The Australasian Pelvic Floor Procedure Registry (APFPR) is a clinician-led national clinical quality registry that monitors and reports on the safety and quality of care relating to pelvic floor procedures including those using pelvic mesh undertaken in Australian hospitals. The APFPR commenced operations in 2021, with data from female patients undergoing a stress urinary incontinence (SUI) procedure (with or without pelvic mesh) and/or a pelvic organ prolapse (POP) procedure (with mesh) at participating sites being eligible for inclusion. Both clinician and patient-reported outcomes are collected by the registry. As at January 2025, data on approximately 1400 procedures has been collected in the registry. 

The APFPR dataset includes data on pelvic floor disorder diagnoses, surgery and device details including any intra-operative complications, and post-operative outcome and complications at the 6-months follow up. Procedures are categorised into primary procedures and subsequent procedures, the latter performed to address recurrence, or complications of previous procedures. Additional data items are collected for risk adjustment purposes.

The Upper Gastrointestinal Cancer Registry (UGICR) is a clinical quality registry that monitors the quality of care provided to Australians diagnosed with upper gastrointestinal cancers.



The UGICR was established in 2015 and is managed by the Cancer Research Program, within the School of Public Health and Preventive Medicine at Monash University. The School has extensive experience in the establishment and management of clinical registries and is considered a centre of excellence in clinical registry science.



The primary liver module of the UGICR aims to identify unwarranted variation in treatment and outcomes for people with newly diagnosed cancer arising from the liver, and provide timely risk-adjusted benchmarked reports of quality of care to participating hospitals.

The Upper Gastrointestinal Cancer Registry (UGICR) is a clinical quality registry that monitors the quality of care provided to Australians diagnosed with upper gastrointestinal cancers.

The UGICR was established in 2015 and is managed by the Cancer Research Program, within the School of Public Health and Preventive Medicine at Monash University. The School has extensive experience in the establishment and management of clinical registries and is considered a centre of excellence in clinical registry science.



The biliary module of the UGICR aims to identify unwarranted variation in treatment and outcomes for people with newly diagnosed cancer arising from the bile ducts or gallbladder, and provide timely risk-adjusted benchmarked reports of quality of care to participating hospitals.

The Upper Gastrointestinal Cancer Registry (UGICR) is a clinical quality registry that monitors the quality of care provided to Australians diagnosed with upper gastrointestinal cancers.

The UGICR was established in 2015 and is managed by the Cancer Research Program, within the School of Public Health and Preventive Medicine at Monash University. The School has extensive experience in the establishment and management of clinical registries and is considered a centre of excellence in clinical registry science.

The oesophagogastric module of the UGICR aims to identify unwarranted variation in treatment and outcomes for people with newly diagnosed cancer arising from the oesophagus and stomach, and provide timely risk-adjusted benchmarked reports of quality of care to participating hospitals.

The Upper Gastrointestinal Cancer Registry (UGICR) is a clinical quality registry that monitors the quality of care provided to Australians diagnosed with upper gastrointestinal cancers.



The UGICR was established in 2015 and is managed by the Cancer Research Program, within the School of Public Health and Preventive Medicine at Monash University. The School has extensive experience in the establishment and management of clinical registries and is considered a centre of excellence in clinical registry science.



The pancreatic module of the UGICR aims to identify unwarranted variation in treatment and outcomes for people with newly diagnosed cancer arising from the pancreas, and provide timely risk-adjusted benchmarked reports of quality of care to participating hospitals.

The primary purpose of the Shunt Registry is to systematically collect information related to the use of cerebrospinal (CSF) shunts to guide best clinical practices, processes and improve health outcomes for patients with CSF shunts. Any hospital throughout Australasia where cerebrospinal fluid (CSF) shunt surgery is performed is eligible to contribute data to the Shunt Registry & nbsp; Any patient undergoing a CSF shunt related procedure in an ethics approved site is eligible to contribute data to the Shunt Registry. There are no additional inclusion or exclusion criteria.

The Shunt Registry key objectives are to:

• Enable determination of the current indications, frequency and outcomes of CSF shunt related procedures;
• Enable measurement of CSF shunt longevity and device failure rates with benchmarking of CSF shunt component performance;
• Enable early identification of particular CSF shunt components associated with unexpectedly high failure rates;
• Measure the quality and safety of care to form benchmarking of outcomes between de- identified individuals and neurosurgical units in order to improve the quality of clinical care;
• Mitigate risk by using Shunt Registry data to rebut any inaccurate information published about the safety of CSF shunts;
• Provide an opportunity to study methods of improving the performance and outcomes of CSF shunts and their components through research projects;
• Provide a central repository of potentially re-identifiable information to allow rapid provision of accurate information to the neurosurgeon if the need arises
• Provide the neurosurgeon access to device information if a patient has an emergency need for neurosurgical care.

A normal heart comprises two pumping chambers called ventricles. Being born with a single ventricle is one of the most severe conditions in newborns with projected mortality of 25-40% within the first 4 years of life. A series of operations provide a lifeline to these patients. The last of these is the Fontan procedure; a procedure performed at around 4 years of age, that connects the veins directly to the pulmonary arteries.

It was long believed that these surgeries would not result in long-lasting survival, however, under the leadership of the Australian and New Zealand Fontan Registry (ANZ Fontan Registry), it has now been demonstrated that survival 35 years after Fontan will reach 85%. The ANZ Fontan Registry is the largest database of patients surviving with a single ventricle and the only population-based registry of Fontan patients’ data. It aims to facilitate a greater understanding of these patients’ short and long term health outcomes, as well as factors which can be modified to improve their health and wellbeing. Being the largest registry of its kind, and with strong partnerships between multiple sites throughout Australia and New Zealand, the ANZ Fontan Registry enables high-quality research (including clinical trials) to be conducted in order to optimise and  standardise care for this population.

The aim of the SOHO registry is to collect patient reported outcome measures (PROMs) amongst children with paediatric orthopaedic conditions attending The Children's Hospital at Westmead. The outcome measures collected are tailored to the individual orthopaedic diagnoses. Currently included diagnoses are:

• Idiopathic Scoliosis
• Early-Onset Scoliosis
• Syndrome or Neuromuscular-related Scoliosis
• Charcot Marie Tooth disease
• Congenital Talipes Equinovarus
• Tarsal Coalition
• Lateral column lengthening
• Pes Cavus correction
• Anterior Cruciate Ligament Rupture
• Mensicus Tear, Osteochondritis Dissecans
• Discoid Mensicus
• Patella Dislocation
• Hereditary Multiple Osteochondramata
• Bone and Soft Tissue Tumous
• Leg Lengthening
• Perthes Disease
• Muccopolysacchariodosis and shoulder instability.  

PROMs are completed at baseline, 6 and 12 months and then on an annual basis ongoing.

The Bowel Cancer Outcomes Registry (BCOR) is a Clinical Quality Registry established by the Colorectal Surgical Society of Australia and New Zealand (CSSANZ). It was started as a clinical audit and is a surgeon-led surgical audit applicable to all surgeons who perform colorectal cancer surgery.

The BCOR is governed by a collaboration of invested parties (CSSANZ, RACS, NZAGS, GSA, and consumers) and contains over 43,000 treatment episodes.

BCOR data is used for clinical audit of the surgical practices of Australian and New Zealand surgeons for the purpose of quality assurance. The audit also works towards creating a large dataset containing Australian and New Zealand data that can be used for research and quality improvement purposes, with the aim of advancing knowledge and understanding of treatment for colorectal cancer. By creating this dataset BCOR will be able to identify areas pertinent to patient safety, identify benchmarks and identify sites that may be performing outside the common bounds of the larger group.

Patients 18 years or older undergoing resection or treatment for colorectal cancer are recruited by surgeons at participating public and/or private hospitals in each Australian Jurisdiction and New Zealand via an opt out consent approach.

BCOR collects information on patient and tumour characteristics, colorectal cancer management, complications of treatment, and clinical quality indicators relating to quality of surgical and hospital care.

The Perth Hip and Knee Research Registry is designed to prospectively capture data to allow comparisons in techniques of undertaking hip and knee arthroplasty (joint replacement) surgery. This will look at methods of performing the surgery including the use of advanced technology and robotics as well as methods of individualising position of implants during surgery.

All patients undergoing hip or knee replacement surgery at Perth Hip and Knee Clinic will be eligible for inclusion.

Patient demographics, intra-operative measurements and data, post-operative patient reported outcome measures, clinical assessment and patient satisfaction will be measured as will radiographic analysis undertaken as routine of care.

The Continuous Improvement in Care – Cancer (CIC Cancer) Project is a multi-institutional program of research that seeks to bring value-based healthcare (VBHC) to public and private healthcare settings in Western Australia (WA).  The project aims to create value through improving outcomes whilst containing costs (www.ciccancer.com). This is achieved through measuring and acting on variations in outcomes that are important for people diagnosed with breast, colorectal, lung, prostate and ovarian cancer.

The results of combined clinical and patient-reported outcome measures will feed back into clinical management processes to improve care; help determine needs for clinical intervention and allow units to assess and improve their practices.

The PCOR-ACT is the ACT branch of the PCOR-ANZ research project.  The aim of the PCOR-ANZ is to improve the quality of care provided to men with prostate cancer. All men diagnosed with and/or treated for prostate cancer in the ACT who are eligible to take part in the registry are invited to participate.  Information from the registry will be used to monitor the care provided to men with prostate cancer including type(s) of treatment, related complication(s), and both short- and longer-term outcomes of care. 

This information will be used to help identify whether any gaps exist in the service provision for men with prostate cancer.

The Western Sydney Clinical Frailty Registry is designed:

1. To obtain a representative cross-sectional view of patients with frailty and their management in Blacktown Hospital Geriatric Medicine Service.
2. To establish a clinical profile of patients admitted to Blacktown Hospital Geriatric Medicine Service over a five year period (2020-2025).
3. Describe the rate and outcomes of frailty among patients admitted to the Blacktown Hospital Geriatric Medicine Service.

Secondary objectives:

To obtain a representative cross-sectional study cohort with their socio-economic, medical history, pharmacotherapy, cognitive and frailty assessment data.

A benchmarking registry for outcomes of paediatric cardiac surgery for Australia and New Zealand

A quality registry of perioperative surgical data from paediatric cardiac units using CardioCel, a tissue substitute used in the repair of cardiac defects.

The Victorian Orthopaedic Trauma Outcomes Registry was initially funded as a pilot project by the Victorian Trauma Foundation in 2003. It first started as a collaborative project between The Alfred, Royal Melbourne Hospital and the Department of Epidemiology and Preventive Medicine at Monash University. The registry was expanded to include the Geelong Hospital and the Northern Hospital in 2007. It operates as a sentinel site registry and is a comprehensive and robust monitoring system for orthopaedic trauma in Victoria. The overarching aims of the Victorian Orthopaedic Trauma Registry are to:

1. Monitor orthopaedic injury management, treatment, approaches and outcomes
2. Identify variations in orthopaedic clinical practice
3. Identify specific injuries, procedures and patient populations at risk of poor outcomes
4. Monitor the use of orthopaedic implants and their outcomes

The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) is a clinical quality registry that collects and produces a wide range of statistics relating to the outcomes of treatment of those with end stage kidney disease (ESKD).  ANZDATA has been in operation since 1977 (but contains data from precursor registries dating back to 1963).  All renal units in Australia and New Zealand contribute data to ANZDATA.

The Registry’s fundamental purpose is to report on the incidence, prevalence and outcomes of dialysis and transplant treatment for patients with ESKD, by providing information that is complete, accurate, clear, relevant, readily available and timely.

Data from the Registry is regularly used to inform clinical practice, monitor quality of clinical care, plan health services, and conduct research projects.

The Aus-ROC OHCA Epistry aims to monitor and report on the population-based effects of changes in pre-hospital resuscitation policy and practice. Specifically, understanding regional, ambulance service and treatment factors associated with improved OHCA survival and outcomes.

Population: all OHCA cases attended by Australian and New Zealand ambulance services. 

Outcomes: survival to hospital discharge/30 days, event survival and return of spontaneous circulation (ROSC).

This is a prospective, multi-centre, observational, national registry of HCV infected patients.

The purpose of the registry is to establish a prospective national registry of patients with HCV liver disease attending ALA CRN liver clinics and hepatitis treatment centres, to better understand the epidemiology, treatment outcomes and health care burden and costs of the HCV pandemic.

The aims include:

• To describe the epidemiology of HCV infection in a prospective multicentre cohort of HCV infected patients
• To record baseline demographics, clinical, virologic and liver disease characteristics, and prior treatment status
• To characterise HCV treatment response and treatment limiting adverse event rates
• To assess the impact of treatment and virological response on patient outcomes
• To evaluate health care utilisation costs associated with chronic HCV infection.

The population includes: 

• Male and females ≥ 18 years of age.
• Under the care of an ALA CRN liver clinic or hepatitis treatment centre for management of hepatitis C infection.
• Evidence of current or prior HCV infection based on positive HCV RNA test by PCR.
• Written informed consent.