The Commission delivered consultations to develop the requirements for the National One Stop Shop and the National Clinical Trials Front Door, on behalf of the Australian Government Department of Health and Aged Care, in partnership with all jurisdictions via the Clinical Trials Project Reference Group.
Why you are being asked for your perspective on patient safety culture and how the information will be used.
Prioritised clinical domain
Nil
Abbreviation
ePPOC
Registry contact
Dr David Holloway, Australasian Health Outcomes Consortium, University of Wollongong, eppoc-uow@uow.edu.au
Year established
2013
Description
ePPOC is an integrated outcome centre which aims to improve the quality of outcomes and services for people experiencing chronic pain. It is an initiative of the Faculty of Pain Medicine, and was established in 2013 with funding from the NSW Ministry of Health.
There are 90 specialist adult and paediatric pain management services participating in ePPOC, across Australia and New Zealand.
The purpose and aims of ePPOC are to:
- produce information on the effectiveness of pain management interventions through use of standardised assessment tools and measures;
- develop an Australasian benchmarking system to improve pain management outcomes;
- provide comparative data to pain management services using the benchmarks developed;
- develop clinical and management information reports that meet the needs of ePPOC stakeholders;
- provide annual reports that summarise the Australasian data; and
- develop research proposals to address areas of interest within the pain management sector.
ePPOC receives data describing over 32,000 patients attending chronic pain clinics each year. The longitudinal database currently contains over 100,000 patients.
For adult services, nine benchmarks and one indicator have been endorsed for pain management services to strive to achieve. These cover the following domains: pain and interference, depression, anxiety, stress, pain self-efficacy, pain catastrophising, opioid use and waiting time for treatment.
For paediatric services, there is currently one benchmark and three indicators, covering waiting time for treatment, pain, quality of life and functional disability.
Reporting process
- Reported in Annual Report
- Shared with clinicians
- Shared with hospital executive
- Reported in other public reports
- Benchmarking workshops: The purpose of these workshops is to examine the benchmarking data, share information and learn from services who are achieving the best outcomes
- Service reports: Each individual pain management service receives a report that presents their data and also compares this to aggregated data from all other participating services
Patient Reported Outcome Measures (PROMs)
Adults: Brief Pain Inventory; Depression, Anxiety Stress Scale; Pain Catastrophising Scale; Pain Self-Efficacy Questionnaire; Work Productivity and Activity Impairment Questionnaire; Global Rating of Change scale; CARRA Body Chart.
Paediatrics: Modified Brief Pain Inventory; Faces Pain Scale - Revised; Paediatric Quality of Life Inventory; Bath Adolescent Pain Questionnaire – Pain-related worry section; Bath Adolescent Pain – Parent Impact Questionnaire; Work Productivity and Impairment; CARRA Body Chart.
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
https://www.uow.edu.au/ahsri/eppoc/about/
New South Wales
- Central Coast Integrated Pain Service, Gosford Hospital
- Coffs Harbour Chronic Pain Service
- Concord Repatriation General Hospital, Multidisciplinary Pain Clinic
- Hunter Integrated Pain Service, John Hunter Hospital
- Illawarra Shoalhaven Chronic Pain Service
- Innervate Pain Management
- John Hunter Children’s Hospital, Children’s Complex Pain Service
- Lismore Base Hospital, Pain Clinic
- Liverpool Hospital Chronic Pain Services
- Michael J Cousins Pain Management and Research Centre, Royal North Shore Hospital
- Nepean Blue Mountains Primary Health Network:
- Nepean Blue Mountains PHN Community Chronic Pain Management Program - Nepean Pain Unit
- Orange Chronic Pain Clinic
- Prince of Wales Hospital, Department of Pain Management
- Royal Prince Alfred Pain Management Clinic
- South Eastern NSW Primary Health Network:
- COORDINARE Chronic Pain Management Program - St George Hospital Pain Management Unit
- St Vincent's Hospital Sydney Pain Clinic
- Sydney Children's Hospital Randwick Interdisciplinary Complex Pain Service
- Sydney Spine and Pain Rehab
- Tamworth Integrated Pain Service (TIPS)
- The Children's Hospital at Westmead, Complex Pain Clinic
- Westmead Hospital Pain Management Centre
Queensland
- Gold Coast Health, Interdisciplinary Persistent Pain Centre
- Metro South Health Persistent Pain Management Service, Princess Alexandra Hospital
- North Queensland Persistent Pain Management Service, Townsville Hospital
- Queensland Interdisciplinary Paediatric Persistent Pain Service
- St Vincent's Private Hospital Brisbane
- Sunshine Coast Persistent Pain Management Service
- Tess Cramond Pain and Research Centre
- Wesley Pain and Spine Centre
South Australia
- Adelaide Primary Health Network:
- Living Well with Persistent Pain Centre West - Central Adelaide Local Health Network (CALHN) Queen Elizabeth Hospital
- Flinders Pain Management Unit
- Northern Adelaide Pain Rehabilitation Service, Northern Adelaide Local Health Network, Modbury Hospital
- Women's and Children's Paediatric Chronic Pain Service
Tasmania
- Royal Hobart Hospital, Persistent Pain Service
Victoria
- Advance Healthcare
- Austin Pain Service, Austin Health
- Ballarat Health Services Persistent Pain Management Services
- Barbara Walker Centre for Pain Management, St Vincent's Hospital, Melbourne
- Bendigo Health, Outpatient Rehabilitation Services, Pain Rehabilitation Clinic
- Caulfield Pain Management and Research Centre, Alfred Health
- Dorset Rehabilitation Centre
- Eastern Health Ambulatory Pain Management Service
- Empower Rehab
- Epworth Hospital, Epworth Healthcare
- Goulburn Valley Health Chronic Pain Clinic
- Latrobe Regional Hospital
- Melbourne Health
- Monash Children’s Hospital Pain Service
- Monash Health
- North Western Melbourne Primary Health Network:
- Cohealth
- Merri Health - Northern Health Service
- Peninsula Health Integrated Pain Service, Persistent Pain Management Service
- Precision Ascend
- Royal Children's Hospital Children's Pain Management Clinic, Melbourne
- Royal Women's Hospital
- Victorian Rehabilitation Centre
- Western Health Pain Management
Western Australia
- Fiona Stanley Hospital Pain Management Unit
- Sir Charles Gairdner Hospital
- WA Primary Health Alliance:
- 360 Health + Community
- Arche Health Chronic Pain Service
- Black Swan Health Limited Midland
- Black Swan Health Limited Wanneroo
New Zealand
- Active+
- Advantage South
- APM NZ
- Body in Motion
- Canterbury DHB, Burwood Hospital Pain Management Centre
- Capital and Coast DHB, Wellington Hospital
- Futureproof Rehab
- Habit Rehabilitation
- Hutt Valley District Health Board
- Integrative Pain Care
- Nelson Nursing Service
- Occupational Health Canterbury
- Pain Management & Rehabilitation Services
- Pain Rehabilitation Christchurch
- Proactive Rehab
- Proactive Southern Limited
- QE Health Limited
- Southern DHB Persistent Pain Service, Dunedin Hospital
- Southern Rehab
- Starship Complex Pain Service
- Taranaki DHB Persistent Pain Service
- TBI Health Group
- The Auckland Regional Pain Service DHB (TARPS), Auckland Regional Hospital
- Waikato DHB
Condition
Chronic pain
Name
electronic Persistent Pain Outcomes Collaboration
Lead organisation
Australian Health Services Research Institute (AHSRI)
Ethics approval reference
The University of Wollongong and Illawarra and Shoalhaven Local Health District Health and Medical HREC Reference 018/052
Program area
Preferred published date
Immediately
Prioritised clinical domain
High burden cancers
Abbreviation
PCCR
Registry contact
Serina Teuss, Cancer Institute NSW, Serina.Teuss@health.nsw.gov.au
Year established
2015
Description
The PCCR captures diagnosis, treatment, quality of life and mortality data for men diagnosed with prostate from 1 January 2015 onwards. Only men who have been diagnosed or treated by a participating clinician and hospital across NSW are eligible for recruitment into the registry. The data collected measures the quality of care and provides feedback to consumers and health professionals about the management of prostate cancer in the state.
