital
- Wagga Wagga Base Hospital
- Westmead Private Hospital
- Wollongong Private Hospital
Northern Territory
- Darwin Private Hospital
Queensland
- Brisbane Private Hospital
- Brisbane Waters Private Hospital
- Buderim Private Hospital
- Cairns Private Hospital
- Gold Coast Private Hospital
- Greenslopes Private Hospital
- Hillcrest - Rockhampton Private Hospital
- Ipswich Hospital
- Kawana Private Hospital
- Mater Private Hospital Bundaberg
- Mater Private Hospital Mackay
- Mater Private Hospital Rockhampton
- Mater Private Hospital (South Brisbane)
- Mater Private Hospital Townsville
- Nambour Selangor Private Hospital
- Noosa Private Hospital
- North West Private Hospital (Brisbane)
- Pindara Private Hospital
- Princess Alexandra Hospital
- Queen Elizabeth II Jubilee Hospital
- Royal Brisbane & Women's Hospital
- St Andrew's - Ipswich Private Hospital
- St Andrew's War Memorial Hospital
- St John Of God Bunbury Hospital
- St Stephens Hospital Hervey Bay
- St Vincent's Private Hospital Northside
- St Vincent's Private Hospital Toowoomba
- Sunnybank Private Hospital
- Sunshine Coast University Private Hospital
- Sunshine Hospital
- The Wesley Hospital
South Australia
- Ashford Hospital
- Calvary Adelaide Hospital
- Calvary Central Districts Hospital
- Calvary North Adelaide Hospital
- Flinders Medical Centre
- Flinders Private Hospital
- Royal Adelaide Hospital
- The Queen Elizabeth Hospital
- Western Hospital (SA)
Tasmania
- Hobart Private Hospital
- Launceston General Hospital
- North West Private Hospital (Burnie)
- Royal Hobart Hospital
Victoria
- Austin Health - Austin Hospital
- Austin Health - Heidelberg Repatriation Hospital
- Beleura Private Hospital
- Box Hill Hospital
- Cabrini Hospital - Brighton
- Cabrini Hospital - Malvern
- Epworth Eastern Hospital
- Epworth Freemasons
- Epworth Geelong
- Epworth Richmond
- Footscray Hospital
- Glen Iris Private Hospital
- Hamilton Hospital
- Holmesglen Private Hospital
- Jessie Mcpherson Private Hospital
- John Fawkner Private Hospital
- Knox Private Hospital
- Latrobe Regional Hospital
- Maryvale Private Hospital
- Mildura Base Hospital
- Mildura Health Private Hospital
- Mitcham Private Hospital
- Monash Medical Centre
- Mulgrave Private Hospital
- Northpark Private Hospital
- Norwest Private Hospital
- Peninsula Private Hospital
- Shepparton Private Hospital
- St John Of God Ballarat Hospital
- St John Of God Bendigo Hospital
- St John Of God Berwick Hospital
- St John Of God Geelong Hospital
- St John Of God Warrnambool Hospital
- St Vincent's Hospital Melbourne
- St Vincent's Private Hospital Fitzroy
- The Alfred Hospital
- The Bays Hospital
- Wangaratta Private Hospital
- Warringal Private Hospital
- Waverley Private Hospital
- Western Private Hospital (VIC)
- Williamstown Hospital
Western Australia
- Bethesda Hospital
- Glengarry Private Hospital
- Hollywood Private Hospital
- Joondalup Health Campus
- Mount Hospital
- Peel Health Campus
- St John Of God Murdoch Hospital
- St John Of God Mt Lawley Hospital
- St John Of God Subiaco Hospital
- Waikiki Private Hospital
New Zealand
- Anglesea Hospital
- Auckland City Hospital
- Boulcott Plus Health
- Chelsea Hospital Trust
- Christchurch Hospital
- Gisborne Hospital
- Grace Hospital
- Manuka Street Hospital
- Mercy Hospital
- Middlemore Hospital
- Ormiston Hospital
- Southern Cross Hamilton
- Southern Cross Christchurch
- Southern Cross North Harbour
- Southern Cross Wellington
- Southland Hospital
- St George's Hospital
- Tauranga Hospital
- Waikato Hospital
- Wakefield Hospital
Sharon Chow, University of New South Wales Sydney, anznn@unsw.edu.au
The Australian and New Zealand Neonatal Network (ANZNN) is a collaborative network that monitors the care of high risk newborn infants by pooling data to provide quality assurance for this resource consuming care. The Network was established in 1994 under the recommendation of the National Health and Medical Research Council's (NHMRC) Expert Panel on Perinatal Morbidity.
Since its establishment the Network has developed a minimum data set and implemented a data collection that monitors the mortality and morbidity of infants admitted to neonatal intensive care units across Australia and New Zealand.
Every neonatal intensive care unit (NICU) in the two countries has been contributing data since inception. Today, participation extends to every special care unit in New Zealand, and an increasing number of Australian special care units.
Every year, over 12,000 newborns are admitted to a participating neonatal unit in Australia and New Zealand and meet one or more of the following ANZNN registration criteria:
- Born at less than 32 weeks gestation, or
- Weighed less than 1,500 grams at birth, or
- Received assisted ventilation including intermittent positive pressure ventilation (IPPV) or continuous positive airways pressure (CPAP) or high flow nasal cannulae for four or more consecutive hours, or died while receiving mechanical ventilation prior to four hours of age, or
- Received major surgery (surgery that involved opening a body cavity), or
- Received therapeutic hypothermia.
- Feedback to contributing clinicians
- Reported in Annual Report
Nil
Nil
Australian Capital Territory
- The Canberra Hospital
New South Wales
- Blacktown Hospital
- Campbelltown Hospital
- Gosford Hospital
- John Hunter Children’s Hospital
- Liverpool Hospital
- Manning Rural Referral Hospital (Taree)
- Nepean Hospital
- Royal Hospital For Women
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George Hospital
- Sydney Children's Hospital
- Tamworth Rural Referral Hospital
- The Children's Hospital At Westmead
- The Maitland Hospital
- Wagga Wagga Rural Referral Hospital
- Westmead Hospital
- Wollongong Hospital
Northern Territory
- Alice Springs Hospital
- Royal Darwin Hospital
Queensland
- Bundaberg Hospital
- Cairns Base Hospital
- Gold Coast University Hospital
- Logan Hospital
- Mackay Base Hospital
- Mater Mothers’ Hospital
- Redcliffe Hospital
- Royal Brisbane & Womens Hospital
- Sunshine Coast University Hospital
- The Townsville Hospital
South Australia
- Flinders Medical Centre
- Lyell McEwin Hospital
- Womens And Childrens Hospital
Tasmania
- Royal Hobart Hospital
Victoria
- Mercy Hospital For Women
- Monash Medical Centre - Clayton Campus
- Royal Children's Hospital
- Royal Women's Hospital
- Sunshine Hospital
- The Northern Hospital
Western Australia
- King Edward Memorial Hospital
- Perth Children’s Hospital
New Zealand
- Auckland City Hospital
- Christchurch Women's Hospital
- Dunedin Hospital
- Middlemore Hospital
- Waikato Hospital
- Wellington Women's Hospital
- Taranaki Base Hospital
- Tauranga Hospital
- Rotorua Hospital
- Timaru Hospital
- Nelson Hospital
- Whanganui Hospital
- Southland Hospital
- Hutt Hospital
- Gisborne Hospital
- Whangarei Hospital
- Palmerston North Hospital
- Whakatane Hospital
- Hawkes Bay Hospital
- Wairau Hospital
- North Shore Hospital
- Waitakere Hospital
ACT Health HREC (ETH.11.09.1009)
Child and Adolescent Health Service HREC (1767EP)
Mater Health Services HREC (HREC/14/MHS/11)
Mercy Health HREC (HREC R09/46)
HREC of Northern Territory Department of Health and Menzies School of Health Research (09/100)
Royal Brisbane & Women's Hospital HREC (HREC/09/QRBW/313)
Royal Children's Hospital HREC (29130)
Royal Women's Hospital HREC (09/52)
Monash Health HREC (09315B)
Townsville Hospital and Health Service (HREC/09/QTHS/122)
Women's and Children's Health Network (HREC/2244/02/2019)
Health and Disability Ethics Committees, NZ (MEC/10/13/EXP)
Kimberley Penglis, The Royal Australasian College of Surgeons, anzela-qi@surgeons.org
The outcomes of patients undergoing emergency laparotomy are measured by assessing the care provided against specified key performance indicators (KPIs). The KPIs include but are not limited to: the presence of consultants or other specialists, preoperative reports of CT scans and postoperative admission to critical care.
The ANZELA-QI aims to:
- Improve patient care by providing timely feedback of process and outcome data
- Develop broad engagement through emergency laparotomy data collection
- Identify areas of care requiring improvement and foster collaborative multidisciplinary care
- Provide the opportunity for research projects
- Routine feedback to contributing clinicians
- Reported to State/Territory health departments
- Shared with hospital executive
- Shared with medical colleges
- Shared with other clinicians
- Outcomes provided in an annual report
Nil
Nil
New South Wales
- Albury Wodonga Health
- Armidale Rural Referral Hospital
- Nepean Hospital
- Port Macquarie Base Hospital
Northern Territory
- Royal Darwin Hospital
Queensland
- Caboolture Hospital
- Gold Coast University Hospital
- Logan Hospital
- Mackay Hospital and Health Service
- Mater Hospital Brisbane
- Rockhampton Base Hospital
- Sunshine Hospital (Western Health)
South Australia
- The Royal Adelaide Hospital
Tasmania
- Royal Hobart Hospital
Victoria
- Ballarat Health Service (Base Hospital)
- Barwon Health - Geelong Hospital Campus
- Bendigo Hospital
- Footscray Hospital (Western Health)
- Latrobe Regional Hospital
- Mount Gambier And Districts Health Service
- St Vincent’s Hospital, Melbourne
- The Alfred Hospital
- University Hospital Geelong (Barwon Health)
- Western Health
Western Australia
- Albany Hospital
- Bunbury Regional Hospital
- Fiona Stanley Hospital
- Royal Perth Hospital
- Sir Charles Gairdner Hospital
- St John Of God Midland Public & Private Hospital
Evidence on the use of patient safety culture measurement for safety and quality improvement
Jessica Suna, Queensland Children's Hospital, Jessica.Suna@health.qld.gov.au
This registry has been developed to collect prospective data regarding outcomes following cardiac catheterisation in Australia and New Zealand. The goal of the registry is to use the comprehensive data collected to evaluate performance and identify areas for improvement.
Planned:
- Feedback to contributing clinicians
- Reported in Annual Report
- Shared with consumers
- Shared with hospital executive
- Shared with medical colleges
- Shared with other clinicians
Nil
Nil
New South Wales
- The Children's Hospital, Westmead
Queensland
- Queensland Children's Hospital
South Australia
- Women’s And Children’s Hospital
Victoria
- The Royal Children’s Hospital
Western Australia
- Perth Children’s Hospital
No website at present
Approval ID HREC/2021/QCHQ/71922
ANZIPTR manager, Australia and New Zealand Islet and Pancreas Transplant Unit, info@anziptr.org
ANZIPTR is based at Westmead Hospital in NSW, Australia. The Registry operates at Westmead Hospital under contract from the Australian Organ and Tissue Authority. The registry is responsible for recording and maintaining data about the islet and pancreas transplants performed in Australia and New Zealand. Information about donors and recipients of pancreas and islets transplants is collected by the registry from the participating units and stored in a secured database.
- Feedback to contributing clinicians
- Reported in Annual Report
- Reported in other public reports
- Reported to State/Territory health departments
- Shared with consumers
- Shared with other clinicians
Nil
Nil
New South Wales
- Westmead Hospital
South Australia
- The Royal Adelaide Hospital
Victoria
- Monash Medical Centre - Clayton Campus
- St Vincent's Hospital (Melbourne) Ltd
New Zealand
- Auckland Hospital
Clare Whitehead, The Royal Women's Hospital, clarew@unimelb.edu.au
The CHOPAN registry aims to collect real-time data on pregnant women who are infected with the coronavirus that causes COVID-19 (SARS-CoV2) to improve our understanding of its impact on pregnancy and neonatal outcomes. This registry will provide regular feedback to clinicians and public health officials to allow evidence-based management of women and their babies with coronavirus infection.
This registry was developed by Australian clinicians in collaboration with international colleagues in order to maximise its value to the global community.
The aims of the registry are to:
- Describe the presentation and clinical course of coronavirus infection in pregnant women
- Assess obstetric, perinatal and neonatal outcomes after coronavirus infection
- Describe modes of transmission, including any cases of mother-to-child transmission
- Identify any factors that influence disease outcome for mother and baby including: timing and mode of delivery, breastfeeding, rooming-in/separation, the use of anti-viral treatments and supportive therapies
- Facilitate international collaborative efforts to improve care of women exposed to novel and emergent pathogens.
- Feedback to contributing clinicians
- Reported to State/Territory health departments
- Shared with medical colleges
Nil
Nil
Australian Capital Territory
- Mercy Health Service
- The Canberra Hospital
New South Wales
- Bankstown Hospital
- Camperdown Hospital
- Fairfield Hospital
- Hornsby Ku-Ring-Gai Hospital
- Liverpool Hospital
- Nepean Hospital
- Royal Hospital For Women
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George Hospital
- Westmead Hospital
Northern Territory
- Alice Springs Hospital
- Gove District Hospital
- Katherine Hospital
- Royal Darwin Hospital
Queensland
- Sunshine Hospital
South Australia
- Flinders Medical Centre
- Lyell Mcewin Hospital
- Womens and Childrens Hospital
Victoria
- Ballarat Health Services (Base Hospital)
- Boxhill Hospital
- Frankston Hospital
- Monash Medical Centre - Clayton Campus
- The Royal Childrens Hospital
- The Royal Women's Hospital
- Werribee Hospital
Ashanti Dantanarayana, Ambulance Victoria, Ashanti.Dantanarayana@ambulance.vic.gov.au
Dr Ziad Nehme, Ambulance Victoria, ziad.nehme@ambulance.vic.gov.au
The VACAR is a clinical quality registry of all out-of-hospital cardiac arrest (OHCA) events in Victoria. The registry captures a comprehensive ‘roadside to recovery’ perspective of the OHCA patient, capturing over 150 data elements across the prehospital, hospital, and recovery journey. It is used extensively to improve systems-of-care for OHCA patients in Victoria and has been recognised internationally for its contribution to the evidence-base in resuscitation science.
Registry data is collected from Triple Zero calls, Communication Centre dispatch records, Emergency Medical Services (EMS) patient care records, real-time CPR quality data from defibrillators, hospital medical records and from telephone interview of adult survivors at 12 months post-arrest. Hospital outcome data is supplemented by death records from the Victorian Registry of Births, Deaths and Marriages. The registry also collects information relating to the causes of death for OHCA patients from the National Coronial Information System (NCIS). Data for all OHCA patients attended by AV has been captured for over 120,000 patients since 1999. Data is collated in the registry based on an internationally agreed template for resuscitation registries (Utstein template).
VACAR provides information for the assessment and benchmarking of EMS performance in relation to the treatment and outcomes of OHCA patients. In particular, a number of key performance indicators (KPIs) have been implemented, which are designed to measure the quality and safety of care. KPIs include ambulance response times, rate of successful defibrillation, CPR quality metrics (various), prehospital return of spontaneous circulation, event survival and survival to hospital discharge.
- Feedback to contributing clinicians - team performance reports, quarterly regional reports
- Reported in Annual Report (Public)
- Quarterly Steering Committee Report
- KPIs reported to the Department of Health (Victoria) as part of the Ambulance Victoria Standard Operating Procedures
- European Quality of Life Five Dimension (EQ-5D-5L)
- European Quality of Live visual analog scale (EQ VAS)
- 12-item Short Form Health Survey (Sf-12)
- Modified Fatigue Impact Scale (MFIS)
- Glasgow Outcome Scale (GOS)
- Glasgow Outcome Scale Extended (GOSE)
- Hospital Anxiety and Depression Scale (HADS)
- Return to work
- Living status
Nil
Victoria
- Albury Wodonga Hospital
- Alexandra District Health
- (The) Alfred Hospital
- (The) Angliss Hospital
- Anne Caudle Centre
- (The) Austin Hospital
- Ararat Hospital
- Bairnsdale Regional Health Service
- (The) Bays Hospital - Mornington
- (The) Bays - Brighton Campus
- Ballarat Base Hospital
- Barwon Health - Geelong Hospital Campus
- Barwon Health North
- Beaufort and Skipton Health Services – Beaufort Campus
- Beaufort and Skipton Health Services – Skipton Campus
- Bellbird Private Hospital
- Benalla and District Memorial Hospital
- Bendigo Hospital
- Box Hill Hospital
- Cabrini Hospital – Brighton Campus
- Cabrini Hospital – Malvern Campus
- Casey Hospital
- Casterton Memorial Hospital
- Caulfield Hospital
- Central Gippsland Health – Sale Hospital
- Cobram District Health
- Cohuna District Hospital
- Dandenong Hospital
- East Grampians Health Service – Ararat Campus
- East Grampians Health Service – Willaura Campus
- East Wimmera Health Service – Birchip Campus
- East Wimmera Health Service – Charlton Campus
- East Wimmera Health Service – Donald Campus
- East Wimmera Health Service – St Arnaud Campus
- East Wimmera Health Service – Wycheproof Campus
- Echuca Regional Health
- Edenhope and District Memorial Hospital
- Epworth Hospital – Eastern Campus
- Epworth Hospital – Richmond Campus
- Epworth Freemasons Hospital
- Epworth Rehabilitation Hospital - Brighton Campus
- Euroa Health
- Footscray Hospital
- Frankston Hospital
- Goulburn Valley Health - Shepparton Campus
- Goulburn Valley Health - Tatura Hospital
- Great Ocean Road Health – Apollo Bay Hospital
- Great Ocean Road Health – Lorne Community Hospital
- Heidelberg Repatriation Hospital
- Hepburn Health Service
- Inglewood and District Health Service
- Jessie McPherson Private Hospital
- John Fawkner Private Hospital
- Kerang and District Hospital
- Kilmore and District Hospital
- Kingston Centre
- Knox Private Hospital
- Kooweerup Regional Health Service
- Korumburra Hospital
- Kyabram and District Health Service
- Kyneton District Health Service
- Leongatha Hospital
- Lorne Community Hospital
- Latrobe Regional Hospital
- Mansfield District Hospital
- Maroondah Hospital
- Maryborough District Health Service – Dunolly Campus
- Maryborough District Health Service – Maryborough Campus
- Melbourne Private Hospital
- Mildura Base Hospital
- Monash Medical Centre - Clayton Campus
- Monash Medical Centre - Moorabbin Campus
- Mulgrave Private Hospital
- Northeast Health Wangaratta
- (The) Northern Hospital
- Numurkah District Health Service
- Omeo District Health
- Orbost Regional Health
- Peninsula Private Hospital
- Portland District Health
- Robinvale District Health Services - Manangatang Campus
- Robinvale District Health Services - Robinvale Campus
- Rochester and Elmore District Health Service
- Rosebud Hospital
- (The) Royal Children's Hospital - Melbourne
- (The) Royal Children's Hospital - Travancore Campus
- (The) Royal Melbourne Hospital - Parkville Campus
- (The) Royal Melbourne Hospital - Royal Park Campus
- Rural Northwest Health
- Sandringham Hospital
- Seymour District Memorial Hospital
- South Gippsland Hospital
- South West Healthcare – Camperdown Hospital
- South West Healthcare – Warrnambool Base Hospital
- St John Of God Ballarat Hospital
- St Vincent's Hospital Melbourne
- St Vincent's Private Hospital East Melbourne
- St Vincent's Private Hospital Fitzroy
- St Vincent's Private Hospital Kew
- St Vincent's Private Hospital Werribee
- Sunshine Hospital
- Swan Hill District Health – Nyah Campus
- Swan Hill District Health - Swan Hill Campus
- Terang and District Health Service
- (The) University Hospital Geelong
- Timboon and District Healthcare Service
- Upper Murray Health and Community Services
- Warringal Private Hospital
- Werribee Mercy Hospital
- West Gippsland Hospital
- West Wimmera Health Service – Nhill Campus
- Western District Health Service – Hamilton Campus
- Western District Health Service – Penshurst Campus
- Western Private Hospital
- Wimmera Health Care Group – Dimboola Campus
- Wimmera Health Care Group – Horsham Campus
- Wodonga Hospital
- Yarram and District Health Service
- Yarrawonga District Health
- Yea and District Memorial Hospital
Department of Health and Human Services Approval (QI initiative) Number 08/02
Catherine Marraffa, Royal Children's Hospital, Murdoch Children's Research Institute, catherine.marraffa@rch.org.au
This registry was set up in 2015. The aim was to establish a longitudinal clinical registry with initial retrospective ascertainment of cases for the preceding 22 years (1993 to 2015) and ongoing prospective ascertainment of all children with a Neural Tube Defect (NTD) or Sacral Agenesis (SA) who attend the Spina Bifida/Neural Tube Defect clinic at The Royal Children’s Hospital, Melbourne.
It is hoped the other site in Victoria caring for children with this condition, (Monash Children's Hospital) will join the registry and then the rest of Australia in order to determine current practices ,therapies with the hope that longitudinal outcomes may inform future practice.
- Feedback to contributing clinicians
- Shared with consumers
Nil
Nil
Victoria
- The Royal Children’s Hospital Melbourne
Esther Apos, Spine Society of Australia, esther.apos@monash.edu
The ASR will tell us about:
- The frequency of spine surgery in our community;
- The usefulness, safety and results of different surgical approaches and different implantable devices;
- The factors that predict favourable and unfavourable surgical outcomes in both the short and longer term;
- The variety of care provided for people undergoing spine surgery in our community, and how it compares to best practice internationally.
The aim of this project is to develop the pilot of a population-based spine surgery clinical registry to optimise quality of care provided to individuals undergoing spine surgery.
The study population will include any person over the age of 18 undergoing elective surgery that involves the spine.
Patient reported outcome measures (PROMs) specific to quality of life (The 3 Level EQ5D™)and pain and disability questionnaires are used (The Oswestry Disability Index (ODI) for low back pain and the Neck Disability Index (NDI) for acute or chronic disability of the neck).
- Feedback to contributing clinicians
- Reported in Annual Report
- Reported in other public reports
- Shared with consumers
- Shared with hospital executive
- Shared with medical colleges
- Shared with other clinicians
- Medical device companies & private health insurers
The Oswestry Disability Index (ODI) for low back pain and the Neck Disability Index (NDI) for acute or chronic disability of the neck. The 3 Level (EQ5D™) questionnaire is used to assess general quality of life.
Nil
New South Wales
- John Hunter Hospital Royal Newcastle Centre
- Lake Macquarie Private Hospital
- Macquarie University Hospital
- Nepean Private Hospital
- Newcastle Private Hospital
- Prince Of Wales Hospital
- Prince Of Wales Private Hospital
- St George Private Hospital
Queensland
- Royal Brisbane and Women’s hospital
- Princess Alexandra Hospital
Tasmania
- Calvary - Lenah Valley Hospital
Victoria
- Epworth Eastern Hospital
- Epworth Richmond
- The Avenue, Melbourne
- Royal Melbourne Hospital - City Campus
- Warringal Private Hospital
Western Australia
- St John Of God Hospital, Subiaco
Australasian Leukaemia & Lymphoma Group info@allg.org.au
The ALLG NBCR is a national registry collecting clinically annotated data and biospecimens from a patient with a haematological malignancy with a focus on AML, ALL, UL and MDS. Treatment and clinical outcome data are collected for patients and the Australasian haematology community of ALLG members utilise data to inform practice, consider clinical trial inclusion, and to conduct research.
The ALLG NBCR is governed by several committees with regular reporting and feedback mechanisms. The ALLG Registry Operations Committee (ROC) oversees the day-to-day operations and performance metrics of the registry to ensure key targets are met.
The ALLG Scientific Advisory Committee liaise with the ALLG ROC to direct the scientific validity and direction.
The ALLG membership is provided with regular updates, including the ALLG Biannual Scientific Meeting.
There are also regular reporting mechanisms to the approving HRECs and RGOs via annual reports.
Offered to patients with Myelodysplastic syndromes (MDS)
Nil
Australian Capital Territory
- Canberra Hospital
New South Wales
- Blacktown Hospital
- Border Medical Oncology Research Unit
- Concord Hospital
- Gosford Hospital
- Liverpool Hospital
- Calvary Mater Hospital
- Nepean Hospital
- Orange Health Service
- Princes of Wales
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George Hospital
- St Vincent's Sydney
- The Tweed Hospital
- Wollongong Hospital
Northern Territory
- Royal Darwin Hospital
Queensland
- Gold Coast Hospital
- Icon Cancer Centre
- Princess Alexandra Hospital
- Royal Brisbane Hospital
- Rockhampton Hospital
- Sunshine Coast Hospital
- Toowoomba Hospital
- Townsville Hospital
South Australia
- Royal Adelaide Hospital
- Flinders Medical Centre
- Queen Elizabeth Hospital
Tasmania
- Royal Hobart Hospital
- Launceston Hospital
Victoria
- Alfred Hospital
- Austin Hospital
- Box Hill Hospital
- Geelong Hospital
- Monash Health
- Northern Hospital
- Royal Melbourne Hospital
- Peter MacCallum Hospital
- St Vincent's Melbourne
Western Australia
- Fiona Stanley Hospital
- Royal Perth Hospital
- Sir Charles Gairdner Hospital
New Zealand
- Auckland Hospital
- Christchurch Hospital
- North Shore Hospital
- Waikato Hospital
- Wellington Hospital
1. Alfred Hospital HREC - Ref # 181/12
2. Canberra Hospital HREC - Ref # 3/13/049
3. Royal Darwin Hospital - Menzies School of Health Research Ref # HoMER13-1985
4. Royal Hobart Hospital HREC Tasmania Network Ref # HH0012836
5. Launceston Hospital HREC Tasmania Network Ref # HH0016511
6. The Queen Elizabeth Hospital HREC – Ref # HREC/12/TQEHLMH/35
7. Sir Charles Gairdner Hospital HRECRMH HREC – Ref # RGS0000001649
8. Royal Melbourne Hospital -Melbourne Health HREC – Ref # HREC/12/MH/106
9. Northern B Health and Disability Ethics Committee (NZ) – Ref # 21/NTB/115
Jasmine Pyyvaara, Project Manager, National Cardiac Registry, Monash University, info@nationalcardiacregistry.org.au
The National Cardiac Registry (NCR) is a clinical quality registry that collects information on patients receiving treatment for cardiac conditions via state/territory-based cardiac registries. The purpose of the NCR is to document outcome variance and opportunities for excellence in the quality of cardiac health care across Australia. In 2021 data collection commenced across number of state/territories and as it matures the following objectives will be realised.
Objectives:
- Use a collaborative, federated model for effective engagement, participation and support from stakeholders
- Provide a platform to receive State and Territory data and measure performance as determined by agreed quality indicators
- Transparently report on clinical, procedural and patient outcomes to clinicians, hospitals, government and community
- Provide national benchmarking of key quality performance measures for cardiac conditions/procedures/devices and secondary prevention
The NCR will be rolled out in modules, each covering different areas of cardiac healthcare. The first module covers Percutaneous coronary intervention (PCI).
The quality indicators for PCI are:
- Time from diagnostic electrocardiogram to PCI mediated reperfusion
- Time from door to PCI mediated reperfusion
- Peri-PCI stroke
- In hospital major bleeding
- In hospital mortality
- 30-day unplanned cardiac readmission rate after PCI
- Unplanned revascularisation within 30 days
- 30-day mortality after PCI
- Patients without contraindication discharged on lipid-lowering therapy
- Patients referred to cardiac rehabilitation or other secondary prevention program
- Proportion of patients without a clear and documented contraindication for Aspirin and/or a P2Y12 inhibitor, discharged on DAPT
- Reported in Annual Report
- Participating state/territory cardiac registries can access inbuilt bench-marked reports
- Participating state/territory cardiac registries can share reports with hospitals executives, state/territory health departments, other clinicians
- Shared with consumers via annual report
Nil
Nil
https://nationalcardiacregistry.org.au/participating-registries/
The NCR utilises a federated model of governance and data collection. Data is submitted to the NCR by participating cardiac registries across Australia. Currently there are cardiac registries established in the Australian Capital Territory, New South Wales, Queensland, South Australia and Victoria. Tasmania is working with Victoria’s registry to submit data. The Northern Territory and Western Australia are currently developing their registries.
- ACT Cardiac Outcomes Registry (ACTCOR)
- Coronary Angiogram Database of South Australia (CADOSA)
- New South Wales Cardiac Outcomes Registry (NSWCOR)
- Northern Territory Top End Coronary Database (NTTECD)
- Queensland Cardiac Outcomes Registry (QCOR)
- Victorian Cardiac Outcomes Registry (VCOR)
- Western Australia Cardiac Outcomes Registry (WACOR)
The Commission has established the Health and Medical Research Advisory Group to advise on project deliverables and guide the consultation process. The Advisory Group is chaired by Professor Ian Chubb AC, former Chief Scientist and clinical trial participant.