Reporting process
- Reported in Annual Report
- Shared with clinicians
- Shared with hospital executive
Patient Reported Outcome Measures (PROMs)
The Expanded Prostate Cancer Index Composite (EPIC-26) Short Form - a quality of life questionnaire
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
https://www.cancer.nsw.gov.au/research-and-data/cancer-data-and-statist…
New South Wales
- Armidale Hospital
- Bankstown-Lidcombe Hospital
- Bathurst Base Hospital
- Belmont Hospital
- Blacktown Hospital
- Calvary Mater Hospital
- Campbelltown Hospital
- Chris O’Brien Lifehouse
- Cobar District Hospital
- Coffs Harbour Health Campus
- Coonabarabran District Hospital
- Dubbo Hospital
- Garvan Institute of Medical Research
- Gosford Hospital
- Grafton Base Hospital
- Griffith Hospital
- John Hunter Hospital (Royal Newcastle Centre)
- Lismore Hospital
- Liverpool Hospital
- Macquarie University Hospital
- Maitland Hospital
- Manning Rural Referral Hospital
- Mudgee District Hospital
- Nepean Hospital
- Orange Hospital
- Port Macquarie Base Hospital
- Prince of Wales Hospital
- Riverina Cancer Care Centre
- Royal Prince Alfred Hospital
- Royal North Shore Hospital
- Shoalhaven District Memorial Hospital
- St George Hospital
- St Vincent’s Private Hospital
- St Vincent’s Public Hospital
- Sydney Adventist Hospital
- Tamworth Hospital
- The St Vincent's Prostate Cancer Centre (St Vincent's Clinic)
- Wagga Wagga Base Hospital
- Walgett Health Service
- Westmead Hospital
- Wollongong Hospital
- Wyong Hospital
- Young Hospital
Condition
Prostate cancer
Name
NSW Prostate Clinical Cancer Registry
Lead organisation
Cancer Institute NSW
Ethics approval reference
Cancer Institute NSW HREC reference: 2015/02/578
Program area
Prioritised clinical domain
Nil
Abbreviation
AROC
Registry contact
AROC Director, Australian Health Services Research Institute, University of Wollongong, aroc@uow.edu.au
Year established
2002
Description
AROC is the rehabilitation integrated clinical outcomes and benchmarking centre for Australia and New Zealand. AROC operates in the inpatient and ambulatory settings and includes both adult and paediatric rehabilitation sectors. Coverage in the inpatient adult rehabilitation sector is almost 100%, with 289 services participating in data collection and benchmarking. A growing number of adult ambulatory rehabilitation services are also participating. All specialist paediatric rehabilitation services are participating in both the paediatric inpatient and ambulatory benchmarking initiatives.
The primary purpose of AROC is to facilitate improvement in the quality of rehabilitation and thus patient outcomes achieved. Each member of AROC collects the appropriate defined AROC dataset for each and every episode of rehabilitation care provided. The datasets include demographic, clinical, process and outcome data items. AROC receives data describing almost 150,000 episodes of rehabilitation each year. The longitudinal database currently contains 1.5 million records and is thus a rich resource that forms a spine of rehabilitation data available to underpin research in the sector.
Members of AROC receive a suite of benchmarking reports each six months, comparing the outcomes they achieve with the national data. AROC also holds regular quality forums/benchmarking workshops to present data at service level and facilitate the identification and uptake of best practice processes. As well as publishing an Annual Report describing the state of rehabilitation in each country, AROC provides a range of resources for members including decision support tools and best practice case studies.
Reporting process
- Feedback to contributing clinicians
- Shared with clinicians
- Shared with hospital executive
- Shared with consumers
- Shared with medical colleges
- Reported to state/territory health departments
- Reported in annual report
- Reported in other public reports
- Quality improvement/benchmarking workshops: The purpose of these workshops is to examine the benchmarking data, share information and learn from services who are achieving the best outcomes. Service reports: each individual rehabilitation service receives a suite of reports that presents their data and also compares this to aggregated national data.
Patient Reported Outcome Measures (PROMs)
Planning is underway to introduce a new range of PROMs in future versions of the data collection. A pilot is currently underway.
Patient Reported Experience Measures (PREMs)
The AM-CCRQ is an optional rehabilitation specific patient experience survey that is available for members.
Participating sites
Australian Capital Territory
- Calvary John James Hospital
- Canberra Private Hospital
- National Capital Private Hospital
- University of Canberra Hospital
New South Wales
- Alwyn Rehabilitation Hospital
- Arcadia Pittwater Private Hospital
- Armidale Hospital
- Ballina District Hospital
- Balmain Hospital
- Bankstown-Lidcombe Hospital
- Baringa Private Hospital
- Bathurst Base Hospital
- Belmont Hospital
- Berkeley Vale Private Hospital
- Blue Mountains District ANZAC Memorial Hospital
- Bourke Street Health Service Goulburn
- Braeside Hospital
- Brisbane Waters Private Hospital
- Calvary Health Care Sydney Ltd
- Calvary Riverina Hospital
- Camden Hospital
- Campbelltown Private Hospital
- Coffs Harbour Health Campus
- Coledale Hospital
- Concord Repatriation General Hospital
- David Berry Hospital
- Delmar Private Hospital
- Dubbo Private Hospital
- Dudley Private Hospital
- Eastern Suburbs Private Hospital
- Figtree Private Hospital
- Forster Private Hospital
- Gosford Private Hospital
- Goulburn Base Hospital Sub-Acute Rehabilitation
- Greenwich Hospital
- Hirondelle Private Hospital
- HNEkidsRehab
- Holroyd Private Hospital
- Hornsby Ku-ring-gai Hospital
- Hunter Valley Private Hospital
- Hunters Hill Private Hospital
- John Hunter Hospital (Rankin Park)
- John Hunter Hospital (Royal Newcastle)
- Kareena Private Hospital
- Kempsey District Hospital
- Kurri Kurri Hospital
- Lady Davidson Private Hospital
- Lakeview Private Hospital
- Lawrence Hargrave Private Hospital
- Lingard Private Hospital
- Liverpool Hospital
- Lourdes Hospital & Community Health Service
- Maclean District Hospital
- Maitland Private Hospital
- Manly Waters Private Hospital
- Mater Sydney
- Mayo Private Hospital
- Mercy Care Centre
- Mercy Health Service
- Metropolitan Rehabilitation Hospital
- Minchinbury Community Hospital
- Mona Vale Hospital
- Moruya Hospital
- Mt Wilga Private Hospital
- Murwillumbah District Hospital
- Nepean Hospital
- Newcastle Private Hospital
- Nowra Private Hospital
- Orange Health Service
- Port Kembla Hospital
- Port Macquarie Private Hospital
- President Private Hospital
- Prince of Wales Hospital
- Royal Rehab
- Royal Rehab Private Hospital
- RSL LifeCare Therapy & Lifestyle Service
- Ryde Hospital
- Sacred Heart
- Shellharbour Private Hospital
- Shoalhaven District Memorial Hospital
- Southern Highlands Private Hospital
- Springwood
- St George Hospital (NSW)
- St John of God Hawkesbury District Health Service
- St Joseph's Hospital
- St Luke's Hospital
- St Vincent's Private Hospital Lismore
- St Vincent's Private Sydney Rehabilitation
- Sydney Adventist Hospital
- Sydney Children's Hospital
- Tamara Private Rehabilitation
- Tamworth Hospital
- The Children's Hospital at Westmead
- The Hills Private Hospital
- The Sutherland Hospital
- The Sydney Private Hospital
- Toronto Private Hospital
- Wagga Wagga Base Hospital
- War Memorial Hospital, Waverley
- Waratah Private Hospital
- Warners Bay Private Hospital
- Wauchope District Memorial Hospital
- Westmead Hospital
- Westmead Rehabilitation Hospital
- Wingham Community Hospital
- Wolper Jewish Hospital
- Woy Woy Hospital
- Wyong Hospital
Northern Territory
- Alice Springs Hospital
- Darwin Private Hospital
- Katherine Hospital
- Palmerston Regional Hospital
Queensland
- Brighton Subacute Services
- Brisbane Private Hospital
- Buderim Private Hospital
- Cairns Hospital
- Cairns Private Hospital
- Canossa Private Hospital
- Central West Rehabilitation Service
- Eden Private Hospital
- Gold Coast Private Hospital
- Gold Coast University Hospital
- Greenslopes Private Hospital
- Gympie Hospital
- Ipswich Hospital
- John Flynn - Gold Coast Private Hospital
- Logan Hospital
- Mackay Base Hospital
- Mackay Private Hospital
- Maleny Soldiers Memorial Hospital
- Maryborough Base Hospital
- Mater Health Services North QLD Ltd Rehabilitation Service
- Mater Hospital Mackay
- Mater Misericordiae Hospital Rockhampton
- Mater Private Hospital (Brisbane)
- Mater Private Hospital (Redland)
- Mater Private Hospital Springfield
- Nambour Selangor Private Hospital
- Noosa Private Hospital
- Peninsula Private Hospital
- Princess Alexandra Hospital
- Queensland Paediatric Rehabilitation Service (Queensland Children's Hospital)
- Redcliffe Hospital
- Robina Hospital
- Robina Private Hospital
- Rockhampton Base Hospital
- Roma Hospital
- Royal Brisbane & Women's Hospital (inc Rosemount)
- St Andrew's Ipswich Rehabilitation Services
- St Andrew's War Memorial Hospital
- St Stephen's Private Hospital
- St Vincent's Hospital - Toowoomba
- St Vincent's Private Hospital Brisbane
- Sunshine Coast University Hospital
- Sunnybank Private Hospital
- The Pain Centre of Excellence
- The Prince Charles Hospital
- The Southport Private Hospital
- The Townsville Hospital
- Toowoomba Hospital
- Wesley Hospital
South Australia
- Calvary Adelaide Hospital
- Flinders Medical Centre
- Griffith Rehabilitation Hospital
- Memorial Private Hospital
- Modbury Hospital
- Mount Gambier and Districts Health Service
- Noarlunga Community Hospital
- Repatriation General Hospital
- Riverland Regional Health Service
- Royal Adelaide Hospital (Hampstead)
- The Queen Elizabeth Hospital
- Whyalla Hospital
- Women's and Children's Hospital
Tasmania
- Launceston General Hospital
- Mersey Community Hospital
- North West Regional Hospital
- Royal Hobart Hospital
- Calvary - St John's Hospital
- Calvary - St Vincent's Hospital
Victoria
- Albury Wodonga Health (Wodonga Campus)
- Angliss Hospital
- Bairnsdale Regional Health Service
- Barwon Health - McKellar Centre Campus
- Beleura Private Hospital
- Bendigo Health Care Group
- Broadmeadows Hospital
- Brunswick Private Hospital
- Cabrini Brighton Rehabilitation
- Cabrini Elsternwick Rehabilitation
- Cabrini Hopetoun Rehabilitation
- Cabrini Malvern
- Casey Hospital
- Caulfield Hospital
- Dandenong Hospital
- Donvale Rehabilitation Hospital
- Dorset Rehabilitation Centre
- Echuca Regional Health
- Epworth Camberwell
- Epworth Geelong
- Epworth Hawthorn
- Epworth Hospital (Richmond)
- Epworth Rehabilitation Brighton
- Frankston Rehabilitation Unit
- Goulburn Valley Health (Shepparton Campus)
- Holmesglen Private Hospital
- Kingston Centre
- La Trobe Regional Hospital
- Masada Private Hospital
- Melbourne Eastern Rehabilitation
- Murray Valley Private Hospital
- Northeast Health Wangaratta
- North Eastern Rehabilitation Centre
- Peter James Centre
- Rosebud Hospital
- Royal Melbourne Hospital - Royal Park Campus
- Shepparton Private Hospital
- South Eastern Private Hospital
- South West Health Care Warrnambool
- St George's Health Service
- St John of God Berwick Hospital
- St John of God Frankston Rehabilitation Hospital
- St John of God Geelong Hospital
- St John of God Health Care Bendigo
- St John of God Healthcare, Ballarat
- St John of God Hospital (Warrnambool)
- St Vincent's Hospital (Melbourne) Ltd
- St Vincent's Private Hospital Melbourne Ltd
- St Vincent's Private Hospital Werribee
- Sunshine Hospital
- Swan Hill District Health
- Victorian Paediatric Rehabilitation Services
- Victorian Rehabilitation Centre
- Wangaratta Private Hospital
- Werribee Mercy Hospital
- Western District Health Service, Hamilton
- Western Hospital Footscray
- Williamstown Hospital
- Wimmera Health Care Group Horsham
Western Australia
- Albany Hospital
- Armadale Kelmscott Memorial Hospital
- Attadale Rehabilitation Hospital
- Busselton Health Campus
- Fiona Stanley Hospital
- Fremantle Hospital and Health Service
- Glengarry Hospital
- Hollywood Private Hospital
- Joondalup Health Campus
- Mount Hospital
- Northam Hospital Rehabilitation Service
- Osborne Park Hospital
- Peel Health Campus
- Perth Children's Hospital
- Rockingham General Hospital
- Royal Perth Bentley Group (Bentley Site)
- Sir Charles Gairdner Hospital
- South West Health Campus (Bunbury Hospital)
- St John of God Mount Lawley Hospital (Private)
- St John of God Mount Lawley Hospital (Public)
- St John of God Public & Private Hospital Midland
New Zealand
- ABI Rehabilitation Management Ltd (Auckland)
- ABI Rehabilitation Services Wellington Ltd
- Active Plus
- Ashburton Hospital
- Auckland City Hospital
- Auckland Spinal Rehabilitation Unit
- Balclutha Hospital
- Burwood Hospital
- Cornerstone Rehab Ltd
- Dunedin Hospital OPH
- Dunstan Hospital
- Focus on Potential
- Gisborne Hospital
- Gore Hospital
- Greymouth Base Hospital (West Coast DHB)
- Habit Group Ltd (Auckland)
- Hawera Hospital
- Hawkes Bay Regional Hospital
- Healthvision Ltd
- Horowhenua Hospital
- Hutt Hospital Specialist Rehabilitation Service
- ISIS Centre (Wakari) Hospital
- Kenepuru Community Hospital - Capital Coast Rehabilitation
- Laura Fergusson Trust
- Laura Fergusson Trust Inc (Auckland)
- Masterton Hospital - Wairarapa DHB
- Middlemore Hospital Assessment, Treatment & Rehabilitation Unit
- Nelson Hospital ATR Service
- Neuro Rehab Results Ltd
- New Zealand Paediatric Rehabilitation Service
- North Shore Hospital (Waitemata)
- Oamaru Hospital
- Palmerston North Hospital, Rehabilitation (STAR 2)
- ProActive Rehab Ltd
- Pukekohe Hospital
- Rehab Partners Ltd
- Restart Rehab and Associates Ltd
- Rotorua Hospital (Lakes DHB Hospital Specialist Services)
- Southland Hospital Assessment, Treatment & Rehabilitation Service
- Step Ahead Therapy Services Ltd
- Taranaki Base Hospital
- Taupo Hospital (Lakes DHB Hospital Specialist Services)
- Tauranga Hospital
- TBI Health Group Ltd
- Thames Hospital
- Timaru Hospital
- Waikato Older Persons Rehabilitation Service (OPRS)
- Wairau Hospital Nelson Marlborough DHB
- Waitakere Hospital
- Whakatane Hospital
- Whanganui Hospital AT & R Service
- Whangarei Hospital
Condition
Rehabilitation
Name
Australasian Rehabilitation Outcomes Centre
Lead organisation
Australian Health Services Research Institute
Ethics approval reference
The University of Wollongong and Illawarra and Shoalhaven Local Health District Health and Medical (#HREC 2019/ETH13154)
Program area
Prioritised clinical domain
Nil
Abbreviation
QPPAMRC
Registry contact
Karen Hamilton, Healthcare Improvement Unit, Clinical Excellence Queensland, QPPAMRC@health.qld.gov.au
Year established
2012
Description
The Queensland Perioperative and Periprocedural Anaesthetic Mortality Review Committee (QPPAMRC) is a gazetted Quality Assurance Committee pursuant to Part 6, Division 1 of the Hospital and Health Boards Act 2011.
The Committee reports and provides advice to the Director-General, Queensland Department of Health via an annual report and on a needs basis.
The QPPAMRC was established to:
- Collect and analyse clinical information regarding perioperative and periprocedural anaesthetic mortality in Queensland to identify statewide trends
- Makes recommendations to the Queensland Minister for Health on standards and quality indicators of perioperative and periprocedural anaesthetic clinical care to enable health care providers to review and improve safety and quality of care in Queensland health services
- Assists with the adoption of such standards in both public and private sectors.
The Committee functions collaboratively with the Statewide Anaesthesia and Perioperative Care Clinical Network (SWAPNET), other relevant clinical networks and the Private Hospitals Association of Queensland.
Reporting process
- Annual report provided to the Director-General, Queensland Health (QAC requirement)
- Mortality Review Report developed for every 1000 cases as an opportunity for learning for anaesthetists across Queensland
- Mortality Review Report provided to the Statewide Anaesthesia and Perioperative Care Clinical Network (SWAPNET) for consideration / action as required
- Shared with clinicians
- Shared with medical colleges
Patient Reported Outcome Measures (PROMs)
Nil
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
Queensland
- Atherton Hospital
- Ayr Hospital
- Beaudesert Hospital
- Biloela Hospital
- Bundaberg Hospital
- Caboolture Hospital
- Cairns base Hospital
- Caloundra Hospital
- Charleville Hospital
- Chinchilla Hospital
- Cooktown Hospital
- Dalby Hospital Health Service
- Emerald Hospital
- Gladstone Hospital
- Gold Coast Hospital
- Goondiwindi Hospital
- Gympie Hospital
- Hervey Bay Hospital
- Ingham Hospital
- Innisfail Hospital
- Ipswich Hospital
- Kingaroy Hospital & Community Health Centre
- Logan Hospital
- Longreach Hospital
- Mackay base Hospital
- Mareeba Hospital
- Maryborough Hospital
- Mount Isa Base Hospital
- Nambour General Hospital
- Princess Alexandra Hospital
- Proserpine Hospital
- Queen Elizabeth II Jubilee Hospital
- Redcliffe Hospital
- Redland Hospital
- Rockhampton Base Hospital
- Roma Hospital
- Royal Brisbane & Womens Hospital
- St George Hospital
- Stanthorpe Hospital
- The Prince Charles Hospital
- The Townsville Hospital
- Theodore Hospital
- Thursday Island Hospital
- Toowoomba Hospital
- Warwick Hospital
Condition
Anaesthetics
Name
Queensland Perioperative and Periprocedural Anaesthetic Mortality Review Committee
Lead organisation
Healthcare Improvement Unit, Clinical Excellence Queensland
Ethics approval reference
Quality improvement initiative
The QPPAMRC functions under the authority of the Hospital and Health Boards Act 2011, Part 6, Safety and quality, Division 1 Quality assurance committees, the purpose of which as defined in Section 81, is to improve the safety and quality of health services by providing protections for quality assurance committees established under the division.
The QPPAMRC functions under the authority of the Hospital and Health Boards Act 2011, Part 6, Safety and quality, Division 1 Quality assurance committees, the purpose of which as defined in Section 81, is to improve the safety and quality of health services by providing protections for quality assurance committees established under the division.
Program area
Prioritised clinical domain
Burns
Abbreviation
SBIS registry
Registry contact
Anne Darton, NSW Health - Agency for Clinical Innovation, anne.darton@health.nsw.gov.au
Year established
2004
Description
The SBIS Registry has been established to provide a comprehensive registry of severe burn injuries treated at the three NSW Burns Units: the Children’s Hospital at Westmead, Royal North Shore Hospital and Concord Repatriation General Hospital. Burns patients represent a well defined and distinct subgroup of trauma patients in NSW. Extensive burns are associated with substantial treatment and rehabilitation costs, and many result in permanent disability, highlighting the need to monitor the incidence, management and outcomes of burn injury.
The data collected enables the registry to meet its aims of monitoring, surveillance and clinical evaluation and is critical for:
- Improving service planning for burns patients in NSW
- Informing the development of injury prevention campaigns and strategies
- Developing best practice clinical guidelines and initiatives
- Developing key clinical indicators at a state level
- Monitoring quality and types of care provided to burns patients
- Allowing the generation of reports used in monthly, quarterly and annual audits for the burns service.
Reporting process
- Shared with clinicians
- Shared with consumers
- Shared with hospital executive
Patient Reported Outcome Measures (PROMs)
Nil
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
- Concord Repatriation Hospital
- Royal North Shore Hospital
- The Children’s Hospital at Westmead
Condition
Burn Injuries
Name
NSW Statewide Burn Injury Service Registry
Lead organisation
NSW Agency for Clinical Innovation Statewide Burn Injury Service
Ethics approval reference
Cancer Institute NSW reference: 2015/02/578
Program area
Prioritised clinical domain
Maternity
Abbreviation
ABS-Obstetrics
Registry contact
Karen Hamilton, Healthcare Improvement Unit, Clinical Excellence Queensland, Karen.Hamilton@health.qld.gov.au
Year established
2018
Description
ABS – Obstetrics is a web-accessible data collection tool designed to capture anaesthetic obstetric clinical information within the labour (maternity) and perioperative environments.
The ABS – Obstetrics is clinician driven and has been developed to assist hospitals and health services to achieve clinical practice improvement and provide safer and more satisfying experiences for mothers and babies by:
- Monitoring and measuring performance against agreed standards
- Identifying process deficiencies
- Reducing clinical risk and embed evidence-based practice
- Improving the quality of care
Agreed statewide indicators (based on the Royal College of Anaesthetists, audit recipe of continuous improvement) include:
Epidural:
- % epidural attended within 30 minutes
- % epidural requests attended within 60 minutes
- % epidural resited
- % epidural who sustain an accidental dural puncture
- % epidural that are deemed unsuccessful (composite endpoint)
- % satisfied with epidural
- % epidural providing adequate pain relief within 45 minutes of the epidural being inserted
- % PDPH requiring EBP
Caesarean:
- % category 1 caesarean sections performed within 30 minutes from booking to delivery time
- % category 2 caesarean sections performed within 60 minutes from booking to delivery time
- % category 1 caesarean performed under regional anaesthesia
- % of all emergency caesarean sections performed under regional
- % of all elective caesarean performed under regional
- % of all category 1 caesarean performed under regional that complain of pain
- % of all emergency caesarean performed under regional that complain of pain
- % of all elective caesarean performed under regional that complain of pain
- % category 1 converted from regional to GA
- % emergency caesarean sections converted from regional to GA
- % of elective caesarean sections converted from regional to GA
- % women satisfied with post-op pain relief
Reporting process
- Reported in an annual report
- Shared with clinicians
- Shared with hospital executive
- The Anaesthetic Obstetrics Registry Steering Committee reports through the Statewide Anaesthesia and Perioperative Care Clinical Network (SWAPNet)
Patient Reported Outcome Measures (PROMs)
Nil
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
Queensland
- Atherton Hospital
- Ayr Hospital
- Beaudesert Hospital
- Biloela Hospital
- Bundaberg Hospital
- Caboolture Hospital
- Cairns Base Hospital
- Charleville Hospital
- Chinchilla Hospital
- Cooktown Hospital
- Dalby Hospital Health Service
- Gladstone Hospital
- Gold Coast Hospital
- Goodiwindi Hospital
- Gympie Hospital
- Hervey Bay Hospital
- Ingham Hospital
- Innisfail Hospital
- Ipswich Hospital
- Kingaroy Hospital & Community Health Centre
- Logan Hospital
- Longreach Hospital
- Mackay Base Hospital
- Mareeba Hospital
- Mount Isa Base Hospital
- Nambour General Hospital
- Proserpine Hospital
- Redcliffe Hospital
- Redland Hospital
- Rockhampton Base Hospital
- Roma Hospital
- Royal Brisbane & Womens Hospital
- Royal Brisbane Hospital
- St George Hospital (QLD)
- Stanthorpe Hospital
- The Townsville Hospital
- Thursday Island Hospital
- Toowoomba Hospital
- Warwick Hospital
Condition
Anaesthetic obstetrics
Name
Anaesthetic Benchmarking System - Obstetrics
Lead organisation
Healthcare Improvement Unit, Clinical Excellence Queensland
Ethics approval reference
ABS-Obstetrics is a quality assurance initiative established in accordance with the National Health and Medical Research Council 'Ethical Considerations in Quality Assurance and Evaluation Activities' 2014, Hospital and Health Boards Act 2011, Section 150 - Disclosure for purposes relating to health services and eHealth Architectural and Standard Committee requirements.
Program area
Prioritised clinical domain
Neonatal critical care
Abbreviation
NAIT Registry
Registry contact
Transfusion Research Unit, Monash University, sphpm.transfusion@monash.edu
Year established
2009
Description
The Neonatal Alloimmune Thrombocytopenia (NAIT) Registry is a register of women who develop or have a history of NAIT, and their children, both before and after birth. The registry captures data on the presentation, treatment and clinical outcomes of this rare condition.
Individual NAIT patients require considerable support, with high diagnostic needs and high transfusion requirements, often with special products. The NAIT registry was established to address evidence gaps in the treatment, management and outcome of Australian NAIT cases, and to support hypothesis-driven research in this area.
Patients who have been diagnosed with (and/or managed as suspected) NAIT are eligible for inclusion in the registry. They may be identified by treating clinicians from participating hospitals or registry staff, or based on laboratory data provided by the Australian Red Cross Blood Service. Patients may also identify themselves to the registry. Patients are not excluded unless they choose to ‘opt-off’ the registry, as explained in the study brochure and opt-off information.
Routinely collected information in the diagnosis and treatment of NAIT is entered into a web-based data collection form. Clinical data collection is undertaken by clinicians and some laboratory data by the Blood Service. Data management and analysis is undertaken by the Monash University Department of Epidemiology and Preventive Medicine.
Reporting process
- Shared with clinicians
- Periodic newsletters
- Presentations at local and national scientific meetings
- Publications in the peer-reviewed literature
Patient Reported Outcome Measures (PROMs)
Nil
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
Australian Capital Territory
- Canberra Hospital
Victoria
- Barwon Health
- Epworth HealthCare
- Mercy Hospital for Women
- Monash Medical Centre
- Royal Children's Hospital
- Royal Women's Hospital
- Sunshine Hospital (Western Health)
New South Wales
- Children's Hospital Westmead
- John Hunter Hospital
- Liverpool Hospital
- Nepean Hospital
- Royal Hospital for Women
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- St George's Public Hospital
- Sydney Adventist Hospital
- Westmead Hospital
- Wollongong Hospital
Queensland
- Royal Brisbane & Women’s Hospital
- Royal Children's Hospital Brisbane (Herston)
- Mater Mother's Hospital
- Townsville Hospital
Northern Territory
- Royal Darwin Hospital
Western Australia
- Fiona Stanley Hospital
- King Edward Memorial Hospital
- Royal Perth Hospital
South Australia
- Flinders Medical Centre
- Women's and Children's Hospital
Tasmania
- Royal Hobart Hospital
Condition
Fetal and Neonatal Alloimmune Thrombocytopenia
Name
Neonatal Alloimmune Thrombocytopenia Registry
Lead organisation
Monash University
Ethics approval reference
Monash Health Human Research Ethics Committee Reference: HREC/56750/MonH2019-186606(v1)
Program area
Prioritised clinical domain
High burden cancers
Abbreviation
MDSlink
Registry contact
Transfusion Research Unit, Monash University, sphpm.transfusion@monash.edu
Year established
2018
Description
The aims of the MDS Registry are to:
- Monitor access to care
- Benchmark outcomes nationally and internationally
- Explore variation in practice, process and outcomes
- Monitor trends in incidence and survival
- Explore the factors that influence outcomes including survival and quality of life
- Be a resource for clinical trials and further research – MDS Registry data on patterns of treatment and variation in patient outcomes allows evaluation of advances in therapy outside the setting of clinical trials, and will enable provision of the best possible care to people with MDS
Reporting process
- Feedback to contributing clinicians
Patient Reported Outcome Measures (PROMs)
Nil
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
- Cabrini Hospital Melbourne
- Monash Health
- Austin Hospital
- Royal Adelaide Hospital
Condition
Myelodysplastic Syndrome
Name
Myelodysplastic Syndrome Registry
Lead organisation
Monash University
Ethics approval reference
Monash Health Human Research Ethics Committee Reference: HREC/18/MonH/341
Program area
Prioritised clinical domain
High burden cancers
Abbreviation
PCOR-ANZ
Registry contact
Marie Pase, Monash University, marie.pase@monash.edu and pcor-anz@monash.edu
Year established
2012
Description
PCOR-ANZ (Prostate Cancer Outcomes Registry - Australia and New Zealand) is a large-scale prostate cancer registry that collects information on the care provided and the outcomes for men diagnosed with prostate cancer in Australia and New Zealand. Clinical and patient-reported data are collected within Australian jurisdictions and in New Zealand.
Our purpose is to monitor; benchmark and report on prostate cancer treatment and care; provide risk adjusted, evidence based data to clinicians, hospitals and decision makers on prostate cancer management. Additionally, the registry aims to foster improved quality of treatment and care for men diagnosed with prostate cancer and research leading to improvement in care and survival and enabling comparisons across countries.
Reporting process
- Reported in an annual report
- Shared with clinicians
- Shared with hospital executive
Patient Reported Outcome Measures (PROMs)
Expanded Prostate cancer Index Composite Short Form (EPIC-26) - Quality of Life, EORTC QLQ –PR25 and questions from the utilisation of sexual medications/devices (Libido questions only) questionnaire
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
https://prostatecancerregistry.org/whos-involved/
Hospitals are listed below. Please click on the link above for a list of clinicians involved.
Australian Capital Territory
- Barton Private Hospital
- Calvary Bruce Private Hospital
- Calvary Public Hospital Bruce
- Canberra Private Hospital
- Icon Cancer Centre Canberra
- National Capital Private Hospital
- Calvary John James Hospital
- Canberra Hospital
Victoria
- Alfred Hospital (Alfred Health)
- Alfred Radiation Oncology (Alfred Health)
- Angliss Hospital (Eastern Health)
- Austin Hospital (Austin Health)
- Bairnsdale Regional Health Service
- Ballarat Health Service
- Bass Coast Health
- Beleura Private Hospital (Ramsay Health Care)
- Bendigo Health
- Box Hill Hospital (Eastern Health)
- Broadmeadows Hospital (Northern Health)
- Cabrini Hospital Brighton
- Cabrini Hospital Malvern
- Casey Hospital (Monash Health)
- Caulfield Hospital (Alfred Health)
- Central Gippsland Health Service
- Colac Area Health
- Craigieburn Centre (Northern Health)
- Dandenong Hospital (Monash Health)
- Echuca Regional Health
- Epworth Eastern
- Epworth Freemasons
- Epworth Geelong
- Epworth Hawthorn
- Epworth Richmond
- Footscray Hospital (Western Health)
- Frankston Hospital (Peninsula Health)
- GenesisCare Albury Wodonga
- GenesisCare Berwick
- GenesisCare Cabrini
- GenesisCare Epping
- GenesisCare Footscray
- GenesisCare Frankston
- GenesisCare Ringwood
- GenesisCare St Vincent's
- Gippsland Radiation Oncology
- Gippsland Southern Health Service
- Goulburn Valley Health
- Healesville Hospital (Eastern Health)
- Heidelberg Repatriation Hospital (Austin Health)
- Kerang and District Health
- Kyabram District Health Services
- Kyneton District Health Service
- Latrobe Regional Hospital
- Linarce Private Hospital (Ramsay Health Care)
- Maroondah Hospital (Eastern Health)
- Maryvale Private Hospital
- Masada Private Hospital
- Mildura Base Hospital
- Mildura Private Hospital
- Mitcham Private Hospital (Ramsay Health Care)
- Monash Medical Centre Clayton (Monash Health)
- Moorabbin Hospital (Monash Health)
- Mulgrave Private Hospital
- Northern Hospital Epping (Northern Health)
- Peninsula Private Hospital (Ramsay Health Care)
- Peter MacCallum Cancer Centre - Bendigo
- Peter MacCallum Cancer Centre - Box Hill
- Peter MacCallum Cancer Centre - Moorabbin
- Peter MacCallum Cancer Centre - Parkville
- Peter MacCallum Cancer Centre - Sunshine
- Portland District Health
- Rochester and Elmore District Health Service
- Rosebud Hospital (Peninsula Health)
- Royal Melbourne Hospital (Melbourne Health)
- Sandringham Hospital (Alfred Health)
- Shepparton Private Hospital (Ramsay Health Care)
- South Gippsland Hospital
- South West Healthcare (Warrnambool Base Hospital)
- St John of God - Ballarat
- St John of God - Bendigo
- St John of God - Geelong
- St John of God - Warrnambool
- St Vincent's Hospital Melbourne
- Sunshine Hospital (Western Health)
- Swan Hill District Hospital
- The Avenue Private Hospital (Ramsay Health Care)
- The Bays Private Hospital
- University Hospital Geelong
- Wangaratta Private Hospital (Ramsay Health Care)
- Wantirna Health (Eastern Health)
- Warringal Private Hospital (Ramsay Health Care)
- Waverley Private Hospital (Ramsay Health Care)
- West Gippsland Healthcare Group
- Western District Health Service
- Williamstown Hospital (Western Health)
- Yarra Ranges Health (Eastern Health)
New South Wales
- Armidale Rural Referral Hospital
- Bankstown-Lidcombe Hospital
- Bathurst Base Hospital
- Belmont Hospital
- Blacktown Hospital
- Calvary Mater Hospital
- Campbelltown Hospital
- Chris O'Brien Lifehouse
- Cobar District Hospital
- Coffs Harbour Health Campus
- Coonabarabran District Hospital
- Dubbo Base Hospital
- Garvan Institute (St Vincent's Clinic)
- Gosford Hospital
- Grafton Base Hospital
- Griffith Hospital
- John Hunter Hospital (Royal Newcastle Centre)
- Lismore Base Hospital
- Liverpool Hospital
- Macquarie University Hospital
- Maitland Hospital
- Manning Rural Referral Hospital
- Mudgee District Hospital
- Nepean Hospital
- Orange Health Service
- Port Macquarie Base Hospital
- Prince of Wales Hospital
- Riverina Cancer Care Centre
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- Shoalhaven District Memorial Hospital
- St George Hospital
- St Vincent’s Hospital Sydney
- St Vincent’s Private Hospital
- Sydney Adventist Hospital
- Tamworth Rural Referral Hospital
- The St Vincent's Prostate Cancer Centre (St Vincent's Clinic)
- Wagga Wagga Base Hospital
- Walgett Health Service
- Westmead Hospital
- Wollongong Hospital
- Wyong Hospital
- Young Hospital
Queensland
- Bayside Urology - Private
- Bowes Urology
- Brisbane Private Hospital
- Brisbane Prostate Clinic
- Brisbane Urology Clinic
- Buderim Private Hospital
- Cairns Hospital
- Coastal Urology Clinic
- Dr Kenneth P'ng Private Practice
- Dr Kenny Rao Urology
- East Coast Urology
- Genesis Care
- Gold Coast Private Hospital
- Gold Coast University Hospital
- Gold Coast Urology
- Greenslopes Private Hospital
- Greenslopes Urology Clinic
- Ipswich Hospital
- Ipswich Urology
- Jamie Reynolds Urology
- Jo Schoeman Urology
- Mackay Base Hospital
- Mackay Urology
- Mater Hospital Brisbane
- Mater Hospital Mackay
- Mater Private Hospital Townsville
- Northern Urology
- Northern Urology Clinic
- Oceanside Urology
- Patrick Dunne Urology
- Pioneer Urology
- Princess Alexandra Hospital
- QE II Jubilee Hospital
- Queensland Prostate Clinic
- Redcliffe Hospital
- Rockhampton Hospital
- Royal Brisbane and Women’s Hospital
- St Andrew's Hospital Toowoomba
- St Vincent's Private Hospital Northside
- Sunshine Coast Urology Clinic
- The Prostate Clinic (Gold Coast)
- Toowoomba Base Hospital
- Toowoomba Urology
- Townsville Hospital
- Townsville Urology
- UroBriz
- UroMed
- Watson Urology
- Wesley Hospital
- Wesley Urology Clinic
Northern Territory
- Alice Springs Hospital
- Darwin Private Hospital
- Royal Darwin Hospital
South Australia
- Ashford Hospital
- Calvary Central Districts Hospital
- Calvary North Adelaide Hospital
- Flinders Medical Centre
- Flinders Private Hospital
- Genesis Care - Calvary Central Districts Hospital
- Genesis Care - Flinders Private Hospital
- Genesis Care - St Andrew's Hospital
- Genesis Care - Tennyson Centre
- Lyell McEwin Hospital
- Modbury Hospital
- Naracoorte Hospital
- Noarlunga Hospital
- Royal Adelaide Hospital
- St Andrew's Hospital
- The Queen Elizabeth Hospital
- Western Hospital
Tasmania
- Calvary Hospital – Lenah Valley Campus, Hobart
- Calvary Hospital – St John’s Campus, Hobart
- Calvary Hospital – St Luke’s Campus, Launceston
- Calvary Hospital – St Vincent’s Campus, Launceston
- Hobart Private Hospital
- Launceston General Hospital
- North Tas Urology - Launceston
- Royal Hobart Hospital
- Tamar Urology
New Zealand
- Andy Malcolm Urology
- Auckland District Health Board
- Canterbury District Health Board
- Capital and Coast District Health Board
- Counties Manukau District Health Board
- Hawke Urology
- Hawke's Bay District Health Board
- Hutt Valley District Health Board
- Lakes District Health Board
- Merrilees Dawson Ltd
- MidCentral District Health Board
- Mischel Neill Urology
- Nelson Marlborough District Health Board
- North Shore Urology
- Northland District Health Board
- OneSixOne
- South Canterbury District Health Board
- Southern District Health Board
- Southern Urology
- Taranaki District Health Board
- UA Central Otago
- Urology Associates
- Urology BOP
- Urology Care Wellington
- Waikato District Health Board
- Wairarapa District Health Board
- Waitemata District Health Board
- West Coast District Health Board
- Whanganui District Health Board
Condition
Prostate Cancer
Name
Prostate Cancer Outcomes Registry - Australia and New Zealand
Lead organisation
Monash University
Ethics approval reference
Monash University Human Research Ethics Committee Reference: 21692
Program area
Prioritised clinical domain
Trauma
Abbreviation
VSTR
Registry contact
Professor Belinda Gabbe, Monash University, belinda.gabbe@monash.edu
Year established
2001
Description
The 1999 Review of Trauma and Emergency Services (ROTES) report recognised that an effective trauma system requires formal monitoring and feedback processes. It recommended a state trauma registry be established to ascertain the effectiveness of the system and to provide ongoing monitoring of major trauma patients.
The Victorian State Trauma System (VSTS) was introduced to improve the delivery of trauma care in this state. The Victorian State Trauma Registry (VSTR) has enabled monitoring and analysis of the VSTS to critically review trauma care across the state with the aim of reducing preventable deaths and permanent disability from major trauma.
Reporting process
Feedback to health services through Department of Health (Victoria) Case Review Group and State Trauma Advisory Committee.
Patient Reported Outcome Measures (PROMs)
The registry monitors collects PROMs at six, 12 and 24 months following injury.
- Function – Extended Glasgow Outcome Scale (GOS-E)
- Health-related quality of life – EQ-5D-5L
- Disability - WHO Disability Assessment Schedule
- Pain – Numerical Rating Scale
- Return to work and work disability
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
https://www.monash.edu/__data/assets/pdf_file/0011/1402121/VSTORM_Contributing-Health-Services.pdf
Victoria
- Albury Wodonga Health: Albury Base Hospital
- Albury Wodonga Health (Wodonga)
- Alfred Health: The Alfred
- Alexandra District Hospital
- Alpine Health (Bright)
- Alpine Health (Mt Beauty)
- Alpine Health (Myrtleford)
- Austin Health: Austin Hospital
- Bairnsdale Regional Health Service
- Ballan District Health and Care
- Ballarat Health Services: Ballarat Base Hospital
- Balmoral Bush Nursing Centre
- Barwon Health: The Geelong Hospital
- Bass Coast Regional Health (Wonthaggi)
- Bayside Health: Sandringham and District Memorial Hospital
- Beaufort and Skipton Health Service (Beaufort)
- Beaufort and Skipton Health Service (Skipton)
- Beechworth Health Service
- Benalla and District Memorial Hospital
- Bendigo Health Care Group: Bendigo Hospital
- Boort District Health
- Buchan Bush Nursing Centre
- Cann Valley Bush Nursing Centre
- Casterton Memorial Hospital
- Castlemaine Health (Mt Alexander)
- Central Gippsland Health Service (Sale)
- Cobden District Health Service
- Cobram District Hospital
- Cohuna District Hospital
- Colac Area Health (Birregurra Community Health Centre)
- Colac Area Health (Colac)
- Dargo Bush Nursing Centre Inc.
- Dartmoor and District Bush Nursing Centre Inc.
- Dingee Bush Nursing Centre Inc.
- Djerriwarrh Health Services (Bacchus Marsh)
- Dunmunkle Health Services (Rupanyup)
- East Grampians Health Service (Ararat)
- East Wimmera Health Service (Birchip)
- East Wimmera Health Service (Charlton)
- East Wimmera Health Service (Donald)
- East Wimmera Health Service (St Arnaud)
- East Wimmera Health Service (Wycheproof)
- Eastern Health: Box Hill Hospital
- Eastern Health: Maroondah Hospital
- Eastern Health: The Angliss Health Services
- Echuca Regional Health
- Edenhope and District Memorial Hospital
- Elmhurst Bush Nursing Centre
- Ensay Bush Nursing Service Inc
- Epworth Hospital
- Euroa Health Inc.
- Falls Creek Medical Centre
- Gelantipy District Bush Nursing Centre
- Gippsland Southern Health Service (Korumburra)
- Gippsland Southern Health Service (Leongatha)
- Goulburn Valley Health (Shepparton)
- Heathcote Health (McIvor)
- Hepburn Health Service (Creswick)
- Hepburn Health Service (Daylesford)
- Hesse Rural Health Service (Beeac)
- Hesse Rural Health Service (Rokewood)
- Hesse Rural Health Service (Winchelsea)
- Heyfield Hospital Inc
- Heywood Rural Health
- Inglewood and Districts Health Service
- Kerang and District Hospital
- Kilmore and District Hospital
- Knox Private Hospital
- Kyabram and District Health Service
- Kyneton District Health Service
- Lake Bolac Bush Nursing Centre
- Latrobe Regional Hospital
- Lockington and District Bush Nursing Centre Inc.
- Lorne Community Hospital
- Maldon Hospital
- Mallee Track Health and Community Service
- Maryborough District Health Service
- Mansfield District Hospital
- Mercy Public Hospitals Inc: The Mercy Hospital Werribee
- Mildura Base Hospital
- Moyne Health Services (Port Fairy)
- Mt Buller Medical Centre
- Mt Hotham Medical Centre
- Nagambie Medical Centre
- Nathalia District Hospital
- Neerim District Soldiers Memorial Hospital
- Northeast Health Wangaratta
- Northern Health: The Northern Hospital
- Numurkah District Health Service
- Omeo District Hospital
- Orbost Regional Health
- Otway Health and Community Service (Apollo Bay)
- Peninsula Health: Frankston Hospital
- Peninsula Health: Rosebud Hospital
- Portland District Health
- Robinvale District Hospital and Health Service
- Rochester and Elmore District Health Service
- Rural Northwest Health (Hopetoun)
- Rural Northwest Health (Warracknabeal)
- Seymour District Memorial Hospital
- Sisters of Charity Health Service Melbourne: St Vincent’s Hospital
- St John of God Hospital Ballarat
- Stawell Regional Health
- South Gippsland Hospital (Foster)
- South West Health Care (Camperdown Campus)
- South West Health Care (Lismore)
- South West Health Care (Warrnambool Campus)
- Southern Health: Monash Medical Centre, Casey Campus
- Southern Health: Monash Medical Centre, Clayton Campus
- Southern Health: Monash Medical Centre, Moorabbin Campus
- Southern Health: Dandenong Hospital
- Swan Hill District Health
- Swifts Creek Bush Nursing Centre Inc.
- Tallangatta Health Service
- Terang and Mortlake Health Service (Mortlake)
- The Royal Children’s Hospital
- The Royal Melbourne Hospital
- Timboon and District Healthcare Service
- Upper Murray Health and Community Services (Corryong)
- Violet Town Bush Nursing Centre
- Walwa Bush Nursing Centre
- West Gippsland Healthcare Group (Warragul)
- West Wimmera Health Service (Jeparit)
- West Wimmera Health Service (Kaniva)
- West Wimmera Health Service (Nhill)
- West Wimmera Health Service (Rainbow)
- Western District Health Service (Hamilton)
- Western District Health Service (Merino)
- Western District Health Service (Penshurst)
- Western Health: Sunshine Hospital
- Western Health: Williamstown Hospital
- Western Health: Western Hospital
- Wimmera Health Care Group (Dimboola)
- Wimmera Health Care Group: Wimmera Base Hospital
- Woomelang Bush Nursing Centre
- Yarram and District Health Service
- Yarrawonga District Health Service
- Yea and District Memorial Hospital
Condition
Trauma
Name
Victorian State Trauma Registry
Lead organisation
Department of Health (Victoria)
Ethics approval reference
Department of Health (Victoria) HREC 11-14
Program area
Preferred published date
Immediately
Prioritised clinical domain
Ischaemic Heart Disease
Abbreviation
Nil
Registry contact
Nicole Packham, NSW Ambulance, nicole.packham@health.nsw.gov.au
Year established
2017
Description
The Registry includes all patients with out-of-hospital cardiac arrest (OHCA) who were attended by NSW Ambulance clinicians since 1 January 2017. The data collected from clinical and operational records describe the pre-hospital links in the cardiac arrest 'chain of survival' (the series of steps that gives patients the best chance of surviving an OHCA). Record linkage with the NSW Registry of Births, Deaths and Marriages provides data on survival and interviews with survivors at 12 examine quality of life.
The key data fields are based on the Utstein template, which was developed to promote uniform presentation of OHCA survival data across different regions of the world. The outcomes measured are survival to hospital; survival at 30 days and quality of life at 12 months post arrest.
Key aims include: to improve service-level performance and patient safety by enhancing the quality, accessibility and timing of the information that is available to clinical decision-makers; to support research that may inform OHCA guidelines; to measure the long-term impact of OHCA on patients’ quality-of-life and functional capacity and to participate in the Australian Resuscitation Outcomes Consortium (Aus-ROC). Au-ROC is an epistry (epidemiological registry) that combines and compares data from OHCA registries in Australia and New Zealand to increase the understanding of the intra-regional, ambulance service and treatment factors that are associated with improved OHCA survival and outcomes.
Reporting process
- Reported in annual report
- Shared with clinicians
- NSW Productivity Commission's Report on Government Services
Patient Reported Outcome Measures (PROMs)
Quality of life measures via telephone interviews at 12 months
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
Not applicable
Condition
Out-of-hospital Cardiac Arrest (OHCA)
Name
NSW Ambulance Cardiac Arrest Registry
Weblink
Nil
Lead organisation
NSW Ambulance
Ethics approval reference
NSW Population & Health Services Research Ethics Committee 2019/ETH00229
Program area
Prioritised clinical domain
Musculoskeletal disorders
Abbreviation
AOANJRR
Registry contact
Kathy Hill, khill@aoanjrr.org.au
Year established
1999
Description
The AOANJRR is a national Quality Improvement Program to audit the outcome of joint replacement in Australia. It is an initiative of the Australian Orthopaedic Association (AOA) and is permanently funded by the Commonwealth Government. It was established in 1999 and is listed as a Declared Quality Assurance Activity under section 124X of the Health Insurance Act 1973 (QAA 3/2017). The specific objectives are:
- Establish demographic data related to joint replacement surgery
- Determine regional variation in practice of joint surgery
- Identify the demographic and diagnostic characteristics of patients that effect outcomes
- Analyses the effectiveness of difference prostheses and treatment to specific diagnoses
- Evaluate the effectiveness of the large variety of prostheses currently on the market by analysing their survival rates
- Educate orthopaedic surgeons on the most effective prostheses and techniques to improve patient outcomes
- Provide surgeons with an auditing facility, information that can instigate tracking of patients if necessary.
Reporting process
- Reported in an annual report
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Shared with hospital executive
- Feedback to contributing clinicians
- Reported to State/Territory health departments
Patient Reported Outcome Measures (PROMs)
Standard PROMs collected by the AOANJRR pre-operative and 6 months post-operative
- EQ5D5L
- HOOS/KOOS (mid level)
- Oxford Hip, Knee, Shoulder
Additional PROMs for Registry Nested Clinical Trials
- Forgotten Joint Score
- HOOS Junior
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
Australian Capital Territory
- Calvary John James Memorial Hospital
- Calvary Public Hospital
- Canberra Private Hospital
- Calvary Bruce Private Hospital
- The Canberra Hospital
- The National Capital Private
Victoria
- Austin Health
- Bairnsdale Regional Health Service
- Ballarat Day Procedure Centre
- Ballarat Health Service
- Bass Coast Regional Health
- Beleura Private Hospital
- Bellbird Private Hospital
- Bendigo Health Care Group
- Box Hill Hospital
- Broadmeadows Hospital
- Cabrini Private Hospital, Brighton
- Cohuna District Hospital
- Colac Area Health
- Dandenong Hospital
- Djerriwarrh Health Services Bacchus Marsh Campus
- East Grampians Health Service
- Echuca Regional Health
- Epping Private Hospital
- Epworth Eastern Hospital
- Epworth Freemasons
- Epworth Geelong
- Epworth Richmond
- Essendon Private Hospital
- Frankston Private Hospital
- Footscray Hospital
- Frankston Hospital
- Glenferrie Private Hospital
- Goulburn Valley Health
- Hamilton Base Hospital
- Holmesglen Private Hospital
- John Fawkner Hospital
- Kyabram District Health Service
- Knox Private Hospital
- Latrobe Regional Hospital
- Linacre Private Hospital
- Maroondah Hospital
- Maryvale Private Hospital
- Masada Private Hospital
- Melbourne Private Hospital
- Mildura Base Hospital
- Mildura Private Hospital
- Mitcham Private Hospital
- Monash Medical Centre Clayton Campus
- Moorabbin Hospital
- Mulgrave Private Hospital
- Northeast Health Wangaratta
- Northpark Private Hospital
- Peninsula Private Hospital
- Portland Hospital
- Ringwood Private Hospital
- Sandringham Hospital
- Seymour District Memorial Hospital
- Shepparton Private Hospital
- South West Health Care Warrnambool Campus
- St John of God Ballarat Hospital
- St John of God Bendigo Hospital
- St John of God Berwick Hospital
- St John of God Geelong Hospital
- St John of God Warrnambool Hospital
- St Vincent’s Private East Melbourne
- St Vincent’s Private Fitzroy
- St Vincent’s Private Kew
- St Vincents Public Hospital
- St Vincent's Private Werribee
- Stawell Regional Health
- Sunshine Hospital
- Swan Hill District Health
- The Alfred
- The Avenue Hospital
- The Bays Hospital
- The Melbourne Eastern Private Hospital
- The Northern Hospital
- The Royal Children's Hospital
- The Royal Melbourne Hospital
- University Hospital Geelong Barwon Health
- Vermont Private Hospital
- Wangaratta Private Hospital
- Warringal Private Hospital
- Waverley Private Hospital
- Werribee Mercy Hospital
- West Gippsland Healthcare Group
- West Wimmera Health Service
- Western Private Hospital
- Williamstown Hospital
- Wimmera Health Care Group
New South Wales
- Albury Base Hospital
- Albury Wodonga Private Hospital
- Armidale Hospital
- Armidale Private Hospital
- Auburn Health Service
- Bankstown/Lidcombe Hospital
- Baringa Private Hospital
- Bathurst Base Hospital
- Bathurst Private Hospital
- Belmont Hospital
- Blacktown Hospital
- Bowral and District Hospital
- Brisbane Waters Private Hospital
- Bowral and District Hospital
- Broken Hill Health Service
- Calvary Health Care Riverina
- Campbelltown Hospital
- Campbelltown Private Hospital
- Canterbury Hospital
- Chris O'Brien Lifehouse
- Coffs Harbour Health Campus
- Concord Repatriation Hospital
- Dalcross Adventist Hospital
- Delmar Private Hospital
- Dubbo Base Hospital
- Dubbo Private Hospital
- Dudley Private Hospital
- East Sydney Private Hospital
- Fairfield Hospital
- Forster Private Hospital
- Gosford Hospital
- Gosford Private Hospital
- Goulburn Base Hospital
- Grafton Base Hospital
- Hawkesbury District Health Service
- Holroyd Private Hospital
- Hornsby Ku-Ring-Gai Hospital
- Hunter Valley Private Hospital
- Hurstville Private Hospital
- Insight Clinic Private Hospital
- Inst of Rheum & Orthopaedic Surgery
- John Hunter Hospital
- Kareena Private Hospital
- Kogarah Private Hospital
- Lake Macquarie Private Hospital
- Lakeview Private Hospital
- Lingard Private Hospital
- Lismore Base Hospital
- Liverpool Health Service
- Macquarie University Hospital
- Maitland Hospital
- Maitland Private Hospital
- Manning Rural Referral Hospital
- Mayo Private Hospital
- Mount Druitt Hospital
- Murwillumbah District Hospital
- Nepean Hospital
- Nepean Private Hospital
- Newcastle Private Hospital
- North Shore Private Hospital
- Northern Beaches Hospital
- Norwest Private Hospital
- Nowra Private Hospital
- Orange Health Service
- Port Macquarie Base Hospital
- Port Macquarie Private Hospital
- Royal Newcastle Centre
- Royal North Shore Hospital
- Royal Prince Alfred Hospital
- Ryde Hospital
- Shellharbour Private Hospital
- Shoalhaven District Memorial Hospital
- South East Regional Hospital
- Southern Highlands Hospital
- St George Hospital
- St George Private Hospital
- St Lukes Care
- St Vincent’s Private Community Hospital Griffith
- St Vincents Private Hospital Darlinghurst
- St Vincents Private Hospital Lismore
- St Vincents Public Hospital
- Strathfield Private Hospital
- Sutherland Hospital
- Sydney Adventist Private Hospital
- Sydney Private Hospital
- Sydney South West Private Hospital
- Tamara Private Hospital
- Tamworth Base Hospital
- The Children's Hospital Westmead
- The Mater Hospital
- The Prince of Wales Hospital
- The Prince of Wales Private Hospital
- Toronto Private Hospital
- Tuggerah Lakes Private Hospital
- Tweed Hospital
- Wagga Wagga Base Hospital
- Waratah Private Hospital
- Warners Bay Private Hospital
- Westmead Private Hospital
- Westmead Public Hospital
- Wollongong Hospital
- Wollongong Private Hospital
- Wyong Hospital
Queensland
- Brisbane Private Hospital
- Bundaberg Base Hospital
- Buderim Private Hospital
- Caboolture Private Hospital
- Cairns Base Hospital
- Cairns Private Hospital
- Friendly Societys Hospital Bundaberg
- Gold Coast Hospital, Robina Campus
- Gold Coast Private Hospital
- Gold Coast University Hospital
- Greenslopes Private Hospital
- Hervey Bay Hospital
- Hervey Bay Surgical Centre
- Hillcrest Private Hospital, Rockhampton
- Ipswich Hospital
- John Flynn Hospital, Tugun
- Logan Hospital
- Mackay Base Hospital
- Maryborough Hospital
- Mater Health Services North Queensland
- Mater Hospital Brisbane
- Mater Misericordiae Hospital, Bundaberg
- Mater Misericordiae Hospital, Gladstone
- Mater Misericordiae Hospital, Mackay
- Mater Misericordiae Hospital, Rockhampton
- Mater Private Hospital Brisbane
- Mater Private Hospital Redland
- Mater Private Hospital Springfield
- Nambour General Hospital
- Nambour Selangor Private Hospital
- Noosa Hospital
- North West Private Hospital
- Peninsula Private Hospital
- Pindara Private Hospital
- Prince Charles Hospital
- Princess Alexandra Hospital
- Queen Elizabeth II Jubilee Hospital
- Queensland Children’s Hospital
- Redcliffe Hospital
- Redland Public Hospital
- Rockhampton Base Hospital
- Royal Brisbane and Women's Hospital
- Sunshine Coast University Hospital
- St Andrews Hospital, Toowoomba
- St Andrews Private Hospital, Ipswich
- St Andrews War Memorial Hospital, Spring Hill
- St Stephen's Private Hospital
- St Vincent’s Private Hospital Northside
- St Vincents Hospital
- Sunnybank Private Hospital
- Sunshine Coast University Hospital
- Sunshine Coast University Private Hospital
- Toowoomba Hospital
- Townsville Hospital
- Wesley Hospital
Northern Territory
- Alice Springs Hospital
- Darwin Private Hospital
- Royal Darwin Hospital
Western Australia
- Albany Regional Hospital
- Armadale Health Service
- Bethesda Hospital
- Bethesda Hospital
- Bethesda Hospital
- Bunbury Regional Hospital
- Busselton Health Campus
- Fiona Stanley Hospital
- Fremantle Hospital
- Geraldton Hospital
- Hollywood Private Hospital
- Joondalup Health Campus
- Kalgoorlie Health Campus
- Mount Hospital
- Osborne Park Hospital
- Peel Health Campus
- Rockingham General Hospital
- Royal Perth Hospital
- Sir Charles Gairdner Hospital
- St John of God Bunbury Hospital
- St John of God Geraldton Hospital
- St John of God Midland Hospital
- St John of God Mt Lawley Hospital
- St John of God Murdoch Hospital
- St John of God Subiaco Hospital
- Waikiki Private Hospital
South Australia
- Ashford Community Hospital
- Burnside War Memorial Hospital
- Calvary Adelaide Hospital
- Calvary Central Districts Hospital
- Calvary North Adelaide Hospital
- Clare Hospital and Health Services
- Flinders Medical Centre
- Flinders Private Hospital
- Gawler Health Services
- Glenelg Community Hospital
- Lyell McEwin Hospital
- Modbury Public Hospital
- Mount Barker District Soldiers Memorial Hospital
- Mount Gambier Hospital
- Murray Bridge Soldiers Memorial Hospital
- Naracoorte Health Service
- Noarlunga Hospital
- North Eastern Community Hospital
- Parkwynd Private Hospital
- Port Augusta Hospital
- Port Lincoln Hospital
- Port Pirie Regional Health Service
- Queen Elizabeth Hospital
- Riverland General Hospital
- Royal Adelaide Hospital
- South Coast District Hospital
- Sportsmed SA
- St Andrews Private Hospital
- Stirling District Hospital
- The Memorial Hospital
- Western Hospital
- Whyalla Hospital and Health Service
- Women's and Children's Hospital
Tasmania
- Calvary Health Care St Lukes
- Calvary Health Care, St Johns
- Calvary Hospital
- Hobart Private Hospital
- Launceston General Hospital
- North-West Private Hospital
- North West Regional Hospital, Burnie Campus
- Royal Hobart Hospital
Condition
Orthopaedic Joint Replacement
Name
Australian Orthopaedic Association National Joint Replacement Registry
Weblink
Lead organisation
Australian Orthopaedic Association
Ethics approval reference
Declared Quality Assurance Activity under the Commonwealth Health Insurance Act 1973 Part VC
Program area
Preferred published date
Immediately
Prioritised clinical domain
Nil
Abbreviation
ROSA
Registry contact
Sarah Bray, South Australian Health and Medical Research Institute (SAHMRI) ROSA@sahmri.com
Year established
2017
Description
The Registry of Senior Australians (ROSA) is a cross-sectoral data platform designed to monitor the health, service utilisation, medication use, mortality, and other outcomes of people receiving aged care services in Australia. ROSA brings together datasets collected from the aged care and health care sector by the Commonwealth and state health authorities, to provide us with a full picture of the ageing pathway for individuals in aged care. ROSA produces evidence to guide decision-making for quality, coordinated, efficient, innovative and age-friendly services and practices.
Like other Australian clinical quality registries, ROSA was designed to monitor the effectiveness and appropriateness of aged care services provided to older Australians and to identify variance and advise on best practices. In addition to conducting comprehensive reviews of its captured population, including evaluations of aged care pathways and service utilisation, ROSA also has an 'Outcome Monitoring System' of quality and safety indicators for aged care providers and facilities.
Reporting process
- Reported in an annual report
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Reported to aged care providers, aged care providers peak bodies, policy makers (i.e. Aged Care Quality and Safety Commission, Royal Commission into Aged Care Quality and Safety)
Patient Reported Outcome Measures (PROMs)
Nil
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
Not applicable. ROSA is a registry that monitors South Australians seeking aged care services each year. It uses existing information captured by the Commonwealth National Aged Care Data Clearinghouse, Medicare Benefits Schedule, Pharmaceutical Benefits Scheme and the National Death Index, linked to South Australian hospitalisation, emergency department presentations and ambulance services datasets to monitor its cohort. By bringing together these diverse datasets it captures the whole picture of the ageing pathway.
Condition
Aged care
Name
Registry of Senior Australians
Weblink
Lead organisation
South Australian Health and Medical Research Institute (SAHMRI)
Ethics approval reference
SA Department for Health and Wellbeing Human Research Ethics Committee HREC/17/SAH/125, approved 01/03/2018 and AIHW Ethics Committee EO2018/2/429, approved 08/05/2018
Program area
Prioritised clinical domain
Trauma
Abbreviation
SATR
Registry contact
Associate Professor Daniel Ellis, Director of Trauma, Royal Adelaide Hospital (CALHN), Co-Chair, South Australian Trauma System, dan.ellis@sa.gov.au
Nicole Kelly, Trauma Service Nursing Director, Royal Adelaide Hospital (CALHN), Co-Chair, South Australian Trauma System, nicole.kelly@sa.gov.au
Year established
2018
Description
The South Australian Trauma Registry collects information on all cases of major trauma admitted to the Royal Adelaide Hospital, Flinders Medical Centre, Women’s and Children’s Hospital and the Lyell McEwin Hospital. The information collected includes injuries sustained, mechanism of injury, details of care received including transfer (from injury scene to a hospital and between hospitals) and patient outcome. Data is extracted from SA Ambulance Service, MedSTAR, the clinical record and hospital systems which provide medical imaging and pathology reports.
Reports from the SATR inform service providers about the quality of health care on a continuous basis in the different registry sites. The information is reported in various ways to the trauma clinical teams and is used to better understand opportunities for quality improvement. Clinical Indicator reports, published twice a year, bring together data from each of the hospital sites in addition to the production of ad hoc reports. Data from the SATR is also collated and reported (de-identified) to the Australian Trauma Quality Improvement Program led by Monash University (under an ethics agreement).
Reporting process
- Shared with clinicians
- Reported in other (non-public) reports including clinical audits and clinical indicator reports
- Feedback to contributing clinicians
- Reported to State/Territory health departments
Patient Reported Outcome Measures (PROMs)
Currently no collection of any post-discharge outcome measures on trauma patients in South Australia thus the SATR does not include any Patient Reported Outcome Measures (PROMs)
Patient Reported Experience Measures (PREMs)
The SATR does not report on patient reported experience measures (PREMS). All patient reported experiences for SA Health are recorded via the patient feedback platform on the Safety Learning System (SLS)
Participating sites
All four major metropolitan hospitals in South Australia participate in contributing data to the SA Trauma Registry which includes:
- SA’s Level 1 Adult Major Trauma Centres of the Royal Adelaide Hospital and Flinders Medical Centre
- SA’s Level 1 Paediatric Major Trauma Centre - Women’s and Children’s Hospital
- SA’s Level 3 Metropolitan Trauma Centre - the Lyell McEwin Hospital
Condition
Trauma
Name
South Australian Trauma Registry
Weblink
Nil
Lead organisation
Department for Health and Wellbeing (SA)
Ethics approval reference
Quality Improvement Initiative, authorised under Section 64 of the South Australian Health Care Act 2008
Program area
Preferred published date
Immediately
Prioritised clinical domain
Nil
Abbreviation
ASAR
Registry contact
Peter Gibson, University of Newcastle, peter.gibson@newcastle.edu.au, asar@thoracic.org.au
Year established
2019
Description
The Australasian Severe Asthma Network (ASAN) is a multicentre clinical research network that:
- Collects and reports on data from people with severe asthma
- Facilitates clinical research in this population, and
- Seeks to improve clinical practice for this condition.
The ASAN provides a mechanism for sharing information which helps researchers and clinicians to better understand severe asthma and develop optimised clinical management strategies. The ASAN collects data relating to patients who are diagnosed with Severe Refractory Asthma (SA) and who are recruited from participating sites across Australia, Singapore, and New Zealand. All information collected from affiliate sites are securely stored in the main data repository. Access to the database is restricted to authorised users.
Reporting process
- Reported in Annual Report
- Reported in other public reports
- Shared with clinicians
- Shared with consumers
- Shared with medical colleges
Patient Reported Outcome Measures (PROMs)
- Asthma Control Questionnaire (ACQ)
- Asthma Quality Of Life Questionnaire (AQLQ)
Patient Reported Experience Measures (PREMs)
Nil
Participating sites
https://www.thoracic.org.au/researchawards/asar-sites
Victoria
- The Alfred Hospital
- Frankston Hospital
New South Wales
- Campbelltown Hospital
- Concord Repatriation General Hospital
- John Hunter Hospital
- Liverpool Hospital
- St George Specialist Centre
- St Vincent’s Clinic
- Westmead Hospital
- Woolcock Medical Research Institute
Western Australia
- Fiona Stanley Hospital
Queensland
- Princess Alexandra Hospital
South Australia
- Royal Adelaide Hospital
Condition
Severe Asthma
Name
Australasian Severe Asthma Registry
Lead organisation
The Thoracic Society of Australia and New Zealand (TSANZ)
Ethics approval reference
Hunter New England HREC Reference No: 12/11/21/4.04; NSW REGIS Reference No: 2019/ETH03836
Program